1. Community
  2. Blood & Immune System
  3. Haemochromatosis

Just been diagnosed with GH,

Posted , 6 users are following.

sockss
sockss

Had my first venesection last week but find all the information confusing

1 like, 7 replies

7 Replies

  • lynnsk1
    lynnsk1 sockss

    Posted

    Venesection purpose is to take the iron out through your blood each time. My rate was almost 2000 and since weekly VS it's now down to under 300 which is great as I can't reverse my liver cirrhosis or arthritis but I can stop it storing any more overload. It's life changing. It the keyword is in life... I am alive

  • sheryl37154
    sheryl37154 sockss

    Posted

    Contact your country's association and they will send you information regarding genetic haemochromatosis.  The more you want to know the more reading you have to do.  It can be simple and it can be complex, depending on what you want to know.

     

    • lynnsk1
      lynnsk1 sheryl37154

      Posted

      Hi Sheryl, how are you doing yourself, I've not been on here for a while, just given a poster to my local surgery to display .. they didn't have anything displayed !!! 

    • sheryl37154
      sheryl37154 lynnsk1

      Posted

      I am getting by, dealing with issues as I can.  I miss being superwoman lol

      Spreading awareness about haemochromatosis is what we all have to do, so good on you.  See if there are some brochures that you can leave there too.

      What about you?

       

  • ellen12819
    ellen12819 sockss

    Posted

    I had my first Venesection on Friday 25th August

    I began at 530 . I have severe brain fog pains in joints weakness in limbs and fall asleep everywhere and i am yellow skinned. I believe I am lucky as it appears my liver and main organs are fine... So with my now stupid needle phobia chucked where it always belonged I begin my road to recovery.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.