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Just some help again...

Posted , 7 users are following.

Gem1384
Gem1384

Hi again all,

I have posted on here before and the responses really helped me so thank you.

Last night I had my first pains that lasted into the night. This hasn't happened before. It look me ages to fall asleep.

My question is can fibro be aggravated by using a certain part of your body repetitively? I painted the garden fence yesterday and my right shoulder has been playing me up since. It's usually my left shoulder that hurts more.

I get really worried and I start panicking about having bone cancer.

I have started taking full vitamin supplements and have started taking magnesium.

I'm so confused over what is normal and what isn't with fibro sad I get worried over the littlest pain. And the pain is horrible its a really stabbing aching pain sad

Any advise, information or help will be gratefully recieved!

Thank you.

1 like, 16 replies

16 Replies

  • Bee70
    Bee70 Gem1384

    Posted

    Morning Gem

    Ahhh....poor you !

    Unfortunately with Fibro pains can be triggered off with stress  and over doing it. Yes, it is a repetitive pain and can be frustrating.  That is one of my reasons I don't sleep well due to the constant pains in hands and neck and shoulder area during the night along with night sweat.

    By panicking, you can also aggrevate pains and I feel you should check with your rheematologist if you have concerns.

    Hope you have a good day today. Take it easy! biggrin x

    • Gem1384
      Gem1384 Bee70

      Posted

      Thank you bee.

      I am not yet under a rheumatologist. I saw the pain management consultant for diagnosis. He did check with the rheumatology department of they needed to see me and they said no.

      I can't be treated at the moment as I am Breast feeding my baby still. He agreed that he would see me back in clinic after I've finished Breast feeding.

      It's so fraustrating that paracetamol does nothing for the pain sad

      I have started to be a little warm in bed recently, is this normal? My husband last night said your very hot are you feeling ok, should I be concerned?

      Hope you have a nice day smile

      Gem

    • shirl21730
      shirl21730 Gem1384

      Posted

      Hi Gem

      it sounds like repetitive strain in your shoulder... I used to do all my own decorating.. I found painting could be relaxing if I paced myself and being a single parent of 3 kids it was very rewarding to know I had done it myself...when I over did it which was many times lol I would sit with a lavender heat pack from the microwave on my shoulder and it would ease the pain (you can get the gel ones hot and cold now) I have a power shower when the water hits the spot it feels like I am getting a gentle massage and the instant heat on my sore points gives me some relief...a friend of mine had a mini tens machine for her aching joints I tried it and it didn't work for me..I have a daughter when she was breast feeding her baby and didn't feel well she couldn't take anything for the pain so I kind of know how you must be feeling...take care

      shirl

    • Bee70
      Bee70 Gem1384

      Posted

      Hi Gem

      My hands and feet are hot all the time. Kids love my hot hands. Husband too likes my hands hot to aid in his back being massaged. I don't particularly like hot hands and feet all the time but with added night sweat it's just not fair. 

      Yeah it's difficult when you are breast feeding as you are limited with medication. 

      Gentle hugs to you wink x

  • charlotte1824
    charlotte1824 Gem1384

    Posted

    Hi Gem, 

    Anytime I do anything like pull weeds, even for just 15-20 minutes that evening / the next day i am in alot of pain. I feel like ive been run over by a steam roller and I can never figure out why until my brain starts working and i remember what i did the day before.

    When i creosoted our shed i was in agony that eve/next day and when we moved house the day after i thought i was dying. Perhaps you could keep an activity diary and see what aggravates you. To be honest even walking around the shops for an hour or so can cause an increase in pain.

    I havent been diagnosed with fibro, it was previously hinted by a rheumy but GP said i was to young (31, been going on since 25). and other GP has referred me back to another rheumy.

    Magnesium seem to really help most people but my nerve symptoms got worse when i started taking 400mg a day, i also got quite down.

