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My name is Hannah. I am 24 and born without a thyroid (congenital Hypothroidism). I feel like complete crap most of the time. Today I am feeling worse than usual. I have exactly no energy and some weird vertigo. Does anyone have this issue?

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  • Posted

    Yes Hannah, lots of people do. Are you receiving medication? Do you have regular blood tests?
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    • Posted

      I take synthroid everyday. I was doing 500 mcg then 250 now 200 mcg. Ive been dealing with this my entire life and as of late I just feel super exhausted, mentally and physically. I used to work out a lot but I cant find the energy to get up and go on a run anymore
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  • Posted

    Hello Hannah:

    My name is Shelly and I am a nurse in the USA.  I have Hashimoto's autoimmune  thyroid disease since 1987.  I also had many symptoms as a teenager in the 1970's.

    I was on synthroid (levo) and it did nothing for me.  Then I went to Thyrolar a T3/T4 med.  Some improvement but not much.  Then I went to Armour thyroid and things got better.  It took until 2009 but I was placed on Cytomel also called Liothyronine.  It is T3 only and has helped me come alive.

    Some people do not convert T4 well and need some T3 as a balance.  Ask your doctor about it. 

    Synthroid /Levo in high doses is not good.  So have them do a T4, T3, RT3 and RT4 tests.  This will give you a complete picture of your thyroid blood levels.

    I know how you feel, take care, any questions, just ask.

    Shelly

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  • Posted

    Hannah, are you seeing an endocrinologist and getting regular blood tests? Do you know what they show? I have the same problem and I will be seeing my endocrinologist this week. If you are feeling worse than usual perhaps something has changed. Family doctors don't understand this condition, so seeing a specialist is important if you are feeling worse. Do you plan on doing that?

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  • Posted

    Hi

    Hannah yes that's me some days are bettr than others. I have been told this is a long process. I've been going through this for 2 years this year far worse than last year.

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  • Posted

    Thanks everyone for your comments! I also want to ask a serious question.. I am 24 so I like to drink with my friends on weekends and have fun or sometimes just causually after work.. Should I drink alcohol with my condition or will that worsen it?
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    • Posted

      Hello Hannah:

      Beer and most alcohol is full of calories and makes it harder for our meatbolism to burn off as our thyroids are already low.  So you can pack on weight faster if you drink.

      Limit your drinks to only 1 or 2 and  do not take your medication with any alcohol or within 2 hours of drinking.   Do eat something with alcohol to help it process through your system.  If you prefer you can have a soft drink or club soda.

      I hope this helps.

      Shelly

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