Joint pain :(

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Im really suffering with my knees ankles and small of my back. My knees feel like ive been knee capped! I really struggle to take pain meds, 2 paracetamol I can cope with but any more and I get diarrhoea and feel really sick. Ive tried ibuprofen gel, didnt do much and deep heat sprays give me a rash. Im waking in the night aching like crazy sad I work in a nursery unit so im stood up for the best part of 9hrs a day. What can I do? I just cannot stand it its driving me mad! Has anyone tried rectal pain relief? I might have to go to see my GP tomorrow rolleyes

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16 Replies

  • Posted

    Do your joints bend a lot? My consultant is still testing to see if I have crohns but said that as I can bend my joints quite a lot I might have hypermobility which is linked to crohns. If that is the caw it is pain managed separately so maybe something to consider? Sorry I can't help with particular medication, I'm currently on nothing till they diagnose but suffering from a lot of joint pain right now.
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    • Posted

      Yes I am quite bendy and my daughter in fact has hypermobility in all her joints, she twists them all in odd directions and can dislocate things she shouldn't lol. I think I will see my GP and ask for pain relief ss it will b a long time till I see the Consultant again anyway. Thanks
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  • Posted

    Hi Jo I assume you have crohns ? If so what medication are you on ? As I may be able to help you regards jon 
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    • Posted

      Hi Jon, I was only very recently told I do have IBD after a very long misdiagnosed battle with IBS. As yet im not medicated, awaiting further tests. The problem for me is pain meds irritate my entire digestive tract, im either sick, get the runs or both. Its soooo annoying
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  • Posted

    Yeah it's not uncommon to be messed about by Drs and hospitals when they are trying to diaganose why you have stomach pains, to a degree it is difficult thing to diagnose as its a specialist field . Are you under a specialist and exactly what tests have been done ? It's strange you haven't been prescribed something for it and I don't mean the pain 
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    • Posted

      Yes im seeing a gastroenterologist. Im awaiting an urgent colonoscopy and hydrogen breath test but was told my inflammatory markers were v high. I guess they wont medicate me until ive had such tests. Ive been admitted to hospital in the past and my notes say "regional enteritis" yet I was discharged and never followed up. Ive just put up with the pain and diarrhoea as my GP just kept saying I had a dysfunctional bowel but they werent sure where. Nobody wanted to help me. All in all its 20yrs since this all began. This joint pain is new to me. Its the fact that I cant take painkillers that is bothering me, I just want to be able to sleep sad Even if it isn't linked, I still need to find a way to relieve pain
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  • Posted

    Ok I was diagnosed with crohns 20 years ago but I had tummy pains before that and your case is not uncommon but to allow it to go on for 20 years is unforgivable your gp should be ashamed of him/herself imho . Sounds like you have had the cheap tests colonoscopy will show up what your problem is I'm 99 percent certain there is obliviously a problem if your bloods indicate your markers are high the procedure is uncomfortable but worth it as I've had it 3 or 4 times if you are diagnosed with crohns there are lots of other side effects that go with it which have nothing to do with your tummy achy joints are one of them as well as I itchy back flaky skin feeling tired all the while etc but it Varys  from person to person I'm confident you will get it sorted but please keep pestering your specialists secretary for a date you have waited long enough I wish you well and I hope I have helped ? I post on here because I know what that pain feels like and I was diagnosed pre Internet all the best jon 
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    • Posted

      Thanls Jon, any advice is greatly appreciated amd there is no better person to give advice than someone with the condition. Im still angry that I have just been left. Luckily my pain threshold is amazingly high, ive had 2 babies, 3 broken ribs, broken bones in my foot and never had any pain relief! The flip side is I ignore pain and don't appreciate when I need medical intervention rolleyes My GP once told me Im a danger to myself lol. I've had joint pain for 3wks now, if it didnt affect me in the night I would learn to ignore it in the day also. Hopefully I wont have to wait to long for the tests. I cant believe in 20yrs nobody sent me for these tests or even checked a simple stool sample. Thanks again, I wish you well
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  • Posted

    Hi Jo I've tried quite few things for the joints the ibro gel doesn't touch it for me, and the only thing that worked so far is antinflams or steroids. I couldn't take antiinflams because they make gastro symptoms ten tes worse, but I've been taking Omeprazole for a while and have Naproxine a go, it's ment to be the less severe of the antiinflams I managed to tolerate it this time and it was wonderful not hobbling around. I can't tolerate anything above paracetamol and this took the edge of things. However I do space out taking the Omeprazole with other things like vitamins, thyroid meds etc as it can effect there absorption I do believe you should stop taking them a few weeks before any test blood test for inflammation or a colonoscopy or endoscopy as they can affect the results in making you look well when your not
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    • Posted

      Hi, thanks for the advice. I cant takr PPIs, I find they flare up my symptoms so take 300mg of ranitidine a day and that helps. I need to check if I should stop these then before the tests rolleyes
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    • Posted

      Oh that's such a shame, might look into ranitidine myself, I don't think you can take iron supplements a few days prior as well, it should say this on the prep sheets they give you telling you what you can eat. I've also heard high doses of flaxseed oil can help with inflammation in joints and there are lots of foods that are naturally high in antiinflams But I guess it'll be trial and error to see what works for you. Good luck
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    • Posted

      I have GERD so need ranitidine, I sometimes need to use gaviscon as well but find them much kinder on my system than PPIs. Half my problem is my size, im a really tiny frame, I can wear childrens clothes age 12-13 and I find Drs over medicate me! I get adult doses when I need child doses lol
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  • Posted

    Normally  when you are diagnosed with crohns or you have a flare up your specialist prescribes prednisoline steroids to dampen the pain in a big way and then wein you off them as you cannot take them long term. One reason is because they eat away at your bones some years ago I had dreadful pains in my right shoulder my movement was poor when a bone specialist xrayed it he said the ball was on its way out of the socket and he thought I would need a full shoulder replacement thankfully I didnt but that was due to using steroids years before so beware using steroids for bone/ joint pain as steroids will make it worse 
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    • Posted

      I am aware of this thanks. I dont plan on taking meds for the sake of it tbh. If im bad then fair enough but where possible I always try and avoid medication. I will stick to my limited diet if need be as ive managed this far managing my own symptoms to a degree
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    • Posted

      It is a balancing act with medication, quality of life vs side affects etc. I never used to take any meds and am now just tapering a course of steroids. They are horrible but the joint problems went into the hips and tailbone, which was intolerable. There's also the problem of, if it's causing damage, if it is then i guess you've got to just swallow those pills and then more pills to counteract the side affects! I've experienced a fair bit of over medicating can't believe they wouldn't adjust it because you tiny how silly of them, try telling them your exact weight when they write out the prescp might make them pause
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    • Posted

      Thanks Jenny I will do. Ive had pain in my tailbone and hips for years, wonder if that is the cause for me also. My knees are so sore after standing for the best part of 9hrs at work! I will take what I have to to feel better I spose rolleyes
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