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Just diagnosed with MS

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isabel60466
isabel60466

I was diagnosed with MS two weeks ago. I have been having great difficulty walking since the end of January. I have been put on to sterois but my walking in getting worse. I struggle after 10mins. My MS nurse says that they can't guarantee my walking getting better. I thought that the treatments and prognosis were meant to be more hopeful now a days. It seems I am the only one concerned about my mobility.

0 likes, 5 replies

5 Replies

  • federico50856
    federico50856 isabel60466

    Posted

    Hi. I'm a MS patient since 2005. First symptoms occurred in 1990 though. I have tried every type of cure, at first steroids, then they try to treat me with chemical medicines for a while but I was not agree, cause of their heavy collateral effects and little predictable results. I have been going every 3 months in Germany for a 4 days homeopathic and holistic therapy, this for about 4 years, with scarce results.

    But since 2010 I found that in USA there were many MS affected people who had controlled MS slowed down the desease progression and finally stopped it using a strict diet regimen and a program based on exercises and food supplements. They eventually avoided all chemicals medicines and stayed quite stable; some had even got better, having some great health improvements.

    I decided to go for that way and now I can tell it seems to work. Too bad in Italy there is not such approach to MS treatment yet. The climb back to a full healthy life is still long, but I think this is the only way for me so far. Maybe it will work for you as well? Starting early is a good thing, before cumulative bad symptoms occur. However I know , this is not a simple decision to take, but – my advice is - you should make your own researches and take in charge directly of your health. Don't wait too long for a physicians' concern.

    All the best

    F.

    • isabel60466
      isabel60466 federico50856

      Posted

      Thank you Federico for your reply. I think you could be right about doing my own research and finding out things myself. At the moment my own Doctor and Specialist seem uninterested in how bad my walking is. They have told my not to use the Internet to get information but will not give me any information so it is the only source I have. I am beginning to realise that this is because they don’t know anything definite about MS. I can’t walk at the moment and am very scared.

      Thank you again

    • federico50856
      federico50856 isabel60466

      Posted

      Have you ever thougth to see another neurologist? Maybe the new one might be more interested on your suffering. However it is not easy to find an open-minded one, as they still follow their obsolete cure protocol....

      Problem is that in many cases physicians nowadays consider their duties only as a work, forgetting that behind a diagnosis or a cure there is a real person with all her fears and difficulties.

      I'm definitely agree with you about the scarce knowledge on MS. This is the reason why I got always alternative cures, and I'm still on searching solutions and making adjustments.

      So sorry for your current feelings, I know what is it. I have been almost entirely paralyzed for a while some years ago but I recovered from that situation, as surely you can.

      I find that avoiding refined sugar helps me to reduce inflammation and helps the body to recover from a flare up. Even too much fruits may cause problems and increase inflammation (as I see on myself) , due likely to their fructose content. Moreover, there are some natural substances that help to reduce inflammation as well, such as ZN (homeopathic injections) and Omega 3. Some (few) neurologists finally find that Alpha Lipoic Acid , another natural compound , is useful to fight MS. It is a powerful antioxidant.

      I just gave you some tips based on my personal experience. Is now only up to you to deepen the matter for the best.

      Hope you succeed. Be strong.

      Federico

  • kay63181
    kay63181 isabel60466

    Posted

    Hi,  I was dx in 2000 but had my first attack in 1994.  In the past 5 years I have noticed a slow deterioration in my condition and struggle with my walking after about 25 minutes.  The consultants all say how well I'm doing for someone who has had MS for so long but do nothing to help the symptoms I have.  I have researched my condition extensively and for a long time was on a strict diet, eating wholegrains, avoiding cows diary, cutting out refined sugars and using supplements, i.e vitamins, omega 3, 6, and 9 and I was well for a long time.  I have never had any medication for my condition and although I have no proof I believe it is because I have taken a more holistic approach that I stayed stable for so long.  My view is until they know why MS occurs then all they can do is treat symptoms and not the condition.  I did have one MS nurse who gave me informtion on Vitamin D3 and the possible link with MS which my own research had highlighted and I take regular Vitamin D supplements.  Have you had your Vit D and Vit B levels checked?  If you are low in these, supplements may help.  Do your own research and there is a good book written by Judy Graham who has MS which I found invaluable after my dx.  Good luck and I hope your walking improves soon.
  • rosie60552
    rosie60552 isabel60466

    Posted

    I am awaiting diagnoses, but I too have struggled with walking and have responded to diet changes. Specifically I went on a high Omega low sugar diet. I did this not because I thought I had MS, because the recent MRI is a shock to me… but because I have two other autoimmune diseases, migraines and a neurological condition.  I was desperate for relief and was willing to try anything. So I got rid of sugar and ate more omega 3.. I also increased my Vitamin D and magnesium (but the magnesium was for the migraines)
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