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Just plain crazy!!

Posted , 4 users are following.

steve93849
steve93849

Here goes had a fantastic day today been out driving walking everything really good lets say 95% no mild dizzyness or feeling lightheaded

but come home doing everyday things then  start eating dinner and then feel abit lightheaded / dizzy is this a sympton of BPPV or not as i cant seem to see how it comes and goes as it does

im thinking did i have a virus 3 months ago and this is just the recovery phase

Ive told my doc i want a referal to a nuero otologist which he has done but im trying so self diagnose at the moment

any input would be good my fellow sufferers!!

0 likes, 8 replies

8 Replies

  • Terry6872737
    Terry6872737 steve93849

    Posted

    Same feekings that I have.  Was diagnosed with Vestibular Neuritis 9 1/2 months ago.  Been a fairly good last few days.  Still have a little lightheadedness when turning fast or moving head fast.  I find that for me when I get tired, I have an increase in symptoms and when there is a weather front coming through.  Been this was for last 2 or 3 months.  Sometimes I feel like it is completely gone and then I have an issue.  I find that anxiety or if I get the feelings on my mind I notice them more.  It may have always felt like this but, now I just have a heightened awareness of the feelings.  I believe that you are making progress and it will just take time for everything to settle back to normal.  I feel that I am about the same place as you, 95%.
    • steve93849
      steve93849 Terry6872737

      Posted

      hi Terry yea i think i may have had that because when this 1st happened i had 5 real bad vertigo attacks but they hav dissapered or hopefully have as i havent had 1 for 5 weeks now

      But hospital never told me it was that just BPPV

      seems some day good others not so good but if i get bad days i seem to improve s day goes on ..............trouble is you dont want to go to bed because you have to start all over again sometimes in the morning if you feel foggy

    • Terry6872737
      Terry6872737 steve93849

      Posted

      Vestibular Rahab Therapy will help to overcome the bad days.  I've been doing that for 6 months.  From what I understand with BPPV comes vertigo.  I had an initial episode of vertigo but, then had balance issues along with foggy head and what I call dizziness.BPPV will cause vertigo on head movement.  I was originally diagnosed with BPPV as well and ended up having it secondary to the VN.  Cleared it with an Epley manuever at rehab.  Most of what they tell you is a guess based on symptoms since the cannot see the inner ear and it's workings.
    • steve93849
      steve93849 Terry6872737

      Posted

      yea ive only had balance issues straight after the vertigo attacks but my balance is fine even when im feeling lightheaded and foggy so i guess im one of the lucky ones Tel
  • paula59
    paula59 steve93849

    Posted

    Hi Steve

    I had that test but Ive got the same symptoms and have been diagnosed with silent migraine. I am always dizzy when moving my head.  If I lie down Im fine.  Soon as I move thats it.  Anxiety makes it worse.  Im on medication but nothing gets rid of it.  Had it over two years now without a break. Its very weird.  I wish it would go.  I had to give up my job as i went full time and I couldnt do it full time.  Have trouble in airports, supermarkets with bright lights.  It has improved a lot over the last year though when I look back.  My eyes can be very painful but botox helped.  On waiting list with NHS. 

  • steve93849
    steve93849

    Posted

    Hi Paula yea im fine laying down and turnining over in bed as such and i have been getting strange things with my eyes like a prism effect around the edges as if your looking through water used to get it about once a year but had it about 6 times in the last 3 months!!

    lasts about 20 mins then goes i read that is some sort of migraine

  • paula59
    paula59 steve93849

    Posted

    R u OK with lights and noise etc ?  It used to hurt to nod, but Im OK now with that. Been to migraine clinic in London. They explained it.  Theres a nerve running thru your face and head with a muscle over the top called the corrugator muscle.  This muscle can go into spasm and irritate the nerve.  The nerve gets inflames throughout the face, behind the eyes, over top of head, back of head and neck.  Hence all the weird feelings.  When you have botox it freezes the muscle then lets the nerve heal.  It worked for me great but didnt stop the dizziness.  Ive noticed that Im much better when Im on hols, so anxiety must play a part.  Its no wonder its horrible being dizzy all the time and very scarey.  So waiting for next lot of botox.
    • steve93849
      steve93849 paula59

      Posted

      Yea fine with lights and noise i seem to get better as the day goes on which is really strange and i dont get tired either

      But like i say had a great day today makes u realise what your missing out on thats the problem...... so i await for the morning to see how i am then and i will let you know if its all doom and gloom ...lol

       

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