Just started trial of levothyroxine, now I'm worried
Posted , 7 users are following.
Having read all the posts, I'm a bit worried if I'm doing the right thing. Have all the symptoms of hypo (aching joints, sluggish, heavy irregular periods now anaemic, cold, hair shedding, brittle nails, etc) but could also be due to being anaemic or premenopausal, I'm 49 but feel like I'm 80!! I first went to Dr with hives, which were coming every day, which I ignored and put down to a food allergy until my face puffed up!! Given antihistimes and blood test. My anaemia was discovered and slightly raised TSH. Iron tablets which I couldn't tolerate. Nothing to be done with TSH. I went back to GP as all my symptoms pointed towards hypothyroidism. Had to push him to do another blood test for tsh/t4/t3 - TSH still risen but apparently not enough to give symptoms (don't know the numbers) but offeredme a trial of 25mg levo for 6 weeks and get bloods tested again. Took first tablet this morning with water and waited 1 hr before my morning cuppa, seriously hoping that I will start to feel normal again soon.
i read that certain foods should be avoided ie strawberries, peanuts, cabbage and fluoride toothpaste, can anyone tell me why? Thank you, any help would be greatly appreciated.
1 like, 52 replies
rozain69108 jennywren100
Posted
jennywren100 rozain69108
Posted
MtViewCatherine jennywren100
Posted
Gluten is a small protein found in wheat, rye and barley that triggers the auto-immune response that results in Hashimoto's and Grave's diseases. If you have thyroid disease, you have one of these. So avoiding gluten is extremely important to saving your thyroid! Going gluten-free will also help calm down your immune system so you won't react as much to other foods.
Floride is in the same group of chemicals as iodine and jams up the thyroid because it has a higher binding power than iodine, so best to avoid, or use limited amounts. I still use regular toothpaste but take boron to help strengthen my teeth rather than floride rinse.
On the meds... Most people here have had bad reactions to them on this site. However, if you have not, you may not. If you have food sensitivities, you want to be sure your meds are free of triggers like corn, acacia, wheat and dyes that will further irritate your system, Doctors usually overlook this unless you specifically ask them for meds without "junk" additives.
After years of treating my thyroid disease, I have recently discovered I also have adrenal exhaustion, addison's, whatever. So it seems the adrenals and the thyroid work together and when one goes out the other eventually does as well. I recently started some herbs for the adrenals and am feeling much better after only a week. So I would certainly recommend making sure your adrenals are healthy. You'll notice in the info sheet that comes with the thyroid meds there's a statement about not taking thyroid meds if there's an adrenal problem. But doctors don't ever test the adrenals before giving the thyroid meds. Assumably because they don't have meds for the adrenals.
Lastly, if you have been diagnosed with thyroid disease, I don't recommend going off meds. You need them, just like a diabetic needs insulin becuase your body isn't making enough thyroxin. So you MUST take some sort of thyroxin!!!! None of it is perfect. The oldest synthetic meds were put on the market 60+ years ago and were never clinically tested. Newer ones were approved based on their equivalency to the existing ones. So pretty much none of them have been properly tested. Unless it specifically says NDT (natural dessicated thyroid) you are getting synthetic, which doesn't work the same for a lot of people. The labeling of the synthetic with the same name as the natural is no longer allowed. This also makes it confusing for patients to know what they are taking.
The natural (NDT) pharmaceutical is from pigs and has a different ratio of T4-T3 than humans, but still works way better than the synthetic products. There are some websites that sell natural organic over the counter natural (non-pharma). There's a lot of fear about using these because they aren't "regulated". However, pharma grade thyroid meds are allowed a 10% deviation from the label, so you could be geetting as much as a 20% difference between prescriptions. Because of this, I consider the natural non-pharma just as reliable. If I didn't need such a high dose (I'm on nearly 200mcgm /day), that would be my first thing to try. You can get it in either cow or pig, The non pharmaceutical is probably the best choice if you're on a low dose because you can get the organic, and you have a choice of pig or cow (porcine, or bovine). The completely natural also has traces of various T1, T2, and others as well as the T3 and T4 you get in the pharmaceutical grade. The other thyroxins should help. Makes sense that if you're not producing thyroxin, you need all types. Your body naturally converts the T4 to T3 as needed, but many people don't convert well, so do much better with the T4/T3 together. I assume the T4 also converts to the other Ts as needed, but not if you're already having a ton of problems. I'd recommend the natural non-pharma for the above reasons and because you can self-regulate, rather than always depending on a doctor and thier oppinion, being captive to blood tests, etc. As with everything, natural is ALWAYS better.
Finally, for me, with the meds, without the meds, I tend to have migraines that are bad if the meds are too low, seem to be triggered by the meds, etc. I'm kind of to the point where I figure that's just part of it.
Hope that helps and good luck!
Catherine
rozain69108 MtViewCatherine
Posted
Whatherbs do you take for your adrenals?
Thanks,
Rozain
jennywren100 MtViewCatherine
Posted
I also looked into adrenal burnout a couple of years ago as I had all the symptoms of that but can't remember much about it now.
Thanks for all your advice, im really hoping that these tablets will work and not give me other problems, I feel like a complete wreck already,
best wishes and I hope you stay well too x
barbara98940 jennywren100
Posted
margaret89120 MtViewCatherine
Posted
MtViewCatherine barbara98940
Posted
MtViewCatherine margaret89120
Posted
MtViewCatherine rozain69108
Posted
I take a lot of vitamin C, as well as selenium and chromium for the thyroid.
In fact, in my 20s I had low thyroid and was able to heal it with chromium from liquid chlorophyl. Saved me decades of thyroid disease! I've recently started back on the liquid chlorophyl.
MtViewCatherine margaret89120
Posted
barbara98940 MtViewCatherine
Posted
barbara98940 MtViewCatherine
Posted
barbara98940 MtViewCatherine
Posted
barbara98940 MtViewCatherine
Posted
barbara98940 MtViewCatherine
Posted
MtViewCatherine barbara98940
Posted
I don't tolerate GMO corn at all. Can sort of tolerate organic corns, but not well. The corn as an additive in the meds doesn't work for me. Have never been able to tolerate MSG, which is a corn product.
So I avoid corn and soy. Sugar is another big GMO, so I try to do the organic as much as possible. But sugar, along with wheat, corn and soy, is in nearly everything!
If I'm feeling really badly, I'll spend months doing Lamb soup made with defatted lamb, organic root vegetables (not potatoes, I use carrots, yellow beets, and other non starchy roots), and leafy greens, cooked in a clow cooker. The fork tender slow cooked carrots are al ife-saver when you are well!!!! This soup is amazing, easy on the tummy and loaded with nutrients! Just switch out the veggies each week. Its also low maintenance because once you cook a batch, you can freeze it or keep it in a very cold refrigerator for several days.
MtViewCatherine barbara98940
Posted
barbara98940 MtViewCatherine
Posted
barbara98940
Posted
Have you tried sweet potato - I can't eat potatoes but can eat sweet potato, apparently sweet potato is not of the nightshades family (thanks suzanne for that nugget of information.
I'll PM you a good site for info on adrenals.