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Just a hello.

Posted , 10 users are following.

eamonn58740
eamonn58740

Ok I probably should of did this before now just want to introduce myself, as I've found this group very helpful and If being more than a random name on a screen helps someone else then I'm all for it.

My name is Eamonn I'm 34 and from Northern Ireland. I've been diagnosed with LS over a year and have had some good results with treatment so much so I'd say for the time being I'm 99 percent back to I was before. If anyone needs any advice or support I'm here and this disease shouldn't be as taboo a subject as it is. Sorry for my waffling on and thanks for taking the time to read this.

1 like, 12 replies

12 Replies

  • suzie37971
    suzie37971 eamonn58740

    Posted

    Welcome this site has helped me so much and all the advice i have recieved .

    Please share love to hear about your experiences 🤗 

  • muriel64344
    muriel64344 eamonn58740

    Posted

    Hi Eamonn. I'm from NI too. Female of course and just a tad older. Ah hemm! You didn't say what your treatment was or who was treating you. I only see my Gp and have had this hateful condition for over 12 years. Managing with very little help. Anyway glad your 99% better. If you know of someone medically who s clued in I'd appreciate your info. Good luck.

    • eamonn58740
      eamonn58740 muriel64344

      Posted

      Hey there closely related in age friend 😉, I had my diagnosis done in the Ulster hospital and I'll not name my Doctor's as although the treatment worked great for me I was continually misdiagnosed for over a year which made the scarring of my skin much worse. My own personal routine is dermol lotion as a soap replacement and cetraban as a barrier cream which I use in the morning and I'm using dermovate twice a week down from twice a day at the start to every two days to now twice a week maintenance.

      Now although totally my own opinion and maybe I just imagined it but having Himalayan pink salt baths really helped with my redness and irritation when the condition was worse.

    • muriel64344
      muriel64344 eamonn58740

      Posted

      Thanks for getting back. Similar treatment plan. Think diet plays a big part too. You'll come across lots of different ideas and how others manage this condition. Nice to know we have this and get great empathy and support from others.

    • linda94703
      linda94703 eamonn58740

      Posted

      so happy for you, I wish you continued luck and health...I am not familiar with cetraban, will have to look up..
  • Tweetmepete
    Tweetmepete eamonn58740

    Posted

    A huge welcome Eamonn! It's really great having this support group for all to compare notes and b***h and moan.

    • eamonn58740
      eamonn58740 Tweetmepete

      Posted

      Lol yea I know, on the plus side I don't feel as embarrassed now since I've got talking to others, bearing in mind when I was meeting new girlfriends etc I was so badly scarred at one point I used to lie saying id caught myself on my zip.

  • mary_lou60460
    mary_lou60460 eamonn58740

    Posted

    Hi Eamonn,

    You're correct, this forum has been a great source of information for many! I'm in the USA, and when I was diagnosed 20 odd years ago nothing like this existed. And more information needs to be out there for me and women.

    I know because I have an auto immune disease already, thyroid problem, that can be one of the under lying reasons for my LS. Just curious what your doctor, or any doctor feels the under lying cause that men also get LS? I'm happy to read you have yours managed quite well, same is true for me. I think the best thing is be vigilant about your care and I check myself everyday lol

    MaryLou

  • susan43705
    susan43705 eamonn58740

    Posted

    Hello and so glad you are almost back to normal.  Tell me how you treated yourself please. 

    Thank you.

     

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