1. Community
  2. Skin and nails
  3. Hidradenitis Suppurativa

Just been diagnosed with hidradenitis suppurativa.

Posted , 2 users are following.

danni321321
danni321321

Just had my recent abscess drained and have walked out of the hospital today. I have suffered with abscess for at least 12 years. I never even knew this this disease existed until yesterday when the doctor at the hospital told me what it was. I had always been told by doctors that it just one of these things I am prone to.. So upset that it hasn't been picked up on before. I'm hoping to be referred to a dermatologist, has any one else been refered??

The doctor told me that it can be helped with a long term course of pills as this disease is with us for the rest of our lives (we lucky people).  Can we get a Nhs exemption card?? I am completely in the dark. After spending so much money through the years on washes, pills, bandages, creams, solutions and paste.  Feel frustrated but relieved that I have a little light at the end of the tunnel.

0 likes, 3 replies

3 Replies

  • karen72026
    karen72026 danni321321

    Posted

    Hi, i was rreferreda few years ago and am now on lymecyclin daily been 3 years from aabscesses. I was the same as you, i suffered for around 15 years before diagnosed. Good luck!
  • kaymate
    kaymate danni321321

    Posted

    Hi Danni. I wish you luck with the dermatologist. I suffered for many years before diagnosing myself through googling on the internet and later to be confirmed by the dermatologist. I tried various antibiotics with great success for a few years then I think I became immune to them. Long story short I was referred to a plastic surgeon, but that, for me anyway, was just a step too far. At present they come and go, they're painful and unsightly but they're here to stay so I just put up with them. I don't know about an exemption card, I once asked my doctor if it was classed as a disability only to be told an emphatic "no".  This same doctor led me to believe for many years that this horrible illness was due to poor hygiene. I bathe every night and shower every morning so what more could I do.  I'm an extremely clean person. 
  • danni321321
    danni321321

    Posted

    Thank you for your replies.. I have been given a 3 month trail of antibiotics.. Luckily I now have a new doctor who knew exactly what I was talking about, hurray!!!

    Even for the doctor to recognise it is a massive step for me.. I'm currently still on pills from the hospital so I don't know if they will work or not..

    I do believe that maybe a natural solution is possible, I'm going to look into seeing about foods that I am allergic to.. See how it goes if I cut these foods out of my diet. Can't hurt, so much processed foods in the word now. It's my belief that this may be a cause also.. I don't feel that I am not over weight or have a poor diet or that I don't  keep fit.. So I do feel it's something that I may be fuelling my body with on a daily basis..I hope it's not eggs and this would be a disaster ;-) 

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.