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Just been diagnosed with TA Mornings are terrible can't seem started the day

Posted , 8 users are following.

Ardern
Ardern

Hi I am new to this group. I start with jaw pain no head ache esr rate 7. Then developed ocular migraine only when I took Tyenol. the jaw pain was so sever that I did care about the vision problem which only lasted 5 mins. About a week later I had a server head ache. when to emergency, blood still ok CT scan no problem one doctor said it could be Temporal Arteritis but see your GP. I saw him the next he may be but not likey. I was put on anti infammatory and 292 for the pain and a prescription for prednisone 50mg more blood work next still ok. 5 days later the anti infammatory and 292 where not do any thing for start with prednisone GP then up to 60mg. 9 days later I started to cut back 55mg. Mornings are terrible if I don't get out for a 30 min run or some thing else the day is wasted and can't sleep at night. By the way I had a bioposy down last week it came back positive thanks

0 likes, 4 replies

4 Replies

  • Nefret
    Nefret Ardern

    Posted

    Well, welcome to the website!  It seems to me that you may be reducing too quickly.  You really need to be sure that the inflammation has been whacked before you think about going down to a lower dose.

      As you know that you do have GCA/TA you should perhaps begin to take it a little easier as far as the exercise is concerned - putting additional stress on yourself when you have just been diagnosed with a serious condition isn't always the right thing to do, particularly when you know that your vision is under threat.

     

    • Ardern
      Ardern Nefret

      Posted

      once I was put on 60 mg all symtoms associated with TA where gone in 3 days 9 days later he dropped me down to 55mg. My problem now is the Pred. It seems that I have become the first person this year to have this disease in my area. My Ophthalmologist found out about my condintion yesterday and found time to give me a though eye examine. He said that there seems to no damage done to my eyes. It looks like it effected my jaw before going else where. The jaw muscule are still week I can bearly open my mouth wide enough to eat a sandwhich. As far as exercise goes I  am trying to hold it between 50 - 60 % of what a would normal would. It's getting cold up here and my window of opportunity is going fast. maybe your right Back off a little more, once I am sure that the inflammation is been brought down I can always push a little hard it seems that it is going to be a long winter
  • Guest
    Guest Ardern

    Posted

    I am GCA and caution you to find a rheumotoligist who will carefully monitor your steroid and your symptoms. If your pred is high enough, you should have little pain. After ten months I am only allowed ten minutes on my treadmill per day because I have reached the magic 7.5 mgs. I also had a positive biopsy. You will need constant medical care for a long time and GCA does change your life. It took me a long time to understand that. Welcome to this wonderful site... It was good to hear from another jaw sufferer!! Ann11195
    • Ardern
      Ardern Guest

      Posted

      It did take me long to show effects of pred. I am lucky here I ride a bike with my Doctor. I rode with him before I knew what he did. So he knows what I can do and he suggest getting some exercise.  The biggest problem I had was a dry month. I was dring 4 - 6 litres of water a day. I starting to change my diet and more fruit etc and found out that granny smith apples would kept the thirst away. the problem is that I still have to cut them in pieceto eat them I do not have the jaw strenght to eat a whole apple. 
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