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Just been diagnosed with spondylosis ??

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ilovemyfamily
ilovemyfamily

Hi I am 29 yr old female, I have back pan on off since 3yr old got told at 11 my 3-4 verabrea was wearing ! I have been off work for over two month now with horrible pain in my back no matter what I do I'm constantly in pain ! My mri 2weeks ago has came back and my results are.. I have degenerated disks in my neck  (osteoarthritis ) my upper back and lower back ( spondylosis ) I have a couple bulging disks and wear in my spine . I have issues with numbness in my legs/feet and like tingly ness too. Sometimes it's like having electric shocks . I have it in arms and hands too. ( not as much ) I have like shaking/tremors sometimes too..Can anybody sympathies with me?  Please tell me I'm not going insane !! Anybody have these issues ?? Thanks a very irritated in pain mother of 3 rolleyes xx

0 likes, 15 replies

15 Replies

  • khi
    khi ilovemyfamily

    Posted

    Don't get fobbed off by GP's or Registrars, if you can insist on seeing Consultant and reiterate how you are a mum of 3 and desperately need something done asap and remember to say how it is affecting you mentally as well as physcially.  We have been lucky with our fab GP but if you aren't happy with the responses from your GP then try elsewhere or become insistent.
    • ilovemyfamily
      ilovemyfamily khi

      Posted

      Hi khi smile , thanks for reply my gp is actually good she refured me to a specialist and I actually got sent private for a scan to get seen quicker. My doctor has just got my mri results back and I'm being sent for physio and refured to pain management but the problem being is the doc originally thought my spine was pressing on a nerve and that was the reason for the legs and arm issues but mri said it's not the case. Just wondering if anybody else has these issues ?? Just can't see the light at the end of the tunnel sad xx
  • Sam2609
    Sam2609 ilovemyfamily

    Posted

    Hi, not sure if I can help but I can sympathise with your pain. I'm a 25 female and always been healthy. Two months ago started with terrible back ache then got numbness in my left leg bum and private area. This would change to pain or a tingly feeling. Trouble with having a wee too so wasn't pleasant. They thought it could be cauda equina so had mri but came back ok. Referred to physio. I've just started and he is brilliant. Looked at me as doctors said must be to do with muscles, but physio examined me and thinks it's spondylilosithethis. (Excuse my spelling) he pressed on my spine and it was agony right at the bottom. So waiting for xray to confirm, but he was a life saver. Your problems sound similar to mine. I'm unable to Bend or bath or dress myself, and I use a crutch to help me walk. Hope you start to feel better soon. 
  • Sam2609
    Sam2609 ilovemyfamily

    Posted

    I've looked it up as was sure doctors would have picked it up rather than physio, but that doesn't tend to show on an mri when lying down as that's what I had.
    • ilovemyfamily
      ilovemyfamily Sam2609

      Posted

      Hi squeek . Sorry to here ur similar to me. I have always had back pain but nothing like this. Mine started with num feet then traveled up my legs nd in my back I too was having issues to pee lol. My mri showed my issues up that's how I know what's wrong. Nd I think urs is different thing to mine as there is 3 similar spondylosis names but all different, but we just have the pretty same things going on.  Feel ur pain nothing worse than having issues with back no matter what u do its painful. I too struggle with some things especially when I'm having a bad day, my husband is very helpful though helping me get in the bath nd house work, nd undress when needed. I wish I had a stick to walk with as I'm having issues with my hips too ATM, taken my boy to school which is about 5minutes walk takes me 10 nd feel like I've ran a marathon so painful nd I'm extremely tiered. Told the doc 'if I was a dog I'd be put down. Lol. Hopefully we get sorted out soon eh. I'm waiting for my physio appointment . Take care hun xx
  • Sam2609
    Sam2609 ilovemyfamily

    Posted

    Yes different things, but I wouldn't wish is pain on anyone, however it's nice to speak to someone who understands what your going through. I would see if you could get a crutch. Some days I need it for support but I take it with me when I am around the house alone incase my leg gives in and I fall as I wouldn't be able to get up myself. I have been off work now for two months and gp said I'm unable to return and signing me off again. It just gets very frustrating not being able to do anything. I completely understand how you feel after your school trips. My gp is five mins walk takes a lot longer and the worst pain for a couple of hours when I get back. Hope you start to feel better soon Hun xxx
    • ilovemyfamily
      ilovemyfamily Sam2609

