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just been told i have cfs and i feel alone

Posted , 5 users are following.

jade43146
jade43146

I am always so exhausted and in pain that my life has gone from being able to do things to having to rest all the time after doing hardly anything. I wanted to see if by talking to anyone would help as i feel very alone.

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  • JennyWren8
    JennyWren8 jade43146

    Posted

    You're not alone! Joining social networks can help.  Even if you do not have the energy to join in, I find it a good way to keep in touch, though the grief of realising what we have lost can be intense at times when we see our well friends taking their good health for granted, I've found being grateful for the little things really helped me and re-discovering and carving out 'me' time into something more positive.  Such as deep resting - before I used to really loathe having to rest so much, now I've taken up meditation to make the most of it and really appreciate giving my body the healing rest it needs to get well (I hardly ever used to rest when I was well and it's a good time to ponder the good things in life.)  I've also started more creative pursuits I never had time for before such as writing and arty stuff and watching classic films and comedies and trying to carve out some fun positive stuff that is good for the soul.  A famous quote that helps me when I feel really restricted and down is "focus on what you can do, not what you can't' and "this too shall pass" .  I had to everntually give up my dream career in the film industry and went through a very severe phase, which is currently seems to be passing and my ME is much more moderate these days - when you get that first good patch after the storm, it just feels so great - celebrate every small victory over this dasterdly illness!!  I'm still pretty much housebound, but I am trying to pace, eat really healthily and as I am able to sit up for short periods and my brain seems to be coming back online, I've decided to write a screenplay.  So although I am not able to go back to the job I love in film, I have found a way of bringing something that means a lot to me and working out a way to make it more ME friendly by breaking it down into more doable, fun chunks with no pressure and trying to enjoy the experience as much as possible.  So try and find a way to bring some fun, joy and creativity back into your life, even if it's just little bits and pieces.  This has reallly helped me focus on the positive stuff.  May our recoveries continue!  smile
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