Just need people who understand me to see how they cope living with CFS
Posted , 12 users are following.
Hi im zoe im 28 years old and have recently been diagnosed with CFS. It took nearly 10 years. I feel lost due to the fact i try to say im ok alot of the time when really im not i get sick of hearing myself say no im having a 'bad day' 'im not well' so i know what some people think oh here we go again.
Im just interested to know how you all go on.. i mean.. im feeling way iller than usual but i feel i cant go to doctors as they will say its your M.E. but what if it isnt? What if its something else. Im struggling one minute then i can have good couple of hours and if friends or family see me i look all fine then boom iv gone down again and i cant even be bothered to talk . Its so hard and frustrating would just like to know how others cope xx
1 like, 81 replies
cmann30 zoe06402
Posted
Hi Zoe! Please check out my blog. I starts blogging a few years after I got sick to try to humour, encourage and share experience
Www.meandcfs.com
zoe06402 cmann30
Posted
zoe06402 cmann30
Posted
Hiya . It does help reading other peoples battles day in day out and i hope your feeling ok ? It is such a struggle and alot of time feel like people look at me like im crazy always complaining of something then they turn round and say you need to get out more all u do is work n look after ur son .. iv got to point that i do not justify my life or health as no one around me understands. I get more and more symptoms and i never no wether its ME or something else.
Currently been stuck with violent headache & visiom can go misty, another trip to doctors i no what they think oh here we go again iv got pressure on both eardrums but they dont know why and literally left me to it.Im struggling at the moment but just no help out there i have given up on NHS x