      Posted

      Oh yeah I didn't mean it in a funny way saying different hun. Nd yeah I wouldn't wish it on anyone either. And yeah defo good speaking to others that are seeing and understanding what ur going through. Hopefully someone comes up with a cure other than pills eh. Take care luv xxx
  • Sam2609
    Sam2609 ilovemyfamily

    Posted

    I didn't man it funny either lol. Thanks Hun yes me too hopefully you will get relief soon. Take care sweet xx
    • ilovemyfamily
      ilovemyfamily Sam2609

      Posted

      Lol i knew you didn't was just making sure you didn't think I was being rude lol tc xx
  • christine98681
    christine98681 ilovemyfamily

    Posted

    hi

     i too suffer with spondylosis i started when i was in my early teen's through lifting patients when i was nursing im now 62 but im sory to tell you there is no cure for this diseae except physo and pain killers i get terrible pins and needles in my hand pain all down my arms shoulders and lower back pain some days i can't get out of bed without the help of my husband i hurt so much its just like toothacke i went to the pain managment clinic they lent me a tens machine but that was a waste of time i take co-drydomol 2 every 4 hrs i have even had to lay with my arm's upon my pillow as you get older it deteriates i walk with an hunch back shoulder now it caused 5 verterbra's to go like a cusion thats gone flat one surgon told me he could give me an injection in my back but when i went for it doing they told me i couldn't have it done as it was too close to my siatic nerve i was devastated i got so hyped up for that it would have give me 6 month of ease but i now have learned to live with it.

    i feel sorry for all of you been so young like i was and not knowing what i was going to face when i got older i was under a neurologist for yrs trying me on different drugs too before the pain clinic its finally gone into my legs now so sorry to you all looks like medication for you same as me i would have thought this day an age they would have found a cure but to no avail .  

    i have had loads of different pain killers but none works really.

    take care to you all 

  • christine98681
    christine98681 ilovemyfamily

    Posted

    i also have to use a walker in the house and a wheel chair if i go out i fell last yr and broke ny hip this op didn't work so this yr had another one but i can't bend my knee and no you are not insane ilovemyfamily i feel awfull to have to give you the bad news but you ask your dr just how bad it will get you in yrs to come i also had 3 children .

    so so sorry for you i sometimes can't pick a pot up my hands tremble my feet also get so cold.

    • ilovemyfamily
      ilovemyfamily christine98681

      Posted

      Thanks very much luv for answering my question. I like honesty smile ev.en if it's bad news. It's been 3months of hell,yes I am better than I was about 3 weeks ago but, I am yet to have a minute free of pain, my hips are really sore now when I walk it causes pain! I have spoken to my doctor and asked if I could get crouches but she said she don't have them, 

      does anyone know who I need to speak to to get some kind of aids to help me??

      I am sorry to here you have this, I honestly wouldn't wish it one my worst enemy !

      s xx

    • ilovemyfamily
      ilovemyfamily christine98681

      Posted

      Oh and I was at the doctors last week she said I have degerated disc disease too !s 

      s xx

       

  • christine98681
    christine98681 ilovemyfamily

    Posted

    hi ilovemyfamily

    are you in the uk if so ring social services up they will come out and asses you to what aids you need this is were i got my walker and wheel chair from they also offered me a stair lift but my stairs are too narrow also they offered me a lift in my other room that would have gone straight into my bedroom but it would have took too much room so i sleep downstairs i got a bed settee my husband sets it up for me i am lucky i have a down stairs toilet you will be supprissed what help you can get i didn't even invole my dr i did it myself ring your local council they will put you through to them  there is also another way of getting help get your dr to refer you to what is called rapid responece they are good my daughter in law his under them for her son  also you should have been told about these services from your dr this is why you need help now with the aids this is why i aslo recommened you get a grabber of them.      

     hope this helps you luv keep us posted

    take care

    christine xx 

    • ilovemyfamily
      ilovemyfamily christine98681

      Posted

      Ok thanks luv. I have been sleeping downstairs for 3 months as I couldn't sleep in bed, however 2 nights ago I went back to my bed as I don't think it's fair on my husband as he won't sleep in bed unless I am lol. I also have a downstairs loo thank god haha. Will ring about tomorrow thanks luv take care s xx
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