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Just diagnosed, still not sure if it's right diagnosis.

Posted , 3 users are following.

danielle34132
danielle34132

I am 32, not that age matters, and have been through several recent test. About 6 months ago my knuckels started hurting. Dr said I must have sparined them with the type of manual work I do. A few months down the road, my knuckles are swollen and my hand / wrist hurts.

So we're do a CBC, RA, Lupus, and most other AI test, all negative.

I get referred to a carpal tunnel/ hand surgeon. He says" yes I think you have carpal tunnel, iam referring you to a Neurologist who will do a few test to see wich nerve is affected".

Neurologist does the shock test, and pokes my arm from shoulder to thumb with a needle. Then says not 1 but both nerves are affected.

Ok so I have carpal tunnel? I wasn't satisfied with that answer. Then my Vyvanse quit working.. Then I could sleep for 2 days straight (I usually never sleep) then my toes go numb.

I wanted to cry, I consider myself a strong minded person, but I had to admit I was depressed. All this within 6 months.

I have my appointment with the RA in 2 days. Is it worth getting a third opinion?

I see most of you talking about wide spread pain, iam not in pain, my most debilitating syptom is fatigue. And with 3 kids age 12, 7, 5 sleeping all day doesn't cut it.

If anyone can relate , please share your experience. Anyone not in pain with FMS?

0 likes, 3 replies

3 Replies

  • sadie1980
    sadie1980 danielle34132

    Posted

    Hi Hun I'm 35 with 3 children also 15 11 and 1 and wish I could sleep all day but I can't lol I'll copy and paste my symptoms

    symptoms

    Stiffness

    Tired all time even after sleep

    Pain if get poked

    Hate loud noise

    Puff eyes

    A stone put on

    Confused can't get words out/ can't count

    Headache

    Numb legs

    Rib pain

    Bk pain shoulder neck

    Spine stiff and hurts

    Hands worst

    Cramp

    Wrist and ankles

    Jaw

    Clicking and grinding joints

    Hands shaking

    Twitching in body / right eye twitch for days

    Bone pain everywhere

    Loose voice when I've done to much and run down and can't move

    Shooting pain threw bum into bk of leg

    Ibs hard then very loose

    No appetite

    Migraines

    Hot flushes

    Sweating

    Headaches

    Low iron all the time

    Cold hands and feet

    Bones cracking

    Mine was horrendous pain where I felt I could just end my life it was that bad ! Have u had bloods done for deficiencys ?

    • danielle34132
      danielle34132 sadie1980

      Posted

      Yes ma'am, just low iron. Always been that way. I also am sensitive to bright light. Find myself always wearing sunglasses. Hands and feet cold also. ( you reminded me of some)

      I know something is going on, just not sure if it's FM.

  • trisha87499
    trisha87499 danielle34132

    Posted

    Awwww poor you, I know I found it very difficult to deal and accept my diagnose of Fabriomyalgia amongst others, but I promise you will get through this, you have good days and bad days. We are all here for support, anytime so sound of to us because you'll find that it's mainly people with the same illnesses that can get what and how your feeling. Good luck
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