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Just diagnosed

Posted , 3 users are following.

marie2929
marie2929

Hi! I was just diagnosed with autoimune hepatatis a few days ago at 37 years old. I was given 40mg of Prednisone daily and I just feel lost with lots of doubts. Can I live the rest of my life with this condition? Please share your experiences.

Thanks

1 like, 3 replies

3 Replies

  • liv70988
    liv70988 marie2929

    Posted

    Hey Marie!

    So sorry to hear about your condition! Hoping you feel better soon! I've been on 50mg of prednisone for 2 weeks now and will finish in 6, and if side effects are a concern, I can honestly say I have experienced very minimal to none. They say it's meant to make you eat like crazy, but I've actually lost 5 kgs since starting it! This could be because of my diet and exercise schedule though. Water retention is also a big one with prednisone, but grab yourself a diuretic from the chemist and keep your salt intake to a minimum and you should be safe from moon face. I have suffered a little insomnia, but half a sleeping pill usually helps with that. Prednisone so far has been very managable for me, it's all about a positive mindset and healthy lifestyle! I hope you're on the mend!

    Liv xx

    • marie2929
      marie2929 liv70988

      Posted

      Hi!

      Thanks for your answer. For how long have you been diagnosed?

      Also they started me on 40mg daily and everything I read says 60 mg when starting treatment.

  • cjb106
    cjb106 marie2929

    Posted

    You have posted in a general forum about steroids rather than one about AIH. I can't comment on the condition but do look up the British Liver Trust which gives advice about treatment.

    I have a different autoimmune condition which also requires me to take Prednosolone from time to time. It's a powerful but necessary drug which does its job although not without side effects.

    It can be very daunting when the doctors tell you you have a chronic disease but the word to focus on is management - and from what I have read, AIH can be managed.

    Good luck.

     

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