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Have just visited the Doc after suffering in silence for almost 3 years. 31 year old female.
Symptoms started around the time I became a chef 3 years ago and I'd say I have an "attack" every month or so. I've been woken in the night only twice but they certainly were the worst attacks.
I've tried to figure out triggers but it's too hard to pin point. Things that set it off are:
During period, sometimes.
After intercourse, sometimes.
Leaning over a sink and washing Octopus, sometimes... You get the idea haha.
My attacks are slightly gradual, I can feel it come on before it hits, a feeling of needing to go with a dull ache, followed by such intense pain I go white and have almost passed out. I'd say it certainly feels like a cramp of sorts and I'm uncomfortable for a few hours after. My coping mechanisms have been immediately taking pain relief and breathing through it. I've also tried stretching but because they never last more than say 5 minutes I'm unsure of what actually works. The longest I've had it would be about 10 minutes but felt like hours at the time.
I wanted to ask other suffers, because by God do we suffer: does it get worse as time and age goes on?
It's slightly ruining my life in the sense of most attacks happen at work and can't tell anyone what's going on, well, I don't want to. I do cope I suppose but I'm so fearful it will get worse and more often.
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