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Just diagnosed.... no help from doctors, wtf?!!!

Posted , 7 users are following.

tara60627
tara60627

Hi my name is Tara I'm 43 and have always been very healthy. I had some small spots on the top of my feet that I ignored for about a year. Then in Aug I woke up one day to find myself covered in small red bumps. Maybe about 100 different spots! Legs, feet, and elbows. I was experiencing a lot of stress at the time. Over the last year my dad died, my boyfriend broke up with me, I got an eviction notice on my rental, and then the day before the GA appeared my mom told me she is selling the family house which I didn't take well. I cried all day, felt like I was on the verge of getting a cold and thought I might wake up the next day sick. Instead I woke up with GA all over.

I didn't know what it was at the time. Thought I might have bed bugs. Spent months going crazy cleaning my apartment, it was a nightmare. Finally saw a dermatologist who said it looked like a contact dermatitis. Then after 2 months with no change i went back to the dermatologist and had a biopsy, positive for GA.

The dermatologist said there's no cure and there's no reason to see her since there's nothing she can do. That was in November. I spent the next 2 months in a severe depression... can't stop crying, this is very usual for me to be this sad even with all thats happened. My b12 levels are on the low side and I asked my Dr for b12 shots and he refused. I think he thinks I'm a hypochondriac. I'm now seeing a naturalpath Dr who thinks I have an underlying parasite infection, I live in Hawaii. So in a week I'm going to start medication to kill the parasites. Praying this madness ends soon... maybe once I get rid of the parasites the GA will get better. ? Hoping

I'm now having hair loss too. And it's bad. I used to be pretty. Now every time i look at myself i cry. Was a professional athlete, I'm gluten free and dairy free, very health conscious. Now completely depressed. Sorry for the long post.... I don't really have anyone to talk to about this. At least no one that understands.

0 likes, 10 replies

10 Replies

  • TraceyD
    TraceyD tara60627

    Posted

    Hi Tara! I'm 48 and type 1 diabetic for 27 years. My GA started like yours, a couple of weird spots on my feet. After about 4-5 months a noticed the red bumps all over the backs of my thighs.  Tried all kinds of creams, scrubs...you name it.  I didn't address it with my Dr. until it started creeping around to the top of my thighs and up my sides. He sent me to a dermatologist which confirmed it was GA (which I had never heard of before that).  I have had monthly steroid (Kenalog) shots for the last 4 months and it is slowly fading but not gone yet.  I would suggest a different dermotologist.  I've also read that light therapy can be helpful.  I hope this helps you.  Oh, and I have to think that the stress you are going through is playing a huge part too.  I hope things get better for you.

  • sally54400
    sally54400 tara60627

    Posted

    My deepest sympathy. Please get it biopsied before you start taking meds. I'm suprised the naturopath wouldn't suggest that first. Find another naturopath too.

  • ChefSissy
    ChefSissy tara60627

    Posted

    I understand. No one has been able to help me either. My GA starts small and then grows into a huge ring. It's embarrassing. It looks like ring worm. I have it on my ankles, all around my lower legs, all over my forearms and now the tops of my hands which I can't hide. If something works for you let us all know. rolleyes

  • TraceyD
    TraceyD tara60627

    Posted

    I've started taking MSM daily.  Very curious to see if this helps. I had read on another post here that someone had very good results with it.

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