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Just discovered this platform I need advise on the best hospital or surgeon and other helpful info Wwhohaslcpd

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mathilda72713
mathilda72713

Hi Tina and others, I just discovered this platform and can see that none has posted recently. My son was diagnosed with LCPD last year I am currently working in Africa but have a surgeon who comes in from the UK to treat patients with similar conditions. it's been a year since my son was diagnosed what worries me is that he was asked to do alot of physiotherapy and riding of tri or bicycle while they observe the progress of the disease. we have had several visits to the doctor. at the most recent one they found a cyst on part of the hip bone. I am worried and looking for a second opinion as am not sure why there is the emergence of this cyst when our hopes were high that the fragmentation stage may be over. please I would like suggestions on a good paediatric orthopedic doctor and hospital so I can quickly bring my son in for a second opinion. I would also like to read a few experiences to guide me cause have been devastated since the discovery of the cyst.

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1 Reply

  • SeamusC
    SeamusC mathilda72713

    Posted

    Matilda,

    i am sorry to hear of your distress and your son's diagnosis.

    you describe being in Africa.

    which country are you in and

    which countries are you able to reach to seek treatment?

    i am sensitive to the fact that there will be many surgeons and specialists across the world, but there is likely to be significant cost implications.

    if you and your son have insurance that may help in some instances.

    so, it will be important to be specific and realistic.

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