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Just diagnosed and feeling quite desperate need help!

Posted , 7 users are following.

sandy67
sandy67

Hi, I have believed it was RA for many years and have been fobbed off time and time again until i finally got a rheumatologist that did proper tests. The radiographer confirmed RA after doing scans but still need to go back to rheumatologist for confirmation. I have been struggling more than ever this last year or two but now i feel so desperate with the pain i just don't want to carry on! Now my shoulders hurt so much I can't hold anything, my hands are getting extremely cold and sore, my feet have been this way for a while now, my elbows ache throughout the night. My legs get random aches that bring me to tears but my hips are the worst, I just cant cope with the pain anymore. My children and partner are aware of how i am feeling but I still have to drag myself to the kitchen for a drink and end up making them one too. I am still expected to do the cooking, hunched over and shuffling round even though it cripples my hands chopping and stirring and my back feels like its broken.  I am struggling so much - at best I manage tasks with lots of pain, at worst tasks are impossible. I want to run away but cant abandon everyone, but I just don't know how to cope with this dreadful pain. I am only on run of the mill pain relief which does little, if anything. Any advice would be very much appreciated. Thank you.

0 likes, 23 replies

23 Replies

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  • Jan999
    Jan999 sandy67

    Posted

    Hi sandy. Oromorph is good for some medical conditions but RA is more specialised and only specific drugs will help. Good luck today. Thinking about you.
    • sandy67
      sandy67 Jan999

      Posted

      Thank you Matron. I saw my gp. He has given me some anti inflammatory gel for now as i cant take anti inflammatory pills due to previous stomach ulcer and is writing to the rheumatologist to see if she can either see me sooner or prescribe something soon. Because my temperature is always high and I get dreadful head sweats where it is actually pouring down my face he wants to do more blood tests to see if its menopause or due to the inflammation and I have had cystitis too vut my urine was normal so I have to send another one off for lab tests. Today was a good day
    • sandy67
      sandy67

      Posted

      Sent before I had finished when I tried to go back to correct vut to but! 

      Yes, today was a good day, I was able to walk my dog with not too much pain, despite having just a few hours interrupted sleep this morning so that has brightened my mood. Its raining heavily here now so we got that in just in time! She is shattered, it was only her second walk off the lead and she loved it! She is only 16 weeks old and just adorable :-)

    • Jan999
      Jan999 sandy67

      Posted

      Hello sandy. Well done! I think you did really well getting basically what you wanted or should I say needed. I agree it's been a good day and I hope you feel better achieving this. Some of your symptoms could be menopausal and that can be helped as well. Take care and keep in touch.
    • sandy67
      sandy67 Jan999

      Posted

      Thank you, I will and I wish you luck too x
  • phillygurl215
    phillygurl215 sandy67

    Posted

    Hello Sandy,

    I hope everything works out for you. I defintely know where you are coming from i can feel your pain, I feel as though my fiance thinks my pain is nothing. He has chronic back pain and he thinks his pain is worse than mine because it's "just arthritis" I dont think he understands just how bad it can get. Lucky for you though because you are actually on some sort of meds, I am not taking anything for my RA just some pain meds here and there. Unfortunately i dont have insurance so I just have to push through my pain. Sometimes I dont want to get out of bed in the morning my body is just so stiff and my hips have been hurting me more and more. At first the pain didnt last so long now its all day long. I hope you get the relief you deserve and some help around the house. Your partner is going to have to fend for himself sometimes you can't make yourself feel bad for something that is out of your control. 

    • sandy67
      sandy67 phillygurl215

      Posted

      Thank you phillygurl. Your fiance needs to read up on RA! Its nothing like "just arthritis". Blimey I have pains from places I didn't know existed and I am the same, some days i just cant get out of bed and struggle just to get to the loo. I am really going to try to push myself though when I can as it feels great to get out and feel almost normal again. The problem with my partner is that when he has to fend for himself, he buys expensive rubbish from the corner shop to microwave and we cant afford it. I keep trying to tell him this is why we cant afford the bills but he keeps 'forgetting'. Its a shame you cannot get some pain relief! But mine isnt actually doing anything, except maybe when i take liquid morphine.

      i do hope you manage somehow to get some relief soon. Take care x

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