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just been dignosed with fibromyalgia

Posted , 6 users are following.

sarapainfree
sarapainfree

hI I'm sara 31 just been dignosed with fibromyalgia and waiting on my pain program to start just wondered what other people's views issues etc are with this condition iv suffered for two years past from pillow to post had test after test x rays scans etc suffer badly with my legs specially in cold weather my arms are swollen on a daily basis shooting stabbing pains all over and very tired no matter how much sleep I have

3 likes, 7 replies

7 Replies

  • Milly19
    Milly19 sarapainfree

    Posted

    Hi,I'm 49 and to just been diagnoised,for the past two yrs things have been awful.but just couldn't put my finger on it.

    im tired like nothing ever felt,brain gets pickled and pains all over,it's my hands today,feel swollen but don't look it.tight and sore...not sure if that's part of fybromyalgia.

     

    • sarapainfree
      sarapainfree Milly19

      Posted

      thanks for your reply I think your symptoms r very likely to be apart of fibro as I get very swollen fingers too especially in the mornings I get very confused and also forget a lot of stuff and find my self doing silly things like putting my kettle in the fridge rolleyes feel I'm going mad sometimes but least we know we are not alone smile
  • sdison
    sdison sarapainfree

    Posted

    Hello sarapainfree,

         I have had Fibro for many years but was finally diagnosed nearly 10 + years ago I have undergone so many different treatments ranging from Nerve blocks in my neck to Methadone 10 mgs fom 1 a day up to 5 a day ( I was in pain management - terrible doctor got kicked out for telling him I had been sick over a holiday weekend and had taken some cough syrup with Codine in it that was prescribed to me by him like 2 months prior, he gave me a urinalysis and it showed up and I was told to leave **** Best thing that ever happened to me****) I was put on Neurotin (A/K/A Gabapentin) I worked great but It was scary to me cuz I missed 1 dose and that night I had restless leg syndrome which I would not wish on my worst enemy as I had never experienced it before, That medicine is just like Lyrica but cheaper and it would only take care of the burning sensations.  I also have hypothyriodism.  I am not currently taking the gabapentin or any pain medication as my doc will not prescribe any pain pills for fibro.  I should mention I aslo suffer from dibilitating migraines occasionaly.  I am not sure how long you have had it but if you could just get rid of the burning then you will feel a lot better.  If you are new to this condition let me go ahead and warn you.....people seem to think inorder for you to be in pain for real - people even doctors want to be able to see an injury or scar.  I was made to feel like I was just a "Drug Seeker" and that there was no way I could be in any real pain since I had no injuries to show for it.....There were times I thought to myself am I crazy? Is this something I have come up with in my mind, I finally found a specialist who diagnosed me and explained it to me which made me feel validated and sane!  I wish you the best of luck!  If you have any questions I will be glad to answer them the best I can just send me a message.

    Sincerely Yours;

    Stephanie D

    • sarapainfree
      sarapainfree sdison

      Posted

      thankyou for your reply sorry to hear u been suffering for all those years thanks for sharing your story in some ways I can relate too.iv been suffering for two years and been dignosed for 2 days and what a relief as I can finally say what is wrong with me when people ask and iknow I'm now not going crazy smile I too was on gapapentin but they made me sleep even more so doc took me off I then was on tramadol made me so I'll so that was stopped my next meds r duloxetine that I start next week fingers crossed I get some relief now the cold weather is kicking in I'm suffering more I'm sore to tuch I can barley walk with the stabbing pains in my legs my knees feel swollen and tight my muscles in my upper arms are swollen on a daily basis I now suffer with migraine that leave me in bed for 2 days no good when I have a job and 4children to deal with I'm glad I'm not alone it's nice to hear from other people in the same boat as me smile
  • Creola
    Creola sarapainfree

    Posted

    Hi, haven't been diagnosed but have been in pain for some time. I'm 63 and thought I was healthy, oh well. For the pain, burning and other symptoms I have been finding relief by using some homeopathic and essential oils. Biofreeze is a wonderful product, spray it on for instant relief. Also a few drops of vetiver and lavender oil in your favorite lotion is soothing.
  • Creola
    Creola sarapainfree

    Posted

    I forgot to add that for headaches try some peppermint oil on your temples, forehead and back of neck. At night use lavender instead. Aroma therapy seems to help as well. It's all new to me but it might help some of you. At least I hope it will. This is as bad or worse then my psuedogout pain. Good luck all.
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