Just been told a decision has been made on PIP but have no idea what it is!?

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So i rang DWP to say that my condition had deteriorated and i needed to let them know of the changes to my application.

They said they couldn't add it on because they've already decided but the decision wasn't viewable to them so i'd have to wait for it to arrive in the post..

So now i'm scared i'll have to appeal and go to a board and be judged.. Any advice? sad 

0 likes, 6 replies


6 Replies

  • Posted

    This is stupid.

    They say to you that you must let them know of any changes in your condition, so you let them know but that does not change anything!!

    Why is the decision not viewable to them? Something to do with their computer system breaking down?!!

    Yes you will have to wait for the letter. If you have to appeal you may be able to get someone from your local Welfare Rights Group to represent you.

    I had to do this once and I got my money back and a certificate to say I had DLA indefinitely. Whatever you do do not give up. You have only been honest with them.

    Take care and keep in touch

    Sarah xxx

  • Posted

    Well if you don't get you actually you the right to a mandatory reconsideration (MR), it basically means you can get another decision maker to look at the claim again, Because a Decision maker looks at the whole claim again you won't neccesariliy get the same amount of points as the you previously had, if you need to go through the MR you can supply infomation to the DWP which may help you get a few more points.

    Should you still not get awarded then you will have to apply to HMCTS for an appeal. You will need to print an application online called SSCS1A, when you fill it in, one of the questions will ask if you either want a paper appeal, or an oral appeal. After sending the appeal application off then you will have to wait about 2-4 months to get a date for the appeal if you decided to have an oral appeal, supposedly oral appeals are more successful as you can argue your disability should any questions get raised. At the appeal you will have a doctor, a disability "specialist" and a judge, they will ask questions and just like at a PIP assessment they will monitor you. After questionning, you will be sent out for about 5-20 minutes and upon being called back you will get told your points, what you gained, or what you lost.

    If you do get as far as the tribunal then make sure not to make the same mistake I did, and that was forgetting to mention good and bad days, I lost 2 points on the 'engaging with others face to face' descriptor because of that, the 3 panel members judged me on the day for that descriptor despite medical evidence and a letter from my support worker stating my problems with engaging with others.

    Good luck, I hope your successful.


  • Posted


    Once a decision has been made regarding your PIP Application Award, you have to wait until you have it in writing, no additional changes can be made during this period.

    It is stated the Guideline for PIP manual that you must enter ALL disorders, they cannot be added after the PIP Award Form is submitted.

    Changes in conditions, have to made after you receive your decision as been received in writing. Please note that if your WHOLE claim is looked again from your initial Award, this means you can lose or gain points.

    I have personally put in for an adjustment on the Care Component, I needed no "face-to-face" because my disorder is rare, and progressive and I should have made the claim before, I did. The DWP questioned my delay in asking for my claim to be looked at again, and to be honest when you have pains, spasms, cramps, etc for days on end, the last thing I even thought about was reapplying for the Award to be increased, I was told by the DWP I should have made the claim along time ago, and they could have backdated it 13 months.

    Some disorders do give you preferences over others, because it is obvious when the DWP ask for medical records, and see that you are under numerous consultants and medications and specialized injections done by neurologists every 8 - 10 weeks, that a 'face-to-face" would make no difference in the claim.

    I wish you well, but if you read the Guidelines you will see it does state, any changes must be notified to the DWP after the Assessment Award is given to you on paper, and not before.



  • Posted

    So i got my letter.

    Not entitled.

    So disappointed! I've also just been told i have hemiplegic migraines which present and act like a stroke- the effects are exactly as you would expect from a stroke in terms of speech, mobility and independence. I was told i had that in hospital, had a CT scan, an MRI scan and was sent home but no official diagnosis.. Not sure what to do!? sad

    I've rang DWP and said that it's changed and they have submitted for MR but who knows.. I scored 6, and only 6.

    Just feeling completely let down by the system if i'm honest.. Some days i can't even walk, others, i walk with a limp. It sucks. 

    Thanks for your help by the way everyone smile

    • Posted

      You can appeal.

      That is what I would do.

      Keep everything in writing do not rely on phone calls either from or to them, they will only deny everything.

      Good luck

      Take care and keep in touch

      Love Sarah xx

    • Posted

      I am sorry, but not surprised about your result, decision makers are specifically told to downplay the severity of people's conditions. The excuse I got for not getting points in 2 descriptors that I should of done was apparently because "the DWP felt my condition did not affect me severely enough", this is despite writing in the PIP2 form + medical evidence to prove that my condition affects my life severely everyday. Although very unlikely, I hope your reconsideration is passed on to a competent decision maker (very, very rare in the DWP) and that your claim is successful.



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