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Just can't seem to cope

Posted , 14 users are following.

emma93780
emma93780

I've posted in here a few times and met some wonderful people with great words of advice however I'm still really suffering!

I don't know what to do or where to go anymore as I've had quite a few tests some that have come back normal and some that have not, I've had ct scans which are normal but never had an Mri, I have been having dizziness for about 6 months now with not very much let up or break, I have tried numerous things to try and improve it and nothing works.

I'm getting myself so worked up about it as I have 2 young children to look after and need there mum to be well, I have been to the doctors to many times to count and they don't know what is wrong with me I'm sure they think it's not as bad as it is but honestly it is, it's getting to the point where I can hardly stand up for long periods of time and I am having to walk holding on to walls etc, I even feel dizzy when I'm sitting down, yesterday I felt as if the blood was draining from my head to my feet and went all lightheaded luckily I was sat down at the time as I think I may have fallen otherwise.

I don't know where else to turn all I know is I just want to sit and cry it's that bad. Xx

1 like, 41 replies

41 Replies

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  • emma93780
    emma93780

    Posted

    Thank you for all your lovely comments & words of encouragement, I went to the doctor yesterday to see if he could refer me to a person that specialises in the inner ear and he said he didn't know who that would be he said ent obviously deal with the ears & neurologist with the brain so not sure which one it would be? I said to him ent were useless the both times I've been and I'm still waiting and probably will be for some months yet for a neuro app! My thing is I just don't know if it's my ears or brain that's the issue and I keep stressing myself out thinking it's my brain for some reason.

    I have counselling in Feb but it's one on one not cbt so not sure if this will help?!

    I appreciate what people say about wisdom teeth but it's not them I've had 2 removed the last 2 years and all is well with my teeth no issues at all.

    I never know if the tablets are making things worse or better, if it's them causing or not helping my symptoms etc.

    The last 2 days I've had a cracking headache and a pressure feeling in my head and yes it could be a normal stress headache but because of the dizziness I fear the worse all the time.

    I really sympathise with everyone on this site that is going through the same, I have already met one lovely lady who I talk to who is going through similar which helps as we understand how each other feels when the rest of our family doesn't it's a very difficult time right now xxx

    • gillian76726
      gillian76726 emma93780

      Posted

      Did you tell him NEURO OTOlOGIST?  I cannot belive he doesnt know.  You Are wasting time waiting for the neurologist Emma.  can you. It make a ohine appointment on Monday  and cancel the referral for the neuologist and tell him the correct specialist?? He probably hasnt even done the  referral,yet aanyway!!

      Meanwhile,,this weekend why dont you halve the dose of pills you are taking, and if you feel,slightly better you will know if they are making it worse, whilst not doing any harm.  When i told the specialist(Via email,i felt worse he told me to,stop,taking them!).

      with regard to,the headache, what I do for relief either when imget that,mr a,pressure feeling as if my brain wants to,come out of mynhead, imhave a blue gel,cold pack (I recommend everyone should,have one!), but for now a pack,f,frozen peas, wrapped in a scarf and around your neck,side of head,wherever.  You can order them online, not expensive. Oblong  shape (not the ones shaped,like an eye mask), works really well. Try It, you'll,see and get that specialist changed!!

    • emma93780
      emma93780 gillian76726

      Posted

      He said to try and find out some more details and call him next week to let him know, looking online I see that it's an ent doctor with a lot more training, I'm gonna print some stuff out and take it into the doctors to give to him so he can see, it might be that they are only at specific hospitals but he said he didn't know what one was lol!!!

      The referral for Neuro was put in a few weeks ago, I have seen when I went to ent on the door of another doctor it said head and neck doctor so I am guessing that might be the person who I need to see. Just don't understand why I have to find these details out when he's the doctor x

    • gillian76726
      gillian76726 emma93780

      Posted

      Sadlyna lot,f,gps are,ignorant of this stuff.  If its not included in their training they dont lnow!!  What area do you,live,in?
    • gillian76726
      gillian76726 emma93780

      Posted

      P.s no,its  not head a neck,doctor you need, not for now anyway. 
    • emma93780
      emma93780 gillian76726

      Posted

      I live in Vale of Glamorgan, South Wales I have found on the nhs site a list of doctors but not sure which one it would be one says 'Otology, Vertigo' etc would it be this one it says that's his speciality x
    • gillian76726
      gillian76726 emma93780

      Posted

      I've had a long look amd cannot find a neuro,one easilynon s.wales .  you kight want to also use the term, Otolaryngology but Otology and vertigo may be okay. I just know that the neiro,part is important as its all,connected   messages to,the brain from the ears and eyes too that are important.  youmay have  to,go outside of S.Wales, but i know that is,possible.
    • jan1958
      jan1958 emma93780

      Posted

      Hi Emma, I am so sorry you got no where with your GP yesterday, its rediculous and so frustrating for you.

      I agree neuro is a waste of time, my GP refered me, I did go to the oppointment, but the Dr looked at me as if to say what are you doing here!

      I had a private consultation with Dr Surenthrian at the Spire Hospital in RoyalTonbridge Wells Kent and then went on to see him and his team in Medway Maritime Hospital in Gillingham Kent x

    • gillian76726
      gillian76726 jan1958

      Posted

      I beliieve dr Suentrian is good, but emma is in wales, so how would she get a referral?
    • jan1958
      jan1958 gillian76726

      Posted

      Dr Surenthran sees people from all over the country and abroad, the GP needs to make a referal to Dr Surenthrian at the ballance centre in Medway Martime Hospital in Gillingham. I usually have an overnight stay the night before and after the appts, I can recommend a nice B and B which is near the hospital. X
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