just been told i have pompholyx after suffering for yrs

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hi

i am theresa 45 yrs old, i have suffered with blisters on my feet and hands for about 15 yrs now, i have a major flare up at mo, my big toe looks like a combat zone, and my hands are so sore and swolen, it feels like my nails are going to pop off, i am glad i have looked this site up and was just wondering what you have all tryed and what has worked for you...i have not had a good nights sleep now for 10 days due to the iching, my dr has given me tablets for the icth and creams for my hands and feet.

thanks

theresa

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  • Posted

    Hi Theresa,

    I was diagnosed with chronic Pompholyx about a 6 months ago, following a string of 'misdiagnosises' from my GP. I have always had issues with my hands, but about 3 years ago it spread to my feet as well. It covers the soles of my feet and spreads over all my toes, the palms of my hands and my index and middle fingers, especially around my nails, and is unsightly, sore and very itchy. I often wake myself up several times a night due to itching, and have to change my socks several times a day due to the weeping sores on my feet. I was prescribed a steroid cream to apply to my hands and feet but I seem to become immune to the cream after about 5 days. After very recently suffering from a massive flare up (I couldnt walk very well or bend my fingers due to the pain of the skin cracking, as well the the itching!), I invested in some emu oil as I had heard that it works.

    It is by far the best thing I have ever used, and over the years I have tried everything!! I would recommend it to anyone and it is pretty easy to get hold of over the inernet. I noticed a difference within 24 hours after using it on my hands and feet twice/three times a day!

    It is relatively cheap and has loads of great properties and really works!

    I hope this helps and that you find something which works for you as I know how frustrating this can be!

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  • Posted

    Hi. I have had pomphollyx for several years now, each flare up starts off mild, and gets worse and worse over the months, the blisters become bigger and more itchy, then more painful when they crack. I've had three serious flare ups that last for at least a year each time, then it goes away for a year or two, then comes back. I've been to several doctors about this, including a dermatologist. They can't help at all. I've used every strength steroid cream available, as well as protopic, and all the moisturisers and lotions and emulsifiers and barrier creams, nothing seems to help at all. The first time I had it , it was much worse on my feet than my hands, the second time it was worse on my hands (so much so that I had to take time off work and eventually leave my job because touching anything was so painful). I have it again now, and it's much worse on my feet, especially my right foot, so it's actually difficult and painful to walk on. The only thing I find that helps is soaking a towel in cold water, wringing it out and wrapping it around my foot- this calms down the itching, but obviously just for a while, so I can do this at home in the evenings, but when I'm at work all day there's nothing I can do for it.

    I've just read that some people find that apple cider vinegar relieves it, so I'm going to try that.

    If anyone has any other advice or anything I haven't tried yet, please let me know.

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  • Posted

    Hi, i live in Holland and for the past few months i have what believe is Pompholyx. After using 10 tubes of different creams i got prednison for two weeks and it dissapeared completely. Now, a few day later they are back sad

    I will try horsemilk for now and also go to a NAET therapist. I will let you know what results i have...

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  • Posted

    American sufferer for 4years now. Only on my second major flare up but finally on the downside I hope. Seems to go away for years then will come back worse, and spread further.soaking in apple cider vinegar religiously... 4times a day or more, 10- 25 minutes to dry and relieve blistering.. Cold compress during activitiesfor relief. Benedryl to relieve itching. And apply emu oil at night(after a good vinegar soak,and frozen handtowel compress)most important is relieving the itch so it doesn't become aggravated... Try as hard as possible to not worry and be self conscious as stress can be a MAJOR trigger. You can't help it, its genetic. And it will eventually Subside on its own. So pay no mind to people grossed out by your hands!
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  • Posted

    I also suffer for years, I tried steroid cremes, which made it worse over a long term use. I still dont know what causes it and i am desperate... i cant help, only thing i can say is that you are not alone.

    at the moment i am trying diet (no wheet, no glutten, no sweets) so fingers crossed

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