     

  • anne61685
    anne61685 Gem1384

    Posted

    Poor Gem, I'm now 70yrs old, have suffered with Fibro since childhood,  after several yrs of hospital visits  lots and lots of different tests. xrays, scans and blood tests, thinking it was all in my mind. I was finally diagnosed by a great Rheumatologist in Sheffield  in 1996 with Chronic Fibromyalgia. He said that unfortunately due to my age it would only get worse as I got older, oh boy! It certainly has, even though I have been to all of the so called places for help, Pain Clinics, Physios, Hydrotherapy, Acupuncture, on Amitriptylin 150mg for 18yrs, this I got weaned of 15mths ago because it didn't make any difference to the pain I got, I just put on weight 3st. in the first 3mths of taking it. After trying me on every pain killer going my GP finally put me on Morphine, it just made me vomit and ever since I can't keep any pain killers down at all. So I have to put up with the pain!! NOW, what you have to do is learn to pace yourself, don't go mad doing jobs for very long at all. Do what you're doing for no more than 20mins then sit down and rest for 20mins, read or rest your eyes but nothing physical. Very hard I know especially if you have any children or someome else to look after, I know because I had to look after my husband when he was very ill for a long time and my children. You will only agravate your muscles and fibres if you keep going and suffer after. It's bad enough when you get a flareup to cope with, so try not to get stressed over anything, worse thing you can do! Learn to put yourself first because no one else knows excactly how you are suffering and most just don't understand. I have lived through it along with 8 other serious ongoing illnesses as well. So do listen to what I have suggested and try it I know it will help. Plus keep on at your GP to send you to a Good Rheumatoligist who is knowledgeable about Fibro. Just make sure you are diagnosed properly, especially due to your previous illness. Take Care !!
    • shirl21730
      shirl21730 anne61685

      Posted

      Hi Anne

      i was diagnosed with Chron's in 1994 and fibro in 1997 I'm 57 now I have brought up 3 children as a single parent and I also took care of my mother when she became ill with cancer Osteoarthritus and dementia until she passed away 13 years ago... I had a good gp that understood my health problems although he wasn't offering any information other than painkillers I had to find out myself what programmes were available to me as I have always tried to stay active...after a few visits to the docs and my persistence of asking I was finally sent for physio and hydrotherapy then I was put on gap going to the gym and aquarobics and swimming twice a week for 12 weeks I did this course 3 times for 3 years and I rode everywhere on my bike and it has it helped me by strengthening the muscles in my arms and legs and I can honestly say I never got pain in my arms and legs until just last year now I get pain sometimes in my knees but I put that down to wear and tear... There is a history of Arthritus in my family I have 7 siblings and 5 of them have got it...I have always had pain in my hips lower back neck and shoulders.. I'm in the UK I have read a few comments on here from younger fibro sufferers that say they are in so much pain they can't do much activity or hobbies it saddens me to think there isn't the help available that I have been given for them now...

      Take care

      shirl

    • anne61685
      anne61685 shirl21730

      Posted

      I to wish something could be done to sort this underestimated Fibromyalgia. I know what the young are going through because I have suffered with it from childhood.

      From my teens I also started with lots of illnesses and its carried on through my life. I also tried to combat a lot by going to Gyms for quite a few yrs. but it got to me in the end when one day I went to try to do some swimming the pain was so bad I didn't have the strength in my muscles to hold me up and glugged my way to the bottom of the pool, sounds funny now but not at the time. It also caused a lot of problems with my pregnancies, lost my first boy, things going wrong all the time with my daughter during my second pregnancy, then with my second son I had to stay in bed in hospital for 13wks having to be taken down to the labour ward everyday because I was actually in labour, that wasn't funny but I managed to hang on to him intil he was born just 2wks early.

