just diagnosed miss diagnosed for 15yr

Posted , 7 users are following.

My last doctor explained my constant leg pain as getting old and my lower back pain as thrush and then my psoriasismoved to new area and new doctor sent me for tests within 2weeks and going on methotrexate in weeks time my last doctor made ne feel like a hypochondriacand my left knee is apparently no good anyone else had simular experience sad

1 like, 17 replies

17 Replies

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  • Posted

    Sorry for bad grammar (me) and spelling (evil predictive)
  • Posted

    Methotrexate is NOT for psoriasis it was found by patients on artritus and psoriasis it helped BOTH. Side effects of patients on meths  not good. SORRY for miss spelling getting old.
    • Posted

      Same here. Hope you do well on finding meds that really help you feel better. A good rhumey will start out with MTX then move up the ladder of meds. There are many bio's that also help slow down PsA. 

      Every one with this disease reacts differently to meds . There is a list of them on this site do a search in the search Box will help find more info. confused

      Gotta play by the forum rules we cannot name any drugs or recommend any sites. However there is all the info you need right here on this forum. This forum has all that is needed on meds for PsA.  

      Take care.

  • Posted

    Poor you. It is awful when you are made to feel like that when you know something is genuinely wrong. I have psoriatic arthritis and it all started with swelling in my ankle and yes, I was made to feel like I was wasting their time. In fact my ankle is now deformed it has been left so long.

    If the doctor has prescribed you methotrexate (MTX) then there is a reason he has done that. Not everybody suffers bad side effects. Give it a try ... A good 4 to 6 months will show good effects if you tolerate it well. Best of luck 😊😊

    • Posted

      I agree with Lisa i am on MTX i have had no side effects and it seems to be working well atm 
  • Posted

    Sorry you have had such a bad experience I - I hope you get things settled soon - it took some time for my diagnosis - but having decided I had psoritic arthritis the decision was made not to put me on any meds except pain killers - I have however had to go back to my GP as currenltly having bad flare up.   I have been re-referred by GP as my ankles are now affected and I am worried about long term effects - too late I fear for my knees - but hopefully not for my hands or feet.  The consultant had given  me her secretary's number so I didnt need to go back to my GP but could be seen without going back through the system - sadly when I called the person on the other end of the phone would not listen and I had to go back to my gp - still no word of when I will be seen.  Not keen to go on meds but maybe left with no choice - anyone had a "good" expeience with metatrexate? 
    • Posted

      Everyone is different with treatments with MYX. The only way is to try it to see if it works for you for psoriasis. It's given in small doses. 

      Good luck...

  • Posted

    I would be suspicious of any doctor that would describe leg pain as getting old without testing for circulation or other problems. Leg pain can be very painful and lead to serious problems if left untreated.

    i don't mean to scare you however I have no way of knowing how much leg pain you experience. 

    Also  MTX taken with folic acid helps ps skin & keeps skin clear for many patients. There are many new drugs on the market for psoriasis. Check on this forum it has all the information under wellbeing and the directory button above or do a search for meds in the search box above. 

    Thrush as back pain????? Thrush is a yeast infection either in the vagina or mouth. I wonder if you mean shingles in the back...causing pain. 

    Ask for for xrays for your back pain could be disc issues. 

    Finally I would fire your current doctor and find a better doc and ask for a derm who specializes in psoriasis, and a referral to a Rhumey for back pain it may be arthritis once xrays have been taken.There are many reasons for the different pain that you describe. Finding a better doctor may help with a better diagnosis and prognosis. 

    Sorry about out the incident you experienced. I went thru many docs that dos missed my pain until I found a good match.

    Hang in there, never give up. Our health is our most precious commodity!

  • Posted

    Hi folks,

    glad i picked up this conversa this evening. Supppa, change your doc, dreadful advice, actually it's not even advice. Mtx works for lots of people, both PsA + psoriasis. Sadly I had a hepatic reaction to it 2 years ago, then allergic reaction to Sulphasalazine so ended up on Leflunomide and Humira. I was on Enbrel for a time but it made my psori go crazy. So what I'm trying to say is that we are all different and our reactions vary so much. It is important to getting referred to a rheumatologist. GPs cannot provide the level of expertise - not a criticism, it's just not possible for them to be experts in everything.

    I'm having a dreadful time at present but as has already been said, I worry my GP thinks I'm a nuisance/hypochondriac! I had severe pneumonia in April (the downside of taking immunosuppressive drugs) and I still feel lousy, one infection after another. I restarted the Humira in July but not Leflunomide yet (rheumys orders!). last week my chest has gone all wheezy again, am totally fatigued, I should call my GP but for reasons mentioned I feel that they think I'm a pathetic nuisance. Also, I cannot cope with the pain and swelling in my hands, I'm just completely fed up with chronic pain. Does it ever ease up? I take strong painkillers but I just can't getting on top of it. I'm sorry I've hijacked this thread, I'm very low, lonely and frightened at present. BTW, I was diagnosed with PsA in 2011 and had psori for over 20 years. Does life gets better? Or do I just need to accept my lot and count the blessings I have? And I do have many, really.

    • Posted

      Thanks for the reply I may have confused people with my original post , ov seen a rheumy last week who told me I should've been seen by a specialist years ago and my right knee is bad. Think my previous doctor had me as a hypo , hopefully these mess work hope your feeling better soon , it's not fun like
    • Posted

      Hi Sheila I'm so sorry you are feeling so poorly just now you have been having a rotten time. All I can say is keep using this forum you know you will have the support and good wishes of everyone here at least. Take care of yourself
    • Posted

      Thank sylvester for your kind wishes. It's horrid to wake day after day, stiff as a board and in pain. It's all the easy to slip into self pity, which I hate. This forum has helped me so much so im grateful to all who post. I'm going to call my GP about this wheezing, it's probably a mild chest infection but having experienced pneumonia, I don't want a repeat. Even though I've now had the pneumonia vaccine. NB to all MAKE SURE YOU GET THIS VACCINE from your GP.
  • Posted

    Oh Supppa, that's terribly sad for you. I suppose one just has to accept we can't change the past. I am delighted that you have a rheumatologist now and are receiving expert care. Sadly, it seems that persons who short loudest getting treatment. But I find it hard to do that - I just used to accept what docs told me. Though I have learned to be more assertive. But only after being misdiagnosed, like you. Take care.

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