Just Diagnosed With HSV2

Posted , 12 users are following.

Hello all, I’ve been following all these posts on here like crazy since I’ve suspected I had the virus. I prayed and prayed I wouldn’t be one of the unlucky ones who’d have it, but unfortunately I was. I got my blood results back last week. My first outbreak wasn’t absolutely horrible. I didn’t even notice until I was washing in the shower.  I’ve been so scared to even post, that makes all of this seem even more real but I just need some support. I’m only 20 years old, and going to be a nursing student but this has just been such a setback. I wish there was a cure. The nerve pain sucks more than the actual outbreak. I hate feeling my leg go numb or shooting pain in my thighs. I’ve only had 4 partners in my 20 years, and all of them I loved deeply and trusted. It’s so unfair but I know things could be way worse. But I’m stressed enough with nursing school and this has made me feel like giving up. I’ve  already had a tendency for suicide and depression before but stopped taking antidepressants. I don’t think I’m too worried about the medicine because most people take millions of medications everyday for other conditions that are not curable. 

I’ve been telling myself it’s just a skin condition. Everyone I’ve told has been extremely supportive except for one of my ex boyfriends, he’s been a huge piece of trash. I’d be more happy if I caught it from one of the exes I still cared about and who didn’t treat me like crap. I know lots of people freak out because they’re scared of finding someone who’d  want to be with them, and although that’s a big concern of mine too I’m not worried about that anytime soon. I think I feel more guilt from looking at my grandmother and my father. I haven’t told them yet. I told one friend and she has been very unsupportive. I can say that this disease has taught me that life’s too short to be so unhappy but I still feel like ending it all and like what’s the point anymore. But I know in my heart I don’t want to do that. This is why I wanted to be a nurse. To help anybody in these situations and let them know theirs still hope. Plus, those babies I was planning on working with might need me and I can’t waste it all on a stupid skin condition. 

The worst thing is, I think I may have got it when I was raped. That would hurt me the most. I’m so scared of lashing out anybody but I know this is my fault. I just found out and I think I need to take it easier on myself. And let myself know it’s okay to cry, it’s okay to be depressed, and it’s okay to feel like the world is ending. But I know it’s not, no matter how much it feels like it is. I believe every single day we get closer and closer to a cure. It’s ridiculous how the cdc says people knowing their status may not change them being careful about sex. I definitely will because I don’t ever want anyone I love to experience this. I wish I was never one of those people who got an outbreak but I guess I’m happy I got myself tested because I don’t want it to spread to others who I love. I want to tell my grandma because she’s the most important person in my life but I think I need to learn to be comfortable in my own skin first. I’ve been so depressed, the house is a mess, and I need to get on my ass and get myself together. My ex who tested negative mentioned that I’m still a beautiful girl and that if I find someone mature enough, they shouldn’t even care because they’d love me just that much. I’m just hoping that’s true. I’m also scared of how many outbreaks I’ll get. That’s the scariest part. 

Any thoughts and prayers and advice would mean the world to me. 

2 likes, 25 replies

25 Replies

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  • Posted

    Girl! I’ve got so much to say i wish i had your number. Worst part for me is the burning. It’s a constant reminder and yes the nerve pain.  That said, i have cried, and cried but I’ve chosen to just live. Do all the best and fun things and force myself to laugh. My doctor put me on suppressive therapy yesterday and I’m kind of glad because I’m scared. I’m scared about a lot of the unknown so i study up almost every night. I don’t have anyone to talk to about this but i also know stress is a trigger so above all things I’m just trying to be calm. I pray your first break out is your last. ❤️
    • Posted

      I know exactly how you feel! And doctors are so uninformed it’s crazy. Mine just gave me a pat on the back and said oh it’s probably nothing come back and we’ll test in a month. It’s really not a big deal to them so I just decided today it’s not gonna be a big deal to me. It’s definitely not fair at all. I want to take suppressive therapy but I want to see how my body does with this virus and how bad the outbreaks will be first. I’m trying to be healthier. I just found out a few days ago but I can tell you it does get better. Today, for the first time since I suspected I was positive, I didn’t think about it constantly every second. I could finally play blasting music in my car and sing out loud to it. It’s the little things that count! I’d definitely give you my number. We need to be there for each other, it’s tough and no one deserves to go through it alone!
  • Posted

