Just looking for some information?

Posted , 8 users are following.

Hi all, 

I've decided to join this discussion just to get a little bit of help and advise really..  my partner got her stool results back yesterday and whilst the doctor said he can't diagnose anything as of yet, he said it's Likely to be Crohn's disease.  My partner has to have a biopsy in the best 3 weeks then we will know more. But after doing out research she's 99% sure it is this. Every possible symptom, she seems to have ATM and I feel helpless. Obviously 3 weeks is a lot of time to wait do the first question wold be.. is there anything I can do, or anything you can suggest to ease her pain? I feel so helpless at the moment and seeing her aching and weak and not knowing what to do is horrible! 

Also, does anyone know how long you normally have to wait for results after a biopsy?  And once diagnosed so you get out on medication straight away or? 

Thank you all for reading and I appreciate any replies I might get! 

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5 Replies

  • Posted

    Hi Charlie we are jumping the gun a bit assuming that it is Crohn's however the diagnosis stage can be horrendously protracted so here is a bit of advice to be going on with.

    Reduce the pressure/load on the bowel by sticking to liquid or low residue foods. It varies person to person but in bad flares I survive on bananas cup a soup and apple sauce. If pain is a problem paracetamol is preferred analgesic or maybe cocodamol (can cause constipation which doesn't help) but ibuprofen and aspirin are felt to be unhelpful in fact some authorities think these may be a causal factor or trigger for Crohn's flaring up. Otherwise keep pressure on your doc to get seen as soon as possible. Good luck you both - Pete

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    • Posted

      Hi. A colonoscopy usually tells if you have Crohns within days not weeks. Then you are put on meds more or less straight away. There are other bowel diseases which it could be so for now don't jump the gun. Ease up on diet...stay away from bran and four have foods and a hot water bottle plus pain killers is a about all you can do at this stage

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  • Posted

    are you sure that is what she has i had all the test and all the resuits back before that she will be under the hosital the rest of her life if it is i got to take tabelts every day for the rest of my life i wish her all the luck in the world
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  • Posted

    Thanks for all your replies she actually hasn't had the biopsy done yet she has had a fast tracked one and waiting the letter to go for it they said within two weeks three max if she hasn't heard off them by three weeks to go back and will be taken straight in to have them done she had a stool sample and blood test and the stool sample came back high protein and a lot of muscus and the bloods low b12 and folate and her doctor said she most likely had chrones but can't diagnose it until she has the camera and biopsy 

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    • Posted

      I believe I may have spoken on mother forum to you or your partner.

      It’s important to remember the gp CANNOT make a diagnosis based on the information you have.

      Routine is to refer when fcp is over 250 which the guidelines deem high, in Ibd terms, this is in fact low. Many many people have levels in high hundreds or thousands.

      Other conditions raise calproctin including benign and non Ibd causes.

      The fcp is a guideline for monitoring Ibd and for referring patient for further testing. It does NOT mean you have Ibd.

      Just because your symptoms match google, Ibs has many of the same symptoms.

      Blood would be expected as I believe your partner has hemaroids too?

      This is interesting info from nhs guidlines of calproctin

      Initial high result (more than 250 micrograms/g)

      Of those tested, 11.2% of people (30/269) had an initial high faecal calprotectin result and all but 1 were referred urgently for specialist investigations according to the local guidelines. Of these 29 people:

      8 had a final diagnosis of IBD.

      14 were diagnosed with IBS.

      7 were given other diagnoses.

      So only 8 had an Ibd.

      They are referring to rule out the cause.

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