Just started Gabapentin and going well so far
Posted , 7 users are following.
Hi everyone, thought I'd pop in and see how people are going with Gabapentin. My neuro first gave me Lyrica which was dreadful and made me feel like a zombie. Now on Gabapentin and doing well (but its only the first week). Any info on how anyone else is coping with it gratefully received
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martin45332 lukki
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lukki martin45332
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martin45332 lukki
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frank46350 lukki
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lukki frank46350
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Yes, its a 50/50 thing with pain control and taking meds constantly. I am taking it for neuropathic pain for multiple sclerosis. Now, 2 weeks in, I am noticing weight gain! I really don't want to increase my weight at all and I follow a very healthy diet and exercise regularly. (Have even given up alcohol about 2 months ago due to weight gain from that ). I will have to weigh (no pun intended, lol) up whether the weight gain is worth it. I am finding Gabapentin is not dealing with all the pain and I certainly don't want to double the dose if its going to increase my weight further. I am still a little drowsy on it intermittently, but will just see how things go over the next couple of months.
sandra07610 lukki
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I did not have that problem with weight. I do remember being drowsy and in all honesty I can't tell if that is the drug or the anemia which is bad for me. I do protein shakes for lunch but I am not a breakfast person so that is usually a slice of cheese and coffee. Supper is balanced well. When I feel tired, I go walking. I swear the air wakes me up. It is only 2 was for you. I do remember it took me several months to really feel a change in pain. Hang in there and see if time helps or ask your doctor what the drug expectations are!
lukki sandra07610
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Thanks Sandra. Yes, its only early days for me, so will give it a good chance. And will have another chat with my neuro when I see him for review in a couple of weeks. Hopefully the weight thing might stabilise too..I don't need a slowing down of metabolism that's for sure and I also have to realise that as an "old" girl in my early 60's, this can occur with age. Grrrrr.
sandra07610 lukki
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sandra07610 lukki
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I have been on it for years as previously posted. I follow the doctor's instructions and take it at the prescribed times. The only time I had a problem which kicked up pain and restless arm/legs was when I skipped the time I was suppose to take it and missed doses. For a year now, I have not missed a dose and my pain is under control and my legs don't decide to walk on their own! I agree with your opinion of Lyrica as it didn't work for me either and it cost a lot more than gabapentin. In the beginning I kept a diary of pain and activity which the doctor liked. Just a thought!
lukki sandra07610
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Thanks Sandra. The diary is a great idea and many years ago I did keep such a diary. I think I will follow your suggestion and begin to do that again. My neuro is regularly reviewing me and I am due to see him in 2 weeks as he wanted to see how I was going with Gabapentin. Its the dreaded weight gain that will make me decide to go off it. The pain is not at huge levels for me but G seems to help me sleep better and I have lost that "wrapped in barbed wire" feeling and no more restless legs...just have to sort out the pro's and con's further down the track.
george_56036 lukki
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All of these posts that are so negative on gabapentin are difficult to understand. I jave been taking 300 mg 3 times a day to mute the severe leg pain I experienced after fusion back surgery. It worked immediately and has been working perfectly ever since. No side effects and has made it possible for ne to get off Oxycodone, a far more addictive drug. I see no reason to buy into all of the negative talk. It may well be that people arecexperiwncing issues with it but the FDA Isn't buying it. And many people blame a drug without taking into account other issues they may have, including psychosomatic symptoms. I know others who take the medicine to restore their gabba receptors in their brains because those can be switched off with taking excessive amounts of diazepams over a long period as I have. That is a major benefit of the use of gabapentin along with its use as a neuropathic pain block agent. I may be the only person benefitting from it considering all the posts here but I rathercseriously doubt it. The FACT IS, one can be prescribed as much as 3600 mg of gabapentin. So anyone taking for less should carefully consider whether there are other issues at play. If it works, take it. You'll know soon enough. And until the FDA posts a dire earning about it, ditch the negatitvity. It simply makes no sense on the vast majority of cases. Millions of people take it. Apparently we need more people to get on line to let people know the positive effects of that med.
martin45332 george_56036
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george_56036 martin45332
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I am using it to deal with the effects of my lower back surgery. It's only been six weeks so it isn't fair to say all should be well. But when my surgeon suggested gabapentin I just took his advice. He said he had seen lingering leg pain from going into the S1 area but in his opinion gabapentin after a 5 day steroid treatment has been very effective with the majority of patients with which he has worked. So I'm operating on his success rate which, given his reputation, is phenomenal. I don't see me being on it long at 900 mg a day and I haven't had an oxycodone pill on a few days now. No withdrawal from that so far. I still have the bottle and will take one if I feel the need but so far, so good.
sandra07610 george_56036
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I wholeheartedly agree with you and have tried in the past to state this. If you read the self medicating, over prescribing, obtaining the drug without a physician, self adjusting, mixing with alcohol etc, it is a wonder we don't here about episodes similar to opioids. Me...I have been on it for years no problems at all but I do follow the advice of my physician and I am a nurse. Great news today, I gardened for four hours,cooked supper, babysat and feel wonderful. Tired but no pain! Says a lot.
george_56036 sandra07610
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I'm very comfortable with my surgeon's advice. I also maintain a pain doctor for additional advice. Between the two of them I usually arrive at a solution. One thing I will say is that I will never use a Butrans patch again. 24/7 opioid induction was a disaster for me.
JohnAk sandra07610
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gary92877 JohnAk
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sandra07610 JohnAk
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I take 600 a day broken down to 2 when I wake up, 2 in the afternoon and 2 at bedtime. I used to be higher when my blood was bad as it created more pain. Now that they have gotten my hemoglobin up, believe it or not pain has decreased. I went to my specialist today and talked to her about everything I am reading on this site. She told me to continue my visits so can talk and if at any time I decided that I wanted to decrease to check with her first and she would help me. She told me she had a patient on 1000 and went off cold turkey and had some seizures. She said this doesn't happen for everyone but it has been known to happen. So I am stressing again for everyone to stay in touch with their prescribing doctor and avoid an unnecessary happening. Years ago I was in so much pain because of no circulation, low blood counts and five joint replacements. I started a pretty good regimen for exercise, lost a lot of weight and I eat healthier so I was able to decrease. Don't get me wrong there are days the pain hits but all in all, I thank God for the new me. When I was on higher doses, I was constantly tired and afraid to drive and my job was driving. Now I start the day with coffee and it helps. I wish I could beat the drowsiness but if that is all I will stick with it. I never had other side effects except an occasional headache. It those went away with retirement so I wonder if it was a true symptom. If I don't take the drug at set times, I swear my legs will walk away from me and then my arms shake but that goes with restless legs/arms. Hang in there, workith your doctor because the better feelings don't happen over night.
george_56036 sandra07610
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sandra07610 george_56036
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I didn't say to increase. All I said was stay in touch with your physician and I was answering Yy inquiry.