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Just diagnosed with Fibromyalgia

Posted , 6 users are following.

linda73285
linda73285

Hi everyone. I have just been told I have acute Fibromyalgia after suffering with terrible pain for over a year.  I've been prescribed 25mg of amitriptyline which seems to really help.  I can't believe I let it go on for so long before I went to the doctor.  I am working full time and some days I just felt so awful I wondered how I would get through the day but still struggled in to work.  The amitriptyline seems to help with my pain, sleep and over all feelings of exhaustion.  I'm glad I've found somewhere to chat to others as it seems like no one really understands the pain of Fibromyalgia unless they also suffer from it themselves.  Glad to be part of the forum.

1 like, 15 replies

15 Replies

  • jeanne81532
    jeanne81532 linda73285

    Posted

    Hi Linda, welcome to the forum. Yes you are right, only those of us with the pain know what it's really like. Glad you are finding the Amitriptyline helpful. Sometimes it takes months or years for people to find a treatment that both suits them, and helps as well. And some unlucky people NEVER find anything that helps, or are unable to tolerate them. Hope you continue to benefit from it. Have a good day. 😄 xx
    • linda73285
      linda73285 jeanne81532

      Posted

      Thank you for your reply. It's early days for me on the amitriptyline, but so far so good.  You have a good (and pain free) day too. xx
  • Lucyred
    Lucyred linda73285

    Posted

    I have had it for 5 years now, well almost. I know how much the pain can beat you up. The working situation, I finally had to quit and only had 2 more years to retire. It so takes your life away , well at least wants to and we just have to fight. Even with all the meds I can't get any kind of real relief from pain. FRUSTRATING!! You can talks to me any time I understand how you feel. Take care!!
    • linda73285
      linda73285 Lucyred

      Posted

      Thank you for your reply. Sorry to hear you've been suffering for so long. I have made a few changes at work like working from home 2 days a week and taking regular breaks away from my desk but some days are still a real struggle.  The amitriptyline seems to have helped the pain a lot though which I'm really pleased about.  Yes it so frustrating though, especially when it starts to have an impact on your everyday life.  It's good to talk to people that understand!  
    • Lucyred
      Lucyred linda73285

      Posted

      That's awesome you can work from home. Breaks were very unusual and I did try that drug but had side effects. That's how I began then mine got worse. Prayers for you!!
  • woodbon
    woodbon linda73285

    Posted

    I'm glad you find the amatriptylne works well for you.  I take 40mg at night and that helps me to sleep.  I also take tramadol in the day and that does help.  Its the best for me and I've had quite a few attempts with different drugs.  I've had it about 5 yrs, its hard to say when it started, but I count from when the pain really hit me and I had time off work! 
    • linda73285
      linda73285 woodbon

      Posted

      It's very early days for me on amitriptyline, but the relief I'm getting already makes me feel like it's a wonder drug!  My doctor told me that you only really feel the true benefits though after taking it for 4-6 weeks.
  • kyroar
    kyroar linda73285

    Posted

    Gosh I can't believe how much you sound like me!...i went to Drs yesterday with two issues, very high levels of anxiety/depression and Fibro, Dr was really nice and sympathetic and booked me in to see if i defo have fibro as i have all the symptoms..i just wanted the anxiety sortin first of all but at least im goin in the right direction rather the goin crazy like I thought i was!...i also work full time and always feel tired and in pain, lacking sleep, irritable, and everything else that goes with it.
    • linda73285
      linda73285 kyroar

      Posted

      Yes we do sound extremely similar! I thought my symptoms were to do with my age and hormones but it's easy to blame everything on that! Did your doctor give you any medication?
  • kyroar
    kyroar linda73285

    Posted

    she gave me propanalol for anxiety but im goin back Wed for more in depth chat about fibro...its taken me a while to pluck up the courage to go back after i was labelled a medical mystery 10mth ago which upset me and put me off going back. its all really got me down, i walk like im drunk, i ave slurred and slower speech at times, forgetfulness, all the aches and pains to a point im taking painkillers like their goon out of fashion, even tryin to get hold of really strong ones to help me sleep...its horrible..x
    • linda73285
      linda73285 kyroar

      Posted

      Pain killers didn't really help me, even strong ones. Hopefuy they will find some medication that suits you and helps with the pain and anxiety. I know how you feel believe me. I thought I was going mad at one stage and the pain really dragged me down. Fingers crossed for you that you get it under control soon.
  • christine26761
    christine26761 linda73285

    Posted

    Welcome Linda...glad your a part of us...I'm on Amitritilyne too have been for years, same dosage too...I take mine every night, get a good sleep, the next day I can cope with any pain...takes years for some of us to be diagnosed, so well done you...hope your neds  works as well for you too..I've never ever had mine increased either, so that's really good....the exhaustion is a bit of a problem though at times....but trying to stay positive really works for me..glass half full an all....remember 'stress free' is the key..be blessed Linda..:-) xxxxx
    • linda73285
      linda73285 christine26761

      Posted

      Hi Christine. Thank you for your reply. Funny you should mention stress as I've had a lots to cope with recently and that when the pains started to get unbareable. I feel much better now I know what the problem is. I'm glad you have it under control too. x
    • christine26761
      christine26761 linda73285

      Posted

      Hiya Linda..it's almost a celebration when you get the diagnoses..just to be able to say..hey..this is real..when it's acknowledged the we can start to relieve some of the stress..especially ' is this all real..and is it only me..' Once diagnosed your on your way.....stay positive...be blessed..:-) xxx
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