    It’s ok to cry & be depressed. It’s ok to feel like the world is ending. As long as you do it & then pull yourself back together & realize ITS NOT! I think we all go through the emotions when we’re first diagnosed, & I think the depression is worse during an outbreak. I got diagnosed almost a month ago & haven’t told many people yet, I told a few people for support & I told one guy who was interested in dating me, so far everyone has been surprisingly supportive. I haven’t told much family, just my mother because I knew she would support me no matter what. If you want I can give you the info for an online support group I found a few weeks ago, it’s been very helpful for me to have people to talk to & ask questions to 

    • Posted

      How did the guy who was interested in you react? That’s the last thing on my mind right now but it’s interesting to know and I know I’ll need to be brave enough for that in the future. All of my partners were very supportive and made me realize that if someone is mature and understanding enough that they won’t have a problem. That made me feel better. You’re so lucky! I want to tell my grandmother since my own mother isn’t really in my life but she’s like 86 and I don’t want her to freak out and stress over this. It’s hard. I’ve told a few close friends and so far there’s only one person I wish I hadn’t told. This really shows you who your real friends are and forces you to love youself so I guess there are blessings to this “gift.” It’s a struggle but I’m learning and coping!
    • Posted

      He was surprisingly ok with it. I actually just told another last night & he was also still interested. It’s difficult for me rn to think much about dating because I just found out yesterday my boyfriend (now ex) the one who gave me this was cheating (awesome boyfriend right?!) So I’m still going through the emotions of this being a newer diagnosis & now the thought of having to date. I’m terrified to tell people but it’s nice that everyone Iv told has been supportive. I understand u not telling ur grandmother. I haven’t told my father for the same reason 🤦🏻??? Just give it some time ! U deal with it first & hobetly if u need her for support I’m sure she will be supportive ! I’m sure she loves u no matter what 

    • Posted

      I’m so sorry to hear about the cheating boyfriend, thank goodness he’s an ex now girl. I’m glad mine is now too! It’s not fair at all but in the end we grow so much from it I feel. That’s great, all the guys I’ve told have been very supportive and still see me as the same great person I was before. I’m scared to even think about telling my dad lol. I just don’t want to hurt them or have them stressed thinking this disease is going to kill me, because it’s definitely not! Proud of you for being so strong though and I wish nothing but the best of luck to you smile it seems like you’re handling things so good. I feel like keeping the fact I have it to myself just makes me feel worse. I know there are people who would distance themselves and stigmatize the disease even more but that’s when you know you have to let them go I guess or at least try to give them a better understanding. One of my friends was so scared she was gonna have it since she drunk after me but she was still so supportive lol. I’m like no girl it doesn’t work like that! I hope you can come to peace with all of those emotions cause I know how it feels. But I’m feeling much better now even though it’s still hard and I’m sure you will too smile 
  • Posted

    What you feel is normal. All of us had these feelings but really you will laugh at these days later on. Many people have cold sores in mouth. It s the same but you have down there. Yes that simple!

    No need to exagerrate it. I disagree with you that you start telling many people about it. This is not the right thing. One supportive friend is extremely enough. 

    Stop feeling guilty. People with herpes are so many. Take it easy. First learn how to deal with outbreaks. Second learn how to prevent outbreaks. Third tell your partner.  Fourth go for protected sex. Thats all. If you do all that so you will have happy life with rare outbreaks and protected partner. Message me any time for any question. 

    Good luck

    • Posted

      Thanks so much! It really seems like the most horrible thing in the world at first but there are so many people out here who don’t even know they have it. I’m thankful to not have had a horrible outbreak. I’m not sure if I want to do suppressive therapy and I’m hoping I won’t get many outbreaks. I’m just trying to avoid stress and listen to my body right now and I am going to start eating extremely healthy and working out pretty soon. I heard that if you do all these things, it kinda goes into “remission” even though it’s truly never gone. Thank you!
  • Posted

    Hey! You and I are just the same age, I also are studying to become a nurse and we both are in the same situation with newly being diagnosed with hsv2. Then I can kind of see it from my own point of view, and hsv is really not a big deal even though I also feel like it is right now.  But I guess it takes time emotionally to recover from the diagnosis! And I would really love to talk to you since I feel like a lot of what you are writing is my same experiences and we have a lot in common. Feel free to message me. The reason I am writing this is so you can know that someone your age and who are studying the same are also «suffering» from this. Much love to you

