Just need someone to talk to really!
Posted , 15 users are following.
I guess this is my way of reaching out to someone for some help, or just someone I can speak to about what I'm going through..
I'm 19 and over the last 4 years I've been in and out of hospital with horrific stomach pains. They try to tell me I have a urine infection despite tests showing up negative or they say it's appendicitis and set me up for surgery, only to tell me it's not and send me home. I had a short spell of pancreatitis and they found an inflamed bile duct, but never told me what this meant. I've seen 10+ doctors; been for around 20 ultrasounds; a promise of an MRCP that never happened, 100's of blood tests and sample pots that get sent off and never reveal an answer.
My current doctor says he thinks it may be IBS because there's nothing left to test for anymore and has prescribed me with lobramide and buscopan, but hasn't provided me with any information or support, and I don't want to have to search all over the internet, I'd rather just speak with other people, someone that can relate to me and give me tips on what to do. I don't have any family or friends that can help with this and no one else seems to understand the frustration and agony of living like this.
Going back four years, my main problem was the pain, coming every two or three weeks and leaving me bent over, screaming in agony until someone called a doctor or an ambulance. I could never figure out what was causing it. I stopped drinking pepsi as I'd get pains like someone was stabbing me from the inside out all over my abdomen that would pass within 30 minutes, and I no longer drink alcohol due to fear pancreatitis will come back.
But recently, the pains have been constant -- all day, every day. It doesn't matter what I eat or if I don't eat at all, it feels like sharp stabbing pains, 8 times out of 10 it's on the left, but also feels like pressure.. Like I'm full of air and the slightest movement is agonising and feels like I'm going to burst. I'm bloated 24/7. If get the urge to go to the toilet about 15 seconds before the pain intensifies by 100% and I barely have the chance to get to a bathroom in time. I'm constipated in the morning but by night it's the complete opposite, going about 10 times a day.
I had to quit my job as a care assistant as the pains were too much to bare on my feet all day, and I'm now bound to office work and call centres, which is embarrassing when you have to sprint past 400 people to reach the bathroom, or if the urge comes while I'm on the phone to a customer. I lost a job a few weeks back due to being off sick and I'm afraid I'll lose my current job also if I don't find an answer quickly. If the pain is too bad, I can't make the journey to work, so not only am I ill and in pain, I'm stressed over job security and money.
Please, if anyone has taken the time to read this and feels they may have a spare few minutes to share their experiences with me, hints and tips on the do's and don'ts, anything you feel may help, or you just feel that you could be a friend to me, someone to relate to and just discuss how our day has been and how we're feeling, I'd really appreciate it. I feel so alone and isolated living like this and I just don't know what else to do. Every day is constant agony when all I want to do is have fun and live a normal life.
2 likes, 16 replies
LL568 Pyroph0biaa
Posted
But on the other side, I am so happy (I know that's not the right way to say it!) that someone else has exactly the same as I have!! You are definitely not alone in this! And if you ever need to rant of anything, do get intouch!
I am currently trying to set up a support page on Facebook, called Bog buddies. You're more than welcome to join that! There's only a couple of us at the minute but we're all going through similar things!
What is an MRCP?
Like you, I've had numerous amounts of tests and everything and they're still saying its IBS. Which it's clearly not.
I have D and for nearly a year now, have been housebound and had to leave my job.
But the pain is exactly like yours!!
And the doctors are saying its nothing to worry about and probably just a spasm.
There was a time my dad found me in and out of consciousness on the bathroom floor and I was passing so much blood, the doctors sent me home from A&E with ibuprofen and said if it happens again to go to my GP! Absolute joke isn't it?!
Do you take any tablets or anything? For the pains and the poops?
Are you in the UK? You can go on the sick and get SSP or ESA which isn't much but it's better than nothing I guess. You also get free prescriptions.
Sending you big hugs! Just remember, you aren't alone through all of this!!
looloo43 Pyroph0biaa
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elaine140 Pyroph0biaa
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Your symptoms definitely sound like IBS. Personally I don't find that Buscapan helps me at all and NHS 24/7 recommended taking Ibuprofen which helped more. I'm still trying to find my way but as I say, have a read on here and start getting yourself back on track.
lynne69494 Pyroph0biaa
Posted
l didnt really have symptoms like yours, but did suffer frequent severe pain, poor health, bouts of aneamia, thrush, long catalogue of symptoms, tests, xrays,s scans, nothing found, so put down to post csection, gyny, hormonal, phycalogical, now many get told ibs. mine turned out to be intersticial cystitus, took l3yr to get diagnosis through scope, meds helped 90percent, In that time ld gall bladder pain and had it removed, not stones, inflamed, For some it can take a long time to get right diagnoses. Have you seen gastroenterologist and had a scope,of stomach. l guess theyve checked your gall bladder, l think the bile duct is connected to it,,and pancreas near, have you been tested for being ceoliac, If youve not seen one ask for referral to gastroenterologist, l think gps sometimes make light of problems which are devastating to patient, affecting their lifestyle badly, sometimes you come away feeling worse, but keep at them till you get answers and help. Re work, you can only do your best, if able, and if not its not your fault your ill. l hope you get help and support and keep battling on and it will improve in time. best wishes,
jude57665 Pyroph0biaa
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I will pray for you too because I know how dark and helpless most of the last 12 months has been for myself, but when I decided to do a little searching myself I found everything falling right into everything that I am reading and comming to realize....with knowing Him He wants nothing but the Best for US even thru the bad. I am so greatful for the health problems I have as crazy as that sounds becuz it has allowed me to to see life in a whole new way and have nothing to worry about...with knowing God's plans and I can tell u 3 months ago I would have laughed and said whatever ya nut job if I would have read something like this...lol......so I hope this helps....keep going to Dr's, be persistent press for answers and if they have none make them tell u where u can get the answers....Mayo Clinic in Mn depending on where u live. Don't give up....find the answers u need and don't stop til u do. Keep food log, drink lots of water see a nutritionist....gastro Dr. Natural things such as ginger, curry....not for everyone, but cannabis is said proven to help with IBS, JUST SAYIN
Guest Pyroph0biaa
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jimbo1968 Pyroph0biaa
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1) are your stools a consistent colour (medium brownish)
2) do you see undigested food in your stools
3) have you had a Calprotectin test done on your stools
4) is your urine the same colour it's always been if not how has it changed
5) have you had full blood test and if so was there anything out of the ordinary
6) other than lower abdominal pains do you have any others and where
7) do your stools have a unusual smell or repugnant smell
Sorry about questions it's just it would help to know a bit more to make educated guess
Francis1972 Pyroph0biaa
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sarah1996 Pyroph0biaa
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sarah1996 Pyroph0biaa
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LaBamba Pyroph0biaa
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Have you tried to work as a freelancer? I live in Eastern Europe and work for some American sites. Sitting at home mostly. Going out only to pick up some food at the supermarket. It is very comfortable job if compared to journalistics. I am a former journalist. I'm so happy that I can go to the bathroom whenever I want
susand1408 LaBamba
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Sue
annie1963 Pyroph0biaa
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Dylon19 Pyroph0biaa
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19 years old also bin dealing with some kinda pain I suffer with everyday 6 years now came across this post on google looking for help and wow can say I finally found someone who has similar stuff like me I felt hopeless and alone !
belinda11488 Pyroph0biaa
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belinda11488
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