Just diagnosed....

Posted , 5 users are following.

Just got the dreaded phone call of being positive for HSV-1 in the genitals... because my outbreak was on my vagina, does that mean that it will stay there? Or could I still have an outbreak on my face? I'm kind of in a panic... I don't want anyone to ever touch me again.. can I even have a normal sex life? I've been with my boyfriend for 2years... how did I just get this?

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  • Posted

    Since he doesn't have sores he gonna have to get a blood test. It's good you have ea other it's difficult to go thru this alone 

    • Posted

      Yeah he knows he'll have to get tested.. I don't really "have" him though... I wish I had him for support but he's slipped away from me...

    • Posted

      Well I hope you guys can work things out. Hsv1 apparently isn't as bad or frequent as hsv even tho it's genital so hopefully that will help you guys get close again if he has it or not. Ppl don't seem to be as judgy about  hsv1. Hope things work out for you guys!!

  • Posted

    Well on a brighter note you always have ppl to talk to here that know what your going thru and can relate
    • Posted

      That is definitely a brighter side. This forum has definitely helped me through my entire outbreak while I was panicking and felt so alone. There are some really amazing people on here that I would love to grab a cup of coffee with 😝

  • Posted

    Hi. I wasn't diagnosed with having-1 on the genitals like you almost two years ago. (October will be 2 years) I still remember that dreaded phone call and the feelings that I had. I honestly still have them. I was suicidal when I found out. I couldn't really find anything on the internet about my type specific. Nowadays I actually find a lot more. I got it from a guy that either didn't know he had it or lied. I think he lied because when I asked if he was clean he hesitated for a brief second and then said no even with that I took the hesitation as he was shocked I was so forward and ignored that gut feeling I had. Well I really shouldn't have. I was talking to this new guy when I found out. He doesn't have anything. I told him after a month of dating. Well actually my ex told him before I even met him but that's another story. I confirmed it a month after we started dating because he asked me if what my ex said was true. I told him it was. He took t as I lied to him and wasn't going to tell him. I didn't know how to tell him and I was still trying to figure out answers to my questions let alone his. So I prettt much told him what I felt about myself. Almost two years later we are still talking. He said we are in a relationship just don't have the boyfriend/girlfriend label. He is still trying but still can't have sex with me and makes remarks that what I have found out he doesn't believe me. Anyway the point is it isn't the end of the world. It is better to have this type than the other ones. I only had my first initial outbreak. I do notice I am more sensitive in that area especially that time of the month. We shed less than the other ones. I don't know how true this is but I found that when we shed with this type it is usually within the first 3 days of our menstrul cycle. The information I continued to read made sense because most everyone's posts stated they had their outbreak around the time of their period. I haven't told anyone in my family. The only person I have told was the person I got it from. My ex boyfriend and the guy I'm "seeing". I'm hoping we can get passed it. A lot f people say if they can't accept it it is their loss you will find someone who will. That may be true but I put myself in their shoes. It is a big deal if you don't have it. If I knew the guy i ft it from had it I would have never done anything with him so that's why I am so patient with this guy and I see he is trying. So maybe the guy you are with or working on things with is just trying to process it just like you are. If he doesn't have it he could be worrying he does etc. so I think communication is a big thing especially at this time between the both of you. The guy I'm with is embarrassed to talk about it. When we do it creeps him out and I get defensive and we end up arguing. We both are working on it. I also think that you should get a different doctor. The one I see is an OBGYN and he basically confirmed the information that I learned just from this site.  So this site has made me feel alittle better. Some people say they forget they have itsometimes. I wish I could forget. I think about it everyday. I do feel better than I did a year ago so their is progress. I don't post or comment much but I do read people's posts all of the time.  I should ask more questions but get turned off because I have come across a few rude people and so I don't really say much. 

    I do believe that you can have sex again. When I did have it for the first time after being diagnosed it wasn't quite the same. Me and the guy I'm with have tried like 9 times during the par two years but he gets stuck in his mind and he has to stop. He has even tried laying on me with both of us naked and he didn't get hard. I see his frustration because he really wants to but he gets too much in his head and I can't figure out how to get him out of it yet. I know I babble I'm sorry I just have been through a lot these past two years so I like to share everything so that way you can get an idea of where I'm coming from etc. I know probably too much info but I had someone do this too and actually helped me deal with it because all the info made me realize I have a lot of the same feelings as others and it's not just me. 

    I think as far as the guy goes if you see him trying and you really want it to work then keep trying. Just don't lose yourself while trying.  Make sure to deal with the emotions. I didn't because I didn't and still really don't have anyone to talk to in person so I think that is why I get so defensive when I talk to him about it. I also get very emotional some days just thinking about it and the life I thought I would have. I mean I could still have it but not the way I hoped. I really really care and love this guy so I keep trying also but I think at some point I have to accept that he can never accept me with this no matter our feelings for each other. 

