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Just been diagnosed with Fibromyalgia

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laura11452
laura11452

 I have been diagnosed today by doctor with  Fibromyalgia after a year and half of being confined to my home.  He said I have 8 of the pressure points.  But this can change dependant on the day and how my symptoms affect me.

Today my movements are slow and Iam sore in places especially my legs and feet. If I get good days and able to do house workI suffer for it after.

I cannot be on my feet for long periods of time due to pain in legs and feet.

I have had no life for a year and a half..

What I want to know as this has been on going for a year and a half.  Can you go into remission for long periods of time???

 I was told I can get DLA (PIP) for Fibromyalgia but does it depend on how many pressure points diagnosed ??? As these don't highlight the debilitating affect this is having on my life now.

I also have Hyporthyrodism,Hypertension and a small brain Anueryism.

These have all been diagnosed this last year. Would I be entitled to DLA (PIP)?

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0 likes, 3 replies

3 Replies

  • Maggers
    Maggers laura11452

    Posted

    Hi Laura and welcome to the club nobody wants to be in. Fibro is different for everyone and I have never heard of PIP being dependant on pressure points.  I scored 18/18 after being diagnosed just over a year ago having been suffering since 1987 so your diagnosis is relatively quick in comparison.   Yes you can have days/weeks/months when you feel better but it is a very individual condition.    Things that would help one person will not necessarily work for another.  Learning to pace yourself and do only what you are comfortable with is the first rule. Learning to say "no" also helps.  I find that a gluten free diet works for me, together with hypnotherapy, vitamin D and various supplements. All food is additive free with absolutely no refined sugars.    I take no prescription medicines and still manage to work but others are not as fortunate.   I use epsom salts in my bath which help with muscle cramps and general aches and pains.     Occasionally when I can afford it I visit a chiropractor.  I have found the NHS basically of absolutely no help whatsoever. I saw a rheumatologist who wrote "fibromyalgia" on a piece of paper and told me to go read about it she then said we don't treat it so I am discharging you back to your GP and that was it.   Make sure before you apply for PIP you read all about it and have your answered drafted carefully.  There are plenty of folk on here who will be able to guide you. 

    I do, on bad days, use crutches to help me balance and support my aching legs and hips. You may or may not find aids helpful, there are plenty advertised and believe me it took ages for me to take the plunge and admit I needed help.  My grip is bad so I have cups/glasses with lids on, and cutlery with large spongy handles.  Simple things can make such a difference to our day to day living.

    • laura11452
      laura11452 Maggers

      Posted

      Thank you Maggers for taking the time to reply.  Regrefully I am on prescribed medication which I have no option but to take for Hypothyroidism. Not sure if the specialist will decrease it now part of the problem is Fibro and its not helping anyway. I am actually wondering if an increase in medication has caused a relapse as a few weeks now I feel even worse. I guess going by what you have said it is trial and error and monitoring everything. My seems to fluctuate throughout the day if that is possible.

      Yes I have been very lucky to get quick diagnosis going by a lot of the stories I have read.

      Can this condition get worse as time goes on?

       

    • Maggers
      Maggers laura11452

      Posted

      Some say it does get worse but I wonder if once diagnosed we are just more aware of what is happening to our bodies. Again as Fibro is different for everyone so a difficult one. Let's throw this open to everyone on the board and see what they think.  Over to you fibro folks
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