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John from Ohio

Posted , 7 users are following.

Bmac339
Bmac339

I have had menieres for 9 years. Steroids,surgeries, diets, clinical trials...I've tried it all. Lierally everythong.  I have lost 90 percent of my hearing in my right ear. 

I am convinced my menieres is caused by a virus. Has anyone had success with the John from Ohio regimen? If so would love to hear more...thank you. 

0 likes, 23 replies

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  • debbie67041
    debbie67041 Bmac339

    Posted

    I have tried a few steps of the regimen - starting with the Lysine, then added Lemon Biflavonoid and then Vinpocetine.  I am still using all three and I am doing well.  My attacks started with low frequency hearing loss in one ear in Feb 2016, then followed by vertigo.  The hearing loss was pretty bad in the low frequency and was fairly severe for a period of many months.  My ENT started me on betahistine (which is not FDA approved but I got through a compounding pharmacy) and almost immediately I started to feel better, more stable, no more attacks.  I was on betahistine for about 7 months over the last few months of which I tapered down and came off of it.  While on betahistine I remarkably regained just about all of my lost hearing.  My ENT was giddy and very surprised.  Then I started John of Ohio - about 7 months ago.  I have no real idea if it works, but I have been doing well since I went off the betahistine and started John from Ohio but I am sticking with it.  My ENT says to keep going with it.  It's worth a shot.  I tend to think it is helping me stay stable.  I also recommend looking into betahistine if you have not tried it yet.  I had no side effects and it seemed to work for me.  Good luck on your search for relief!

    • david2salsero
      david2salsero debbie67041

      Posted

      Hi there. I’m also on betahistine with occasional use of deuretic. I’m curious what John of Ohio is. I’m new to this Forum and have been with MD for 18 months; the atypical form with only hearing loss in one ear so far.
    • debbie67041
      debbie67041 david2salsero

      Posted

      Hi David.  Like you, I had only hearing loss in one ear and no vertigo at first.  My hearing loss came on without any vertigo and the vertigo came afterwards.  John of Ohio is a regime with a slew of supplements.  Here is one link to it but if you google it, you will find it along with more info and people talking about whether it worked for them: Does the betahistine help you?

      Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

      http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • Bmac339
      Bmac339 david2salsero

      Posted

      John from Ohio is a supplement regimen that is based on the fact that your Menieres is a virus. Google it.

      All menieres are different. If yours is a virus this may help. Worth a shot. All the best. 

      Brian

    • Bmac339
      Bmac339

      Posted

      David - google menieres and herpes virus. You will see they have been investigating the connection since the 1940s. All menieres are different. ENTs are surgeons. They don't look for causes. They look to operate. It's up to you to find your cause. Your ear doesn't go deaf for no reason. I am deaf too in my right ear. Good luck with everything. Stay well. 

    • david2salsero
      david2salsero debbie67041

      Posted

      Thanks Debbie. I started with diet and have followed the strict guidelines ever since. Then I added betahistine, and when I travel I take the deuretic. My episodes begin with a build up of pressure in both ears followed by hearing loss in my left, usually the lower frequencies as well as an intense sensitivity to sound. I also find it strange that when I jump up or down it feels like I have fluid in my ear. I simply wear ear plugs and wait until the episode goes away usually with a day or two. I’m trying every possible to avoid anything invasive. I’m intrigued by the connection MD may have to a virus.
    • david2salsero
      david2salsero Bmac339

      Posted

      Thanks Bmac. I’m sorry about your profound hearing loss. Is the loss all MD related? What are you doing now to cope with the disease?
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