Just been Diagnosed with Polymyagia

Sent you a PM.  Look in your message box.

Try taking the pred at breakfast, will have worked by the time you're going to bed and you'll sleep better! 5 o'clock is quite late to take it! Hope it helps!

Hi there I will have to try that other people have  said that its late I was just st doing what go recommend at the time but feel I know a lot more about polymyalgia now and I am more confident to make decisions thanks to this forum

Stress won't help you.  Have you been doing a bit of rushing around while you get ready for your holiday?  That could easily slow down recovery.  That being said, I am concerned that you are still experiencing significant discomfort after two weeks on pred.  Are you and your doctor sure it is only PMR involved?  If so, you may be one of the people who needs a slightly bigger dose at the beginning to get the  inflammation properly under control.  You may also be one of those who do better with splitting the dose, so that, for example, two thirds is taken at breakfast time and the other third perhaps with supper.  Some of us metabolise pred faster than others.  

Why don't you check with your doctor if you could try a higher dose, perhaps even 20 mg, for a few days?  That could do the trick.  And if it doesn't it might warrant further investigation.  I'm sure there will be others along who can offer some expert advice.

good suggestion Anhaga. I was put on 50mg as a starting dose and dropped dramatically over the first month - hit it hard and fast was the theory - it worked a treat!

I was one of the lucky ones whose pain resolved completely within two or three days with 15 mg where I stayed for a month.  I even suspect I might have been okay at a slightly lower dose, but did get down to 10 in about two months.  Much slower since then!

A diagnosis for Polymylgia is generally measured by the success of starting on prednisone as symptoms generally abate very quickly after starting it. Two weeks does seem like a long time to get very little reaction so maybe a visit back with your doctor might help, either, as suggested, to increase the dose or investigate something else. On the side effects from pred, it can make you feel very unwell as you get used to them, so definitely time is needed to adjust to them. A holiday might do you some good in that you'll be forced to rest and take things easy so don't dismiss it too soon. Hope you'll be feeling better very soon!

Hi this there you definitely need to see your gp the predisilone if you are taking the correct dose you work in 24hrs I was perscribed 15mg daily and  at that time could hardly walk couldn't pick up my right arm above elbow and the left wasn't much better it was a nitemare but within 20hrs I had a 90%reduction it was like a miracle perhaps 15mg isn't enough keep us informed 

Thanks everyone Seeing Doctor this morning 

Sorry didnt see post Still in a mess been on 20mg for over a week Still getting alot of pain in my back My arms and hips are much better Its been 10 days on 20mg Is it normal to still have this pain I am having blood tests Thursday to see if imflamation has gone Any help appreciated

Have you been checked to find out if anything else is going on to cause the pain?  I read an article recently which talked about other things which can cause PMR pain, sorry I can't remember any more details, but at the time I wondered how many people might be going around with incorrect or incomplete diagnosis because classic PMR had been settled on as the only cause for the pain.  These are people like yourself who have not responded very well to the moderate dose of pred which acts miraculously on most of us.

Your inflammation levels don't really matter - what matters is how you feel. If you are still in pain then you need to keep taking the pred until the pain has gone. When it's subsided, then you can start thinking about a SSSSLOOOOOWWW reduction.

I am on 20 mg of Prem and the pain really bad Have that this for 5 years and not long been diagonised If its not this I dont know what it can be seen all sorts of specialists had MRI scans etc The Pain specialist told me to take up backing to take my mind of it 

There are a number of other ailments which mimic standard PMR and you should be invetigated for these.  Not a medic, but I did find an article about this on the internet.  You could look for polymyalgia differential diagnosis. 

https://www.researchgate.net/publication/6683706_Polymyalgia_rheumatica_diagnosis_and_treatment

Hi there have you typed in polymyalgia on this site and are your symptoms or at least some of them the same as the description because when my GP first told me it could be polymyalgia I looked it up and my symptoms were almost exact so I knew before the blood test came back you have had this for a awful long time I'm so sorry for you 

I seem to have all the symptoms but am so disappointed that I am having no relief realy of my symptoms 

Morning I bet you are predisilone usually work in 24 hours of course the dose might not be enough but you would have thought at 20mg it would but some people have taken 40mg God forbid to have to take a dose that high keep us informed how you are getting on