    • Posted

      I can’t even express how thankful I am to not be the only one going through this. Of course, I hate it for anyone but it helps to know you’re not alone through this. It’s so scary at first but I’m taking it one day at a time and now I can finally eat food and talk to people which was something I couldn’t do when I first found out. I really hated myself for it, but it’s not like we asked for it. Sometimes we just trust and love the wrong people, and that’s what makes us human and the beauty in all of it. We’re not perfect. And we shouldn’t beat ourselves up about it. I would love to message you more, I’m glad I can relate so much to you! I’m here anytime you want to talk!
  • Posted

    I created an account just to tell you was in the same situation. I’m 23 and found out last year when I was 22 and nursing school was just about to start. I was devastated at first. I cried so much but I started suppression therapy and had two outbreaks including my initial one and the second was very mild. Ive had it 11 months I’m now a second year nursing student. It doesn’t control your life or define who you are! I didn’t tell anyone except my current partner. I wouldnt keep telling people if I were you. At first it seems so big and important but it’s no problem at all. Just a skin condition that no one can even see! People will judge you if you tell them but they won’t  even know if you don’t tell them. It affects no one but you. 
    • Posted

      Does your current partner have it? I also feel like going forward no one will want me if they don’t have it to. I dread even having these conversations😩

    • Posted

      No he doesn’t have it. We’ve been having unprotected sex this whole year. My diagnosis didn’t change anything between us. Because I love him and wanted him to know the truth I told him but he wouldn’t even know the difference if I didn’t. I told him the facts (I’m sure you’ve done research) and how the chances of me passing it to him is like 1-2% on daily acyclovir. My heart was racing but he accepted me and said he’d take the chance. I wouldn’t expect that from everyone.  It does not define you.  Do not make it your opener. 
    • Posted

      Hello

      Your story is inspiring

      I m a man with herpes since april. 

      Pls tell me what suppressive therapy you take. 

      You mean you do unprotected sex and your partner still ok?

    • Posted

      Im curious are you always on acyclovir? like all year, every day? How do you avoid passing it to him? I hear some ppl still have unprotected sex when they OB free. But when they feel the OB coming they take their med. Do you think this is a safe method?
    • Posted

      I got medical attention with my first OB I went to the heath department and they gave me acyclovir 400mg 2-3x per day then I went to my PCP and she’s told me if I take 1 400mg acyclovir for a year I may never have an Ob again. And yes! No condoms whoever gave this to us was having an active OB and I haven’t had one in a while so no spreading to my current partner 
    • Posted

      I do think that Is a safe method. I mean it works for us. Yes every day for the past 11 months. August will make it a year for me and then I can quit but I may stay on it or have some stashed in case I feel something. You can feel it coming on (tingles) and it hurts so bad when it blisters are present. I double up on my dose if I feel tingles.  I  don’t know how anyone passes it cause hurts. Some people go without meds and it probably works too as long as they don’t have sex with an active outbreak 
    • Posted

      May I ask if your doctor recommended this method for you OR was this a decision you decided on?

      Personally, I find it very strange to be on meds for that long, as they are unnatural & possibly toxic to organs like our liver. What are the studies on taking meds for that long? Does it somehow lower your chances of reoccurrence? Have you ever thought about researching &inding a natural cure to ease symptoms?

      Ive read up on cold pressed: olive leaf extra, oregano, oil, neem oil.

      Juicing with oregano & parsley, also applying oregano oil on lower spine which is where the virus hides. Ive read up on many testimonials of this natural method & some even mentioned they been OB free & some tested negative after maintaining this stick health diet.

    • Posted

      Nice to hear that about you. 

      Actually my dr advised me not to take suppressive therapy and to have sex freely when no outbreaks but i do take daily valtrex since my first OB in april and i got no outbreaks since then. I had sex once and my partner is ok till now but it is still early for me to judge. 

    • Posted

      Hi I was just wondering were you found this information at. 
    • Posted

      Doctor recommended. I get no side effects and they aren’t liver toxic. Just take with a full glass of water. It does lower my chance of reoccurrence. I did not look into natural because I  immediately went to the doctor and I have meds and am not interested in a strict diet but do what works for you.  I take a birth control pill acyclovir and a chewy vitamin everyday that’s as strict a diet as I’m gonna get.  I also find great comfort in knowing there’s something in my system helping fight the virus while with my partner who is HSV free. 
    • Posted

      Yea I figure that works also. As long as there is no OB there (shouldn’t be) any spread.  I personally feel more comfortable this way but different people like different things. 

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