      2yrs later after having had to suffer with Endometriosis for 10yrs before I then found out I had Cancer in my womb so that meant I had to have a full Hysterectomy at age 44. after that I suffered my 3rd Nervous Breakdown in my life brought on by a lot of the trauma I had to go through. At 48 I had my first Stroke and paralysis down the whole of my left side. Being a very determined person with the help of my Physio I got walking after 3mths. to everyones surprise. Since then I've had 3 TIA's (mini strokes) last one 13mths ago. Plus having to put up with a lot of pain from Kidney stones having been in hospital for an operation on that, pain from a Hiatus Hernia everyday, Arthitis in my hips, feet, shoulders, hands, Spondalytis in my neck and spine, Carpel Tunnel Syndrome and last year I found out that I have a ANA (antinuclear antibody) that is attacking my red blood cells that can lead to an Autoimune desease that they are waiting for to start up. My chest got really bad last year and after having a scan done found out I have Asthma and Bronchiectasis so taking inhalers for that also was told I have Diverticultis that needs to be operated on but the consultant said its to risky because I have so many problems, now waiting to see another consultant to help with my pain from Fibro and M.E. thats been dogging me for all these years. Not on any meds for these or pain killers as I said they just make me vomit and can't keep them down. I just take 3 lots of meds for High Blood Presure plus one for Hiatus Hernia and another for Cholestral.

       Through all of this I have nursed my husband for 10yrs when he had his heart attack at the age of 54 that caused a knock on effect of Gallstones, inflamed Pancreas, 5 Hernias all of which had to be operated on  at different times and finally having a triple heart bypass 17yrs ago. I also looked after my Mother like you everyday, she suffered terrible Bronchial Asthma having to go into hospital regularly for to have her lungs drained. Until she died 25yrs ago. Then these last 5yrs looking after my husband's widowed cousin who suffers from Dementia and being her Power of Attorney (Nightmare). Despite all of this only my husband, son and 2 close friends have seen how much I suffer, I always try to put on a brave face and keep going apart from when I'm in bed for 3 to 4 days at a time every  couple of weeks when I dare not move due to the pain and feel as if I'm dying. I've had my 3 score yrs and 10 as they say and at times think thats long enough. Pacing myself does help to keep me going after my best friend has always tried to tell me and not to do to much. Like my Mother in law always said " hey lass, the work will always be there a long time after you've gone" at 70yrs old  I now know that she was right. LETS HOPE THAT THEY DO FIND SOME CURE FOR THE YOUNG ONES SOON. I would hate for anyone to have gone through all of the illnesses that I have. Sorry it's been such a long reply but I hope someone else will read it as well and know that you can keep going, just don't let it get you down to much. Do take care Shirl !! Gentle Hugs from Anne X

    • Bee70
      Bee70 anne61685

      Posted

      Hi Anne

      What an inspiration you are ? You have been through so much with your health and are still able to carry on. 

      I am 45 and hope I can carry on too. Totally agree with pacing ones lifestyle to do only what one can and not to be a robot that keeps going on and on and on.......

