Just been told I have Polymyalgia Rheumatica.
Posted , 17 users are following.
What suggetions do you have for Polymyalgia rheumatica. Should I be exercising?
1 like, 35 replies
Posted , 17 users are following.
What suggetions do you have for Polymyalgia rheumatica. Should I be exercising?
1 like, 35 replies
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tavidu judy50581
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judy50581 tavidu
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pat73046 tavidu
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erika59785 pat73046
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I do get tired more easily than I used to in the past .....before PMR.
You have lots more to do than I have to.....resting in between is important. It is so good to have this contact with fellow sufferers.... and I still learn from everybody. Hugs, Erika
pat38625 judy50581
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judy50581 pat38625
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pat38625 judy50581
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judy50581 pat38625
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david14272 judy50581
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judy50581 david14272
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MaggiGrace judy50581
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I too was recently diagnosed with PMR in March. Fortunately I realized something was "really wrong" and I was able to get referred to a rheumatologist within a week.
Some background - I am 59 1/2. Very healthy and active, but somewhat sedentary at work. This PMR hit me like a train after 5 years of very non-stop high stress related to both work and family matters.
I I had blood work taken and my ESR was only 37 and the rest of my blood work normal. The doc wanted to start me on a high dose of prednisone and I refused due to a bad experience in my 20's where I was given pred for severe allergies and became horribly depressed. (I'm a very happy person by nature).
Howvever on March 3 I became unbelievably ill with pain and begged rheumy to give me anything that would help. She gave me a long-lasting steroid injection in both my left shoulder and right knee. There was enough systemic delivery to my system that all my severe shoulder/hip/knee pain went 90% away within 48 hours.
As the injections have begun wearing off I agreed to try 5MG oral pred daily. It was not "quite enough" to manage my pain/stiffness so I am now at 6MG daily, along with Tylenol as needed. I usually take 1000MG twice daily. This seems to be holding me in a good place for now.
I realize that I am extremely blessed to be managing on such a low dose, and I have no idea when the long-last injections completely wear off if I will be able to stay at this level. I do know that gentle exercise has been very important to my well being. Most days I am driving 10 minutes to the local gym at 05:30 am, I walk one hour or 3 miles on the treadmill. Then come home, shower, and go to work at a very stressful job. By about 3:00 PM I begin to "fade" but I do that with or without exercise. I do allow myself to skip a day here and there, but for the most part, I feel better on the days when I have had that gentle exercise than on the days that I have not.
I know everyone is different so you will need to find what works best for you. When this first hit me, I could barely walk or lift my arms, so exercise was out of the question.
I I hope you find relief soon. This is a horrible disease, and the remedy (pred) for some of us is nearly as horrid. I shudder to think of myself back on a high dose of the stuff.
Prayers and peace to you all that wellness comes soon.
ingo MaggiGrace
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erika59785 ingo
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ingo erika59785
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judy50581 MaggiGrace
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erika59785 ingo
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I made my mistakes, but now I have more knowledge about PMR which can be so painful. Prednisone does help, but we need to deal with the side effects which appear with longer intake of the steroids. It takes time to find the right dose to make you comfortable. All the best to you!
joey2 MaggiGrace
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