Just Don't Feel Like Myself After 10 Weeks

Posted , 18 users are following.

Hi everyone. I had a total abdominal hysterectomy 10 weeks ago. Uterus, cervix, Fallopian tubes and non-cancerous large fibroid tumor was removed. I kept my ovaries.

I was nauseous since right after the surgery and lost 20 pounds within first three weeks. I have had all sorts or problems since then as well. I have no idea why I feel so terrible and neither do my dorctors.

I am having ear pressure and head pressure, pins and needles in my feet, and unexplained high blood sugar. I'm not diabetic. All of these symptoms are making it so hard for me to feel better.

I'm not on any meds at all. I've had tons of. Blood work done and dr found nothing.

Has anyone else just had such a hard time feeling better for months afterwards? Has anyone had any similar symptoms?

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29 Replies

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  • Posted

    You sound as though they did take your ovaries, and or the surgery has shocked you so much your ovaries have shut down.

    Are you having terrible sweating, I had some kind of reaction immediately, in the hospital 24 hours after surgery, told it is rare, started sweating like a waterfall, nurses had never seen anything like it, soaking bed clothes through and through, and I couldn't stop, I say to my friends my fingernails sweated, you could see the sweat rising through them, they could not keep drip lines in my arms open as my veins keep collapsing, came very close to really serious problems with dehydration, Dr's standing by to do cut down to realy big veins, when they got one drip to hold and stay open, put on computer pumps to push enough fluid.

    Eventually they figured out I had some kind of hormanal shock, they did take my ovaries, as I had a endometiral cancer, diagnosed with D & C.

    Put me on HRT, that I did not like, but it brought it under control, took me off after a souple of weeks and the sweating, shivers and shakes came back, so back on HRT, slowly slowly over the next two years I was able to wean myself off HRT.

    With hind site, the shock of diagnoses, the surgery, Dr's taking my ovaries, pain killers, and urine infection, body over reacted to everything, incl flash addicting to pain killers, had to step down off those as well as recover from surgery, re-admitted in agony and vomiting, same day as discharged, until young Dr figured out what was going on, replaced pain killers and agony & vomiting stopped, that confirmed his worst fears that I was addicted, not suggesting you may be of course.  At ten weeks I would think your heavy pain killers would be to a minimum now if not gone.

    5 years later have had double hip replacement, no problems with pain killers, other than being very sick, vomiting on morphine, they replaced with different drug, no problems with addiction.

    The hospital did raise the issue, as they had it on my file, big interview about what I was going to do if I found myself in the same situation, very matter of fact answer from me was I would have to go through the step down process again as I had previously with success.

  • Posted

    I had full hysterectomy and the old way - big scar.  I had everything removed due to possibility of cancer - was only precancerous thank goodness.  It was 5/24 and I still feel like crap!  I have 0 energy, I ended up with 2 complications - rectocele and bladder issue - awaiting to see a Urogynecologist.  I have the ear issue like you said, thought it was just me.  I had to go back to work last week and I have spent all weekend sleeping as I'm 51 and it wore me out.  Keep in mind worked since 16, never had any time off other than vacation week at a time.  Dreading the week starting again!

    • Posted

      Omgoodness, Lisa. Can you tell me more about your ear issues. I'm going crazy. I feel like I have constant pressure in my ears, and some ringing. Plus pressure in my head like a headache. Nothing helping my ears and head. What is your ear issue?

    • Posted

      I have had a headache all wknd and thought it was just the stress of having to go back to work and the hoops work is making me jump through and the complications I am having with the bladder and rectocele .  My right ear feels like there is water in there and just constant pressure.  I haven't went to see the doctor as I just went back to work and already have to take time off for the specialist and I'm sure tests.  I am crazy over this crap!  I am thankful it was not cancer, but OMG this has worn me out and still is!

    • Posted

      Lisa- I've gone to an ENT and a neurologist to help me with the ear and headaches. They put me through 2 hour hearing/ear/balance test and a cat scan and MRI of head/brain/inner ears. Everything THANKFULLY came back normal, but no doctor can figure out what is causing the ear and head pain/pressure.

      I still have my ovaries so it's probably not hormonal. But it's really upsetting!

    • Posted

      Did they have you start on hormone replacement treatment?  I had been on them for about 10 years, they had me start mine back up around week 5.
    • Posted

      My dr doesn't do hormone replacement unless ovaries are removed. So I'm not on anything for hormones. I have no idea if this is something I really do need but he only does that if ovaries are removed!

      By the way, I'm 44.

  • Posted

    Hi I had the same surgery 5 weeks ago.  I am also having ear and head pressure and feel like I'm in a brain fog.  Not taking any meds for it and unsure what to do about it.  I am eating a healthy diet and exercising (walking) to see if it  helps.  

  • Posted

    Hi, sorry you are feeling so awfulsad  I am two weeks in after a total hysterectomy kept my ovaries and I to still feel like crap. You seem to have a lot more issues going on I couldn’t imagine having that on top of the original surgery. Have your doctors ruled out that just maybe you have sinus cold or anything along those lines?  You should take a look at a website called his Hystasistas it’s a full site completely on hysterectomy there’s millions of questions and answers on there with threads of people chatting and hysterectomy checkpoints and they do go on for quite a lot of weeks months !!this is a real bugger this surgery I agree with you !! I feel sorry for you though you must be having a real rough go I wish things will tone down for you and you can feel a bit better !  But I have literally spoken to 10 different women I know who have had hysterectomies and said it was a long recovery but they wish they had done it sooner they feel amazing I always try to keep that in the back of my mind when I feel really crappy! So I wish you all the best and some relief for sure take care 
  • Posted

    I have had all the symptoms you explained except the profuse heat. mine is the opposite. cannot get warm at all and seems like when I get away from my bathtub or electric blanket the nausea increases. I had a total hysterectomy done 7/15/2020 and I have been nothing but sick since. the ear pressure to me feels like an ear ache. and I've had neck and jaw tension and pain trying to quell the nausea. pain under the left rib and the left kidney. constipation like.nobody's business. moments where I cry at a sensory influence(songs and places). stiff achy and a brain fog. also csnt est without a heartburn pain and then this bloated over full sick feeling then cramping.....for 6 hours. ugh.

  • Edited

    Hi I had mine on December 1st 2020 and I still feel like s**t. My head hurts off and on I'm weak most of the time still fatigued sharp crampy pains in my abdomen and vaginal area. Went to get checked and dr says vaginal cellulitis (never heard of it) on antibiotics and took my last dose December 31st. STILL SITTING HERE FEELING AWFUL EMOTIONAL and DEPRESSED. I still have my ovaries and I'm 41. I did it so I could get it out of the way and feel better before my wedding March 27th. Ladies PLEASE tell me it gets better 🙏🏿😭

  • Posted

    Hello,

    i know you had your hysterectomy a while back but I just wanted to know how you're feeling? I had my hysterectomy 10 weeks ago and i cannot bare sitting upright for longer than 15 - 30 mins. My lower abdomen/pelvic region feel inflamed and a lot of pressure. I had a CT scan done last week and nothing was found. I'm just trying to find some answers 😦

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