      Thanks for sharing your experiences in life. biggrin x

    • shirl21730
      shirl21730 anne61685

      Posted

      Hi Anne

      you are an amazing lady to have taken care of others as well as coping with your all of your own illnesses  in the words of my late mother " you have been through the mill and came out the other side" my mother was a single parent she was left to bring up 8 kids on her own for years after her first marriage broke down and  a failed relationship when I was 16 she remarried and had 10 happy years with her husband she had 2 young children and went to work full time when they moved out the marriage eventually broke down then mam became ill and after having tests she was told she had Arthritus and Luekaemia she also had ibs she would take painkillers 4 times a day every day for at least 10 years and milk of magnesium for her bowels she ate processed food ( she didn't know any different that's all she could afford when she was a single mother) she ate salads and fruit about once a week and never once thought about her diet...in her later years as the illnesses became worse I helped with her care by taking over her finances and being supportive going along with her for her hospital treatment.. she could never understand why I went with her I didn't mind at all besides she always insisted on buying me a magazine a drink and a chocolate treat we were close and my 2 older sisters would often tease me by saying I was always her favourite :-)  I had a lot of patience and the way I saw it was she was there taking care of me when I was a child now i had the opportunity to give her the care she needed..we would go into town one day a week we would meet up with two of my sisters and all go for breakfast... My sisters liked to read fictional and factual books and swap them so I joined in  amongst my favourites were (tuppence to cross the Mersey and wide eyed and legless true stories and flowers in the attic fictional) wide eyed and legless Diana's story I would highly recommend this book it is a true story about a lady with ME and her trials and tribulations and struggle with the illness it is inspiring sad and funny written by her husband Derek...my mother and I would also visit the local market once a week she would link my arm when she felt unsteady when her mobility became more restricted and she needed to use a wheelchair (she hated this said "she felt a burden on her family") I tried to encourage her to continue going out but then she stopped wanting to go into town and the market she felt going to the hospital and doctors was enough for her.. she always liked doing crosswords and watching quizzes and all the soaps on TV eventually she stopped enjoying this as when she got Dementia she forgot what she did what she had seen and who had been to see her she had gone from a strong independent woman being active to staying in the house day after day and only going out when and if she had to...it was so heartbreaking for me to watch her just existing.. when she was 70 she was sat in her wheelchair after getting treatment for her cancer we were waiting for the ambulance to take her home she said to me " I am too young to die don't waste your life like I have " I had to fight back the tears and be strong for her I told her she had years left and tried to make light of it 3 months later she passed away she knew she didn't have long left I was the only person Left she didn't forget she had seen i took comfort from this as there were days I was too ill to go and see her and although she understood i felt a little guilty I lived 2 miles from her and I saw her every day I possibly could when she was ill.. I know people reading this will be feeling sad reading this so believe me when I say my mother was such a character due to her inhibitions going we had a lot of funny moments due to her not caring what she said and who she said it to there was many a time I wanted the ground to swallow me up when she shouted out in the check out queue " if this woman goes any slower she will stop " and once on a train she was in her wheelchair and there wasn't any seats for myself and my sister so we had to stand near the automatic door mam said to my sister " move your fat arse you are stopping the door from opening" lol it still brings a smile to my face.. Take care

      shirl girl x

    • anne61685
      anne61685 shirl21730

      Posted

      Thanks for your kind words, it was lovely to read about your Mother she sounds like she was a real character.

      I've had to cope because nobody else would do it except me. This past 12yrs I've had to use a stair lift when my pain has been to bad to get upstairs, I do try because they say you must excersise (ha ha ! ) They don't know what the pain is like. Due to the really bad pain in my feet now I'm finding I can't walk anymore than a few ft but I've got a scooter that I've had for 12yrs and tried not to use at times but now I have to use it all of the time when I go anywhere. You have to try and keep going but I'm finding it really hard right now.

       The book you suggest sounds good I'll try and get a copy, I like to read. Look after yourself.  Anne X

