Just need to know
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I am trying to understand why PMR goes away eventually (2 years to ?) when most other autoimmune diseases definately do not - MS, lupus, and scleroderma, for example. Of course I am glad that there is hope for us that we will be done with it some day, but it seems illogical to me.
0 likes, 7 replies
Oregonjohn-UK Padada
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EileenH Padada
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As for 2 years - if you are lucky, I've had it for 10 years and it is still there. German textbooks say an average of 5 years.
erika59785 EileenH
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It is so sad that even my German relatives do not know what PMR is. They call it Rheumatism or Rheuma but meaning RA and not understanding the muscle inflammation.
EileenH erika59785
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Danrower Padada
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Then at 64, about a month of gradually increasing symptoms, Wham. Penguin walk, You all know. I'm 16 months in this time, managed with pred, leveled at 5 mg, going to resume a slow taper, finally able to work, physically. After 16 months, finally feeling better. Less fatigue, higher spirits. Less depression.
So my theory is that once demonstrated, then PMR will be, for me, a lifelong condition. Then it may go into remission, but under high mental or physical, trauma or stress, then the it may well show itself. Lurking, ready to appear when my unique set of triggers resurrects the monster. I suppose I have had some markers for 12 years.
I think that I spontanieously recover from the endocrinological storm which caused the symptoms in the first place. And it takes me about a year and 1/2.
I have pre-Copernicusly (me being the center of the universe) described my own cycles, and answer this question without any generalization or thought that others experiences will be similar.This is my second recovery. I hope we will have our last recoveries with no recurrences.
erika59785 Danrower
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Nancy_O Padada
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I heard from my doctor as well that it burns itself out as well, but I understand that is remission, not cured. I am six weeks into prednisone at 20mg and after weeks of almost no PMR symptoms, I am back in pain in my legs mostly. My father passed away recently and it has been a stressful time in my life. No tapering for m just yet. If I have learned
anything from this forum, it is the importance of self-management of this condition.