    Anyway I'm really trying to be uplifting I'm just trying to basically let you know that I understand the feelings that you are having. See get a different doctor idk if the one you have is an OBGYN or not but that is what I would look for as they probably have more info than other primary doctors. Def keep reading the info on here as the majority of it I have read has been correct. But also make sure to do your own research. I found more information by typing in the specific type out rather than hsv-1 because otherwise the information isn't the same.  Again I'm sorry for blabbing. I do that and have hard times explaining things that's why I do that but hopefully you got my point anyway and I helped. 

    • Posted

      Thank you so much for sharing your story and taking the time to reassure me that everything will be ok.

      I, too, have thought about suicide if it wasn't for the 3.5yr old that I'm responsible for. I'm sorry you felt that way too, and I am glad you are on the mends to acceptance and dealing with it. We are all worthy of love.

      I hope things work out with you and this guy and he can look past this COMMON virus. Thank you for letting me know in 2 yrs you've only had your initial break out. I hope I'll be the same. Are you taking supplements? Any medications? Lifestyle change?

      You are strong. You are brave. You are beautiful. You are worthy. These are mantras that I keep saying to myself since I was diagnosed. The more you say it, the more you believe it. Keep your chin up! As I will keep mine up. It's been nothing but a roller coaster of emotions. One day I'm depressed, the next day I'm on top of the world. 

      I love this guy with every fragment of my being and I will forgive him if he cannot be with me because of this... although I do believe he gave it to me (he's going to get tested). I am still worthy of love.

    • Posted

      Can you and your guy friend maybe try him leaving on his boxers and using a condom so he maybe feels he is not quite in contact with your vagina??  I know it sounds strange but I'm trying to think out side the box. Hopefully he understands you would never have sex with him wit an ob and your shedding and outbreaks are less frequent than typical genital herpes. Good Luck!!

    • Posted

      Thank you for the advice! We did that when he had Molluscum Contagiosum and we had no idea how he got it. So definitely doesn't sound strange! Do you use any OTC meds or medication in general?

    • Posted

      Natural things never anti virals since the guy I was dating also had it. I used vitamin E oil for the tingle, I just started itching this year and these bumps now just a few coconut oil or tea tree oil, I order lemon balm oil from Amazon and some vitamins that contain vitamin E, Zinc, olive leaf, and lysine, also from Amazon. Been drinking acv for the last 2 maybe 3 weeks and garlic cloves not as consistent with that tho I'm afraid of ppl thinking I stink lol but I did notice my tingle didn't last long when I was eating the cloves consistently 

    • Posted

      Thanks for all of the pointers! I've been taking l-lysine everyday as well as Echinacea and vitamin c every day. I should probably do the ACV as well. This "tingle"... ill for sure understand it when it comes? I don't remember a tingle with my first outbreak. I just don't want to miss symptoms. 

    • Posted

      That's a good idea. I will see if he wants to try that. I know his biggest thing is he doesn't want to use a condom everytime. Like if we want to have sex but don't have any type of thing. He gets nervous about everything. He doesn't believe I don't have it on my mouth even tho I've tested negative. He thinks it's in the blood. I'm willing to try anything at this point because as much as I love him I can't just keep waiting I guess. Not fair to either one of us. I know our relationship isn't about that but I feel that it is a part of any relationship 

    • Posted

      It for sure Is. If he can't get comfortable remember 1 in 6 of us have hsv so you can def bump into someone with it. No hang ups or issues about ob because they have them too. 

    • Posted

      Hi AnxietyGirl,

      We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.

      If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.

      Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.

      If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.

      Kindest regards

      Patient

    • Posted

      No I do not take any daily medicine. My doctor told me that it really wasn't needed since I probably won't have any more outbreaks and if I do they will be few and far between. Also the medicine after being on it for awhile and then coming off could bring on an outbreak. I'm not one for medicines to begin with so I will get it if I need it. 

      I haven't really changed anything about my lifestyle except I try to drink more water instead of soda. I have food allergies so there are a lot of restrictions and I don't drink so there really wasn't anything significant that needed to be changed. 

      I still have my good and bad days.  The guy I was talking about finally said we are in a relationship just without the boyfriend/girlfriend label. Idk exactly what that means. Or how it's different but I'll take it. I feel it's a step in the right direction anyway. We aren't seeing other people or anything so i guess it's acceptable lol. He said he doesn't want the label which I know has to do with my diagnoses because when we first met and was talking we were talking about being boyfriend/girlfriend. It wasn't until he found out that that changed and he's never said we were in a relationship before so I'm hopeful. He reassures me that one day he will be able to get it out of his head that his mind is the one that prevents him from going further. 

      I care about this man more than I cared about my kids dad which I was with for 13 years. This man is my fairytale come true. Everything that I have wanted in a man is what he is. He is as close to perfect as I will ever find. It's crazy I have never felt this way and it's scary lol. I sometimes think  it this virus as karma because I finally found what I've always dreamed about and then something comes along and messes with it. 

      When I was having the suicidal thoughts the only thing that stopped me was my two kids. I still have my low low days but don't consider that anymore. I have always suffered from depression so this was hard. I hope things work out with you and your man. Def keep you chin up I will do the same

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