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julia75698

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julia75698
julia75698

i was in hospital for 3 years about 10 years ago with a perforated intestine,piritinitis,cysts in bladder,also on supernumerary kidney system,bladder and bowel was joine.d together the list goes on in short i was close to death.since this time i have never fuly recovered.i was diagnosed as having fibro about a year ago.foggy head,weak arms and legs ankles neck and spine,at the end of the day my feet feel like they are in blocks of concerete. i would like to communicate with people like yourselves who understand what it actually feels like and i may get some help and advice that would help the condition. I also may contribute some useful info back too. In short i feel alone family havent got a clue. daughter wants me to climb Bennachie. oh ye.ilook forward to suggestions,latest technology aid (if any).I dont know if anyone feels the same but i wont go to doc now with anything i put everything down to fibro,plus i feel the doc himself feels helpless. does anyone else feel like that. I do look forward to a reply. Hope i havent went on too much but it would be lovely as i said before just to connect with someone who understands.the only person so far that seems to understand is my Chiropractor. shes been very helpfull. i hopefully await a reply thanks for taking the time to read this.julie 

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3 Replies

  • kaz_40
    kaz_40 julia75698

    Posted

    Hi julia75698 welcome to the forum. I was diagnosed with fibro in 2014, after 10 years and many many tests seeing lots of specialists a rheumatologist diagnosed fibro. Fibro is based on widespread pain which can affect any where in the body. fibro has many many symptoms fatique pain numbness tingling burning earache anxiety depression sore throat blured vision hair loss balance problems sensitive to smell noise light and clothing. difficulty with walking fibro fog speech problems these are just a few of the many symptoms fibro throws at us. the only people that really understand fibro are those that have it. many drs have no understanding of it and some dont believe in it. some areas have fibro support groups that you can join they normally meet once a week. your gp can refer you toa apain clinic. cbt therapy. also some areas offer hydrotherapy for so many weeks accupunture for 12 weeks. fibro varies in the severity of it from mild to severe. Their are many different symptom the symptoms vary in how long they last. it depends on how fibro affects you as fibro affects us all differently. fibro is very much a learning curve for us all its trial error with everything. as what meds suit 1 person they may mot suit another. its trying different things to see what suits you and what doesnt. aids to help you eg bath board wheel chair walking stick walking frame stool for kitchen. we have to learn to pace ourselves with fibro and not do too much as if we do fibro fights back and causes us more pain and makes us feel quiet poorly. so paceing is very very important. stress worry dont help our condition it makes it 10xworse and causes more pain.we go through different emotions with fibro denial, anger, grieving for the person we use to be and finally acceptance. as yet their is no cure for fibro. your gp will try you on different pain meds to see what works for you and what doesnt. eating health trying to stay positive paceing ourselves resting and listening to what your body tells you all helps. being kind to our selves treating ourselves helps to give us a lift.hot baths showers may help to relieve pain its trying different things to see what works for you. Its normally a rheumatologist that diagnoses fibro thats after other conditions have been ruled out eg rheumatoid arthritus. unfortunatly with fibro you may find that you are unable to do what you once could. some of us have had to give up our jobs because of fibro. This forum is a great site to be on for support and information. hope this gives you an insight into fibro its down to how fibro affects you and finding what works for you and what doesnt. and seeing what support and help their is where you live. your local cab can give you help advice on benefits. take care kaz40 
  • kaz_40
    kaz_40 julia75698

    Posted

    forgot to add sleeping can be a problem when you have fibro many of us have trouble sleeping. also another symptom of fibro is costoconddritus it mimicks an heart attack so any chest pain should be checked out by gp x
  • diagnosisisalie
    diagnosisisalie julia75698

    Posted

    Have you tried acupuncture? It helped when I was in those shoes. What meds are you taking, if there nt working then you need to get off of them see thedoc. Sometimes the meds make it worse, it did for me. I still have pain some,horrible sleep, but I can live my life.it isn't exactly how I want .I can know stun doctors who thought I was going to be an invalid . they can't object to doing surgeries because of fibro, as I have control not the fibro. Remember that you are your only advocate.this means yiu must fight when needed, and research until you have the answers. Good luck
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