Just diagnosed with endometriosis. No symptoms. Confused
Posted , 6 users are following.
Had anyone been diagnosed with endometriosis but didn't feel the pain and symptoms that are often read about online????
I was diagnosed with endometriosis a few months ago and just recently had surgery to get a cyst removed from an ovary. However I never expletives any of the pain/symptons prior to the surgery. Doc recommended lupron depot/lupranetta. Not too sure I want to take it in Seeing that I feel 100% fine.
The only time I've been having slight pains in my one ovary is just this week, but I think it's because I had intercourse last night and my period is always set to come this week. Normal? Or should it not be hurting 4 weeks after surgery (esp since it never hurt before). Please help!!
0 likes, 11 replies
aitarg35939 ann79438
Posted
Hi Ann
Wow, no, I've not heard of such a thing. But how were you diagnosed - laparoscopy is the only way to be sure.
As to the ovary pain, someone else has to answer as it's been way too long for me to recall. I assume it's okay with doc for you to be having sex now? You may be embarking on a road of many procedures, after each of which it's imperative to obey sex restrictions. And just fyi, no offense intended, those post-procedure restrictions apply to the "universal" portal as well as the feminine one ;-)
I hope for your sake that some medico spoke out of turn & that this one cyst will be the end of your problems. If you do have endo, it never takes a rest unless we force it into one, either by surgery or through meds such as those recommended to you.
Good luck.
kristenb1414 ann79438
Posted
Hey Ann,
I was diagnosed with endo in Sept during a completely unrelated surgery. I have absolutely no symptoms and never have. My doctor is an endo specialist and said she doesn't like to use Lupron unless absolutely necessary (if a cyst is present, but even then she uses less extreme options first) or before IVF.
Hope this helps!
sara29789 ann79438
Posted
Im 26 yrs old, married and I'm diagnosed with endometriosis too and I've no pain during periods. I've cysts on both ovaries measuring 3.4cm and 1.7cm. My doc recommended getting them removed laparoscopically and to immediately conceive. I've vaginismus on top of that too
sharon1919 ann79438
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aitarg35939 sharon1919
Posted
Sharon, it is unfortunately most likely that you had endo all along. It isn't like a cold, get one/get over it and maybe you don't get another for a year or 2. It is tremendously hard to find every single speck except perhaps during autopsy. Some day soon I hope that someone develops a better way of locating all of it & removing it. Apparently the method of removal matters a lot.
Sounds like BCP helped you for a year. Endo is a fierce opponent. Sometimes it waits years to pop back up, sometimes it comes back more quickly. It is all extremely unfair, but please talk to your doctor.
sharon1919 aitarg35939
Posted
that's true, i am also afraid that i may have endo on other parts of the body but my dr can only scan the reproductive organs area. what i am finding difficult to understand now is how the cyst could grow so fast in just a matter of 5 months because i just had a scan 5 months ago and it was clear and now i have a 5cm by 3cm cyst lingering on my ovary.
aitarg35939 sharon1919
Posted
Sadly, Sharon, there's no rhyme, reason or logic to the speed of endo. When I had my laparoscopy, I was classed as having moderate endo. I fought hard to get everything removed. Same doc did my total hysterectomy 5 WEEKS later and could not believe that in that time frame things had gotten so much worse that I was severe. She reclassed the surgery from elective to emergency. There was no clue, as I had felt better in those 5 wks -- probably just from knowing what was wrong . Then it slowed down and took almost 3 decades to come back. It just isn't very predictable.
sharon1919 aitarg35939
Posted
aitarg35939 sharon1919
Posted
BCP, coils and other kinds of hormonal treatments are the only thing I know of that have any chance of slowing endo, tho I am neither a doctor nor a researcher. If one pill doesn't work, hound the gyno for another. As to diet & exercise, it's best to start now on good habits. May or may not do anything for one's endo, but ,,, so much harder to change down the road. Someone on Facebook asked in a closed faith group what we would tell our younger selves if we could, 2 words. One of mine was 'eat less.' Here I am with white hair, unable now to exercise, trying to lose weight!
You didn't cause your endo. I am curious why it is showing up so early these days. It could be partly that more girls get their periods at a younger age. Probably several factors working together but, again, not under the control of the girls.
sharon1919 ann79438
Posted
michelle55189 ann79438
Posted