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I've just been diagnosed with AS and am after some advice about what has and hasn't worked for others. I've had injections of triacinolone into both sacroiliac joints, heads of femur and another into my lower back. I'm keen to avoid the TNF-alpha injections if I can.
My history is of long term inflammatory bowel that resulted in blood levels of salmonella and shigella. My consultant thinks this is the trigger - and I've been on ciprofloxacillin for 4 weeks and due to continue for a further 3. I have avoided gluten for 7 years following 12 years of bleeding and 2 bowel fistula repairs prior to that.
I had to have a disc replacement in my cervical spine for prolapse into my spinal cord 2 years ago affecting my brachial nerve, because the surgeon said my neck was too straight?
I'm also taking Aquadetrim for osteomalcia (low vitamin d of 14) and borderline calcium levels.
I'm exhausted and have been needing to sleep at 5 pm in order to stay awake till bedtime.
I've had TCM acupuncture before for my two successful pregnancies (I had recurrent miscarriages) - has anyone had any success with this?
What about elimination diets? From what I've read, virtually all the foodgroups are out :-(
Any advice will be very welcome!!!
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