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I have been diagnosed last week with cfs/me although I am still sceptical about the diagnosis. Many of my symptoms are ms and th see neuro just dismissed the ones that didn't fit cfs as everyday twitches and thinks I need to see a specialist for urinary incontinence and had no comment about being unable to pass stools on many occasions, does anyone else with cfs have these problems? I have twitches in my thumbs, side of hands legs, face stomache to name a few. On top of this my husband doesn't want to discuss it and said after 2 days I should stop researching and not let it take over our lives.i think ehst he really wants is for me to forget it so he doesn't have to listen to it and it will go away or at least it doesn't 'bore' him as he put it. I feel this us a real deal breaker as I am so upset and angry about the illness as well as the way it makes me feel useless, and he makes me feel unimportant.
He even suggested I run a 10k marathon next year and lose weight as he thinks that it making me feel more tired. I feel like running away and throwing in the towel and want to cry with frustration and hurt. Can anyone offer advice as I haven't got the energy to fight my corner and feel dismissed.
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