Just diagnosed with brochiectasis
Posted , 7 users are following.
I have been diagnosed with this disease today, after coughing for 1 1/2 years with first CAT scan a year ago negative, this week’s CAT scan to rule on nodules caught it. Did it take that long for any of you to get diagnosed? Any tips? I’m on Symbicort which helps, but still cough . Does the cough ever go away? I am having a hernia repair Monday that was caused by coughing😡.
1 like, 4 replies
pam81116 karen1365
Posted
Take care . Pam.xx
Operalyn karen1365
Posted
From what I have heard bronchiectasis is hard to diagnose. It is sometimes just in one place in your lungs but can be scattered about. Plus it's not the number one thing that comes to mind because it was in decline for years. It was more common when I was diagnosed in the 50s because more children had measles and whooping cough in those days which can be a trigger. Even so I was 5 with a collapsed lung before it was definitely diagnosed and the doctors believed I had had it since I was 13 months old. Now you have a diagnosis I hope you get good advice on how to cope with it day to day.
mary08543 karen1365
Posted
elizabeth49611 karen1365
Posted
Karen,
I agree with Pam. You need to be proactive in order to keep Bx under control.
Use your flutter valve (if you don't have one, get one from you specialist). I have a percussion vest as well as a nebulizer.
Have your specialist send you for respiratory therapy. Do what cardio exercises you can do (helps open up the lungs).
Take your meds. If you are still having issues, talk to you specialist.
If you are having problems getting the mucus up, try posturing (having your head and chest lower than your waist) while coughing. I get on my knees and elbows so that gravity helps bring up the mucus.
Stay away from people who are sick. Eat healthy and try to cut back on certain foods, such as dairy, that may increase your mucus production.
You will receive a lot of good tips from this forum, Beth