Just started treatment

I would appreciate any tips please,  my consultant says I have scar tissue and distorted / narrowing of the vagina, ... Gulp!!! Anybody else had this? 

I have vagina lichen planus too, i am scheduled to see my OBGYN in 2 weeks but I already know it is the disease from pictures I saw online. 

What treatment did you get exactly? I expect my obgyn will prescribe some kind of treatment...not sure

by the way - I also have oral lichen planus, both areas showed up at about the same time.  Really weird.  Never heard of that before either.

I have both too. My vaginal outbreak began 2 years ago. I manage it by using dermovate cream/ointment ( known as clob I think in US ) prescribed by my hospital. I was also given balneum dream which I find invaluable! It really works for me to help manage the problem. During an outbreak my consultant told me as soon as I feel a problem starting up to " hit it hard" use the cream once a day for 2 weeks then every other day for 2 weeks reducing to 3 times a week and then once a week. This regime works for me although you may find your doctor or dispensing chemist will question such usage. I was warned by the hospitat that might happen but have been assured that it is the best way to keep it under control. Alongside I use the balneum as it is so soothing and moisturising. Tbh I haven't really noticed much in the way of diet has helped me but I really believe it is a very individual problem with your own body chemistry coming into play and that is why it is so difficult to say what will and wont work for you. I do think stress plays it's part as I can relate the start up of both lp sites to very difficult times. So who knows? I think anything is worth trying as if it's worked for someone it may work for you. Let's be honest when it's really bad you would see a witch doctor if you thought it would help! Most of us have never heard of it until we suffer ourselves. My consultant told me that as not a high percentage of the population have the condition not much research has been done as the financial return for any drug company would not yield enough! Good luck and I hope you find some relief soon.

Thanks for the info, I will mention to my doctor in 2 weeks.  If you are in the UK then I may not find the same here in California.  I am making a few changes in my diet by reducing (not eliminating, for now) wine, sugar and dairy.  I also started using pure aloe vera, in the gel form for "downthere" and liquid form for oral, i am still researching on how to best use the liquid aloe vera - it was recommended on almost all online sites as a natural treatment.  I know the gel applied in the vagina area is helping me a little.  I am planning to discuss aloe vera and other natural remedies with my doctor when i see her.   It all started about 5 months ago..i think, i did not pay much attention at first, in fact, i thought i was dealing with yeast infection for at least 2 months, until i realized it was not going away and it is only then that i connected the two - the oral and vagina.  

The head and neck doctor i saw last week for OLP said she sees a lot of patients with this disease, i am not sure if i should believe her, she was very young and did not sound too experienced in anything...i was the one doing most of the talking.  Anyway, don't give up...a positive attitude always helps in everything 😊

what kind of treatment do they have you on?? prednisone?

 

Hello - I am also a newly diagnosed with this condition after a nightmare of a year wondering what was going on with my skin there! I had tried lots of creams as the itching is intense for me especially at night. I had recently found some relief with cutting out all sugar (not easy I can tell you!) from my diet and my symptoms have eased somewhat. What medication have you been prescribed? Ive been on dermovate, betnovate and nerisole to no avail but Im now on Protopic which helps massively. Good luck!!