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Just got diagnosed with LS

Posted , 7 users are following.

sues1958
sues1958

Hi, I've just been diagnosed with LS, only by chance as was seeing Rectal Consultant for Piles! He has suggested I have LS aswell as a Fissure. Probably since June this year I started suffering what I thought was Piles which turned out to be Fissure. At the same time I mentioned to my GP I had started to be sore and itching at the front. She examined me and gave me hydrocortisone cream which I used back and front but it didn't help. I was then prescribed hrt which has only helped my hot flushes. Went back to GP today after my Rectal Clinic and she has prescribed me Dermovate ointment for a month them go back to see her. Says if it doesn't help she will refer me to gynocologist. Never heard of Lichen Scelrosus before so I'm glad to join this group.

0 likes, 9 replies

9 Replies

  • j10989
    j10989 sues1958

    Posted

    Hi Sue,

    I have had LS for a year and a half. It took a dermatologist to finally diagnose and treat me. My dermatologist knew how to get it under control. She also had a lot more experience with it. Have you thought of seeing a dermatologist?

    Good luck...you are not alone.

    Jen ☺

    • sues1958
      sues1958 j10989

      Posted

      Thanks for your reply, having read through many people's experience with this, I will not be afraid to suggest anything to my GP. Will just see how it goes at the moment .

    • maggie81413
      maggie81413 j10989

      Posted

      Totally agree with you that the best bet is to see a consultant dermatologist with a speciality in Vulval conditions. I opted to see a dermatologist over gynaecologist for my perineum problems ie. White in colour and fused around that area, shortening my vaginal opening. I saw my consultant last week and she was brilliant. I'm on medication for 3 months until my follow-up, and hope to have surgery at some point.

  • micheline16004
    micheline16004 sues1958

    Posted

    I've had LS for a long time, more than 6 years which I didn't know. My GP prescribed 1% Cortisone Cream but this was not strong enough. When I went to the Vulva Clinic, the doctor there prescribed Clobatesol 0.5% a steroid ointment. That reduced the white that I had. I never had any pain or burning, just a deep rooted itch. It cleared that up also. I'm having trouble now though urinating and why I don't know. I can see the urethra. It's not covered by anything. I'll have to go to Urgent Care clinic tomorrow to see if they can tell me anything. I don't have a doctor right now. I have an appointment with a new one on Dec 5 and it's not coming fast enough. They say you're better to get a dermatologist because it is a skin disease, rather than a gynecologist.

    • sues1958
      sues1958 micheline16004

      Posted

      The cream i have is clobesetal. 2nd day today of using it!. Hope you get yourself sorted out x
  • j02359
    j02359 sues1958

    Posted

    Hi there, I have had a very similar experience - had my LS diagnosed via vulva problems and eventually we all worked out that the anal fissures I'd had for a long time were also caused by the same thing....years and years before I got a proper diagnosis and once you have one at least you know what you are dealing with and have access to information about how to manage this condition.  Every best wish.

  • j02359
    j02359 sues1958

    Posted

    PS I think what matters is to see someone who specialises in LS - my doctor is a gynecologist - and I think that having a special interest in LS is probably more important than whether they are a gyne or a dermatology consultant.
    • sues1958
      sues1958 j02359

      Posted

      Think you are right. From my experience at having Fibromyalgia, its important to see someone who understands the condition.
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