Just diagnosed today.....
Posted , 7 users are following.
Hi all,
yes just diagnosed today, since early this year I started losing strength, feeling and had pain in both arms as if they were made of lead, I eventually went to Dr who did blood tests and I had high RF levels and vit d deficiency, put me on pain killers and anti inflammatory and arranged a rheumatologist appointment. More of the same but said didn't think it was RA as pain was all in my muscles. Waited 3 months then they wrote to Dr who told me 2 weeks ago I had RA and that when I went (today) to see consultant that they would sort Disease modifying meds . Obviously I didn't want to have RA but at last I felt I had an explanation to my exhaustion and agonising constant pain, I actually had been looking forward to the appointment all over christmas! I went today consultant said to me "have you always been a big girl" I was devastated I have put weight on as I have been so poorly all year I haven't been able to do anything, I mean anything other than manage to get to work and come home exhausted. I was so upset, so upset I haven't even been able to tell my partner who actually came with me. I already take antidepressants and suffer from depression and post traumatic stress disorder . Consultant decided that the side effects of disease modifying wasn't worth risking prescribing as she wasnt 100% sure it was RA as my finger joints didn't hurt or were not affected, but the severe pain would then be down to fibromyalgia, gave me a leaflet said she would prescribe tramadol and amitriptaline and took more bloods, discharged me and said she would recall me if bloods proved otherwise. I now feel even worse than I did ( if that's possible) as now on top of all this unbearable pain I feel so low, even more self concious with no self confidence at all. I keep crying and don't know what to do. I haven't been able to eat all day as I feel so bad about myself. If anyone has any advice I would appreciate it. Xx
4 likes, 12 replies
sabina65293 tootsi
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tootsi sabina65293
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jill128 tootsi
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Have severe chest infection which has set up massive flare, pain off the wall in hips and legs, gives me chance to come on here xxx
lots of gentle hugs xxxx
tootsi jill128
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kath2 tootsi
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christine26761 tootsi
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christine26761 tootsi
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charley123 tootsi
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i was too recently diagnosed with Fibro, im on amytriptylene to help me sleep, ive found that pain killrs do not help but a TENS machine has worked wonders for me, i would highly recommend one of those, i still feel very low about my condition but if i had any advice for that it would be to surround yourself with people that care, understand and make you happy. Just dont worry about what they said about your weight its not your fault as you have been ill all year, to be honest they should be more considerate about your situation and no say things like that to you. BIG hugs, just ask if you want to know anything else.
Charley xx
Sandra1701 tootsi
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Soft hugs Sandra xx
tootsi Sandra1701
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happy new year and thank you for your reply. Bless you, you have had a tough time. Yes it is so difficult being in constant pain it seems only people here understand how debilitating it is. Well done for going to join a Aqua class, I am spending my spare time reading about FM and seeing what help is available. The consultant stressed to me the importance of a stress free life, rest and relaxation, I am a Sales and Marketing manager and my job is really stressful so I think I am going to have to reconsider. I could really do with a complete break I have worked extremely hard with extremely difficult personal life for 25 years. I now have a wonderful caring partner and have now been struck with almost complete disablement but I obviously need an income so that in its self is stressful. I hope the exercise provides some relief and does not aggregate. Thank you for your kind words and yes bandages would help !
Hugs and best wishes Tracey
Sandra1701 tootsi
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Soft hugs
Sandra
christine26761 Sandra1701
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