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Just been diagnosed :(

Posted , 11 users are following.

kirstyradkex
kirstyradkex

Hi guys, after spending a week in hospital I've been diagnosed with Ulcerative colitios, I've know been out hospital a week and really don't know how you have all coped I'm feeling so alone and like I have no one to speak to but I know there's millions of people suffering too. How have you got through this?

0 likes, 19 replies

19 Replies

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  • samia40365
    samia40365 kirstyradkex

    Posted

    Hi kirsty, my names Sam I've have been diagnoised with with ulcerative colitis it has taken the doctors 2 years to diagnoise me I was exactly in the same postion as you, I have good days and I have not so good days, but I've learnt to live with this condition in a way that I keep myself busy I am taking quite a few meds which are morphine, cyclezine, amitriptyline busopan and tramadol not easy but then again I have to take them I've have recently been given mesalazine sachets, even though all this is going on, I am a full-time student in college I want to be a midwife, my health does impact my studies but I never give up I feel more and more determined to achieve my goal, I try not to think about it but it does sometime have a big affect on life, kirsty trust me you will be fine as long as they can sort out your meds you should be able to live a normal life, I know it's not easy but try not to think about it too much otherwise you will get so stressed in a way you will make yourself even more ill. So please try not too think about it too much if you need to ask me anything please just message me and I will try my best to support you in any way possiable, the only people who can understand you are the ones who have and are going through the same problem so chin up and you will be fine don't upset yourself. X x x
  • ruari1
    ruari1 kirstyradkex

    Posted

    Horrible as the condition is, you soon learn to just keep going. I have had UC for 4 years, been diagnosed 3 years now and have tried all sorts of remedies. I have had breaks ranging from 2 months to 5 months during that time and quite frankly much as the breaks were wonderful, it only seemed so much worse when the condition flared up again. My way of coping varies from usual meds plus steroids during flare ups; following a low fibre diet definitely works for me and when I plan social events or travel, I combine everything else with occasional fasting days. Absolutely necessary for me as I travel a lot! UC has no respect for age either. It is a difficult condition for non-sufferers to understand and can be all consuming at times. Just keep going, there's light at the end of the tunnel and you learn new ways of coping. Make sure you are checked regularly!!
    • sheila91262
      sheila91262 ruari1

      Posted

      Hi Make sure you see doctors who are experts. Such as at St Marks Hosp London and John Radcliffe Oxford. They know what latest treatments are.

      Good luck

  • rj69947
    rj69947 kirstyradkex

    Posted

    Hi hun your not alone smile have you joined any groups on facebook or support groups they can help lots so can talking therapies x
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