    • shirl21730
      shirl21730 anne61685

      Posted

      That's good to hear you can still get out and about on your scooter I hope your not a menace on it like my partners mother was she wouldn't give anyone a chance to get out of her way toot toot "lol" the books are available on Amazon in paperback... I must admit I don't read these days as I have an iPad and I'm addicted to playing candy crush but only when I take a rest from doing the housework and answering the phone and sending emails for my partners business "lol" he is self employed and does house renovations sometimes on my better days I go along with him to meet his potential customers.. I feel lucky as I am interested in the work he does and I feel involved...my lovely daughter and gorgeous 2 1/2 yr old granddaughter live 50 miles from me so I only get to see them once or twice a month as my daughter and son in law work full time and Eva goes to nursery.. Eva had croup really bad when she was a baby so I have gone and stayed with them on a few occasions to help out looking after her..now she is 2 and talking she has turned into a little character.. Lisa my daughter phones me up to tell me Eva has a temperature and cough would I be able to go over and sit with her without having to think about it I say yes of course.. I get the train early next morning I get over there Eva looks quite ill that is until mummy goes to work then she wants me to play with her which I love doing...she has such an imagination we play shops cooking and she loves showing me what she has learnt at nursery we sing nursery rhymes! (I remember some of them) and make other ones up "lol" then we have cuddles and a cup of tea and a bit of quiet time for nana "lol"she has so much energy I don't even think about my aches and pains it doesn't matter how I'm feeling just the thought of spending time with Lisa and Eva makes me feel better... a couple of weeks ago Lisa had a few days holiday off work so the 3 of us with my youngest son ( now 28 ) all went to peppa pig world in Hampshire and Eva loved it it was so good to see her getting so excited they play 2 tunes all day long as soon as Eva heard them she would do a funny dance she had us in stitches laughing with her it was an amazing feeling it had been years since I had laughed so much...Eva also has a favourite song we all sing and dance to she certainly has given me a new release in life and I can't wait to see them both next weekend...my oldest son lives in Hampshire he is married and works full time I only get to see him twice a year.. which sometimes I think Its a good thing I don't see him as much as Lisa I love all my kids equally but he could bring me to tears when he was younger he could be so rebellious and unruly he blamed me for his dad not living with us he got into trouble at school I shouted at him and I had to ground him for being naughty it wasn't easy trying to cope on my own...when he was 19 he moved out he could be so negative and argumentative when I saw him it brought me down then he met a woman and moved in with her he joined the navy and moved to Portsmouth and got married .... he apologised for being a little sh.. To me for years and from then we had a better relationship I thought thank goodness his wife can sort him out now "lol" I think we are thrown a dice in this life we are what we make of our lives.. We are in control of our own health and it is up to us what path we choose to take life isn't sometimes fair but hey let's make the most of it because as my mother once said " life is not a dress rehearsal we only get one chance so make the most of it as life is too short you just don't know what is round the corner" she was a wise woman :-) bye for now

      Shirl girl x

  • HOTpicks99
    HOTpicks99 Gem1384

    Posted

    My rheumatologist told me to gp back to my doctor as he diagnosed fibromyglia and doctor had told to get in contact with them i feel for you cos when i come from work each evening i am in agony with my hips hands and fingers and im on morphine and zapain what i try to do is get inone position and stay like only problem is when i wake up
  • barbara08514
    barbara08514 Gem1384

    Posted

    Hi Gem, I was first diagnosed 15 years ago with possibly ME after a virus, then it was decided I had fibromyalgia. I struggled with my job because I was contantly on my feet and my workmates couldn't understand my symptons, especially when I was off sick with a bad attack. I have learnt to pace myself, and since retiring have started doing pilates and I play golf, I find that my energy levels have improved but I still have days when I need to rest. Sometimes I feel I'm allergic to everythning and silly things can start an attach - load noises, strong lights, certain foods, change in the weather. My symptoms range from flu like symptom, dizzy spells, nausea, headaches and not being able to get out of bed. I don't sleep well and have night sweats. I do get depressed with all this going on, especially when freinds think there is nothing wrong with me, but I just try and make the most of the good days and I have an understanding family thankfully. I'm sure you will have times of remission, I have sometimes long periods when I feel fine.
  • Gem1384
    Gem1384

    Posted

    Hi everyone who has commented on my thread.

    Thank you so much for all your help and sharing your experiences.

    It really does help me smile

    There is such a lack of information for fibro sad so I thank you all for your wisdom and I hope if someone else is in the same position as me, and reads this thread it will help them too.

    Fibro sure is a struggle but I'm not gonna let it get to me. I don't have time with my 3 kids to look after! Lol!

    Thank you again, sending you all hugs!

    Gem smile

    • shirl21730
      shirl21730 Gem1384

      Posted

      Hi gem 

      hope your having a good day have you tried an anti imflamatory gel I have used feldene on prescription for years just by massaging it in to your joints it should make a difference as you are manipulating your joints and muscles as it warms them up and brings some relief.. also there is a new one just come out called flexiseq it is not available from your gp and it costs nearly £20 but worth it sports players use it for strains my partner is using it for his painful shoulder he told me to try it as I pulled a muscle in my shoulder 4 weeks ago and I get pain in my arm the pain can get really bad so I tried it I put it on before I went to sleep at night and instantly felt relief and I was able to sleep on my bad side so now I apply feldene on a morning and flexiseq at night. Take care

      shirl girl x

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