Just started trial of levothyroxine, now I'm worried

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Having read all the posts, I'm a bit worried if I'm doing the right thing. Have all the symptoms of hypo (aching joints, sluggish, heavy irregular periods now anaemic, cold, hair shedding, brittle nails, etc) but could also be due to being anaemic or premenopausal, I'm 49 but feel like I'm 80!!  I first went to Dr with hives, which were coming every day, which I ignored and put down to a food allergy until my face puffed up!! Given antihistimes and blood test. My anaemia was discovered and slightly raised TSH. Iron tablets which I couldn't tolerate. Nothing to be done with TSH.   I went back to GP as all my symptoms pointed towards hypothyroidism. Had to push him to do another blood test for tsh/t4/t3 - TSH still risen but apparently not enough to give symptoms (don't know the numbers) but offeredme a trial of 25mg levo for 6 weeks and get bloods tested again. Took first tablet this morning with water and waited 1 hr before my morning cuppa, seriously hoping that I will start to feel normal again soon.

i read that certain foods should be avoided ie strawberries, peanuts, cabbage and fluoride toothpaste, can anyone tell me why?  Thank you, any help would be greatly appreciated.

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  • Posted

    Did you take the iron at least 4 hours after the levothyroxine? 
    • Posted

      Hi, I couldn't tolerate the iron tablets so had to quit them after I'd tried 2 different ones. Ended up in bed for a whole weekend with a fever and the worst rash I've ever had, nasty iron tablets
  • Posted

    Hi Jenny- I totally  undersnd what you're going through! The symptoms youa re having are of low thyroid.  There's a lot to learn. The food allergies you're having will mostly go away once the meds are rght. That's the good news. However, many foods are goitrogens, paticlarly crucifeous vegetabes. You can still eat cruciferous vegetables in moderation, as lon as you COOK THEM WELL. Cooking them well decreasese amount of natural (usually good) chemical found in them that irritates the thyroid. On the list of goitrogens (goiter causing foods) is also strawberries and many other foods. My experience is you'e better off focusing on eating a very clean organic, gluten-free diet,

    Gluten is a small protein found in wheat, rye and barley that triggers the auto-immune response that results in Hashimoto's and Grave's diseases. If you have thyroid disease, you have one of these. So avoiding gluten is extremely important to saving your thyroid! Going gluten-free will also help calm down your immune system so you won't react as much to other foods.

    Floride is in the same group of chemicals as iodine and jams up the thyroid because it has a higher binding power than iodine, so best to avoid, or use limited amounts. I still use regular toothpaste but take boron to help strengthen my teeth rather than floride rinse.

    On the meds... Most people here have had bad reactions to them on this site. However, if you have not, you may not. If you have food sensitivities, you want to be sure your meds are free of triggers like corn, acacia, wheat and dyes that will further irritate your system, Doctors usually overlook this unless you specifically ask them for meds without "junk" additives.

    After years of treating my thyroid disease, I have recently discovered I also have adrenal exhaustion, addison's, whatever. So it seems the adrenals and the thyroid work together and when one goes out the other eventually does as well. I recently started some herbs for the adrenals and am feeling much better after only a week. So I would certainly recommend making sure your adrenals are healthy. You'll notice in the info sheet that comes with the thyroid meds there's a statement about not taking thyroid meds if there's an adrenal problem. But doctors don't ever test the adrenals before giving the thyroid meds. Assumably because they don't have meds for the adrenals.

    Lastly, if you have been diagnosed with thyroid disease, I don't recommend going off meds. You need them, just like a diabetic needs insulin becuase your body isn't making enough thyroxin. So you MUST take some sort of thyroxin!!!! None of it is perfect. The oldest synthetic meds were put on the market 60+ years ago and were never clinically tested. Newer ones were approved based on their equivalency to the existing ones. So pretty much none of them have been properly tested. Unless it specifically says NDT (natural dessicated thyroid) you are getting synthetic, which doesn't work the same for a lot of people. The labeling of the synthetic with the same name as the natural is no longer allowed. This also makes it confusing for patients to know what they are taking.

    The natural (NDT) pharmaceutical is from pigs and has a different ratio of T4-T3 than humans, but still works way better than the synthetic products. There are some websites that sell natural organic over the counter natural (non-pharma). There's a lot of fear about using these because they aren't "regulated". However, pharma grade thyroid meds are allowed a 10% deviation from the label, so  you could be geetting as much as a 20% difference between prescriptions. Because of this, I consider the natural non-pharma just as reliable.  If I didn't need such a high dose (I'm on nearly 200mcgm /day), that would be my first thing to try. You can get it in either cow or pig, The non pharmaceutical is probably the best choice if you're on a low dose because you can get the organic, and you have a choice of pig or cow (porcine, or bovine). The completely natural also has traces of various T1, T2, and others as well as the T3 and T4 you get in the pharmaceutical grade. The other thyroxins should help. Makes sense that if you're not producing thyroxin, you need all types. Your body naturally converts the T4 to T3 as needed, but many people don't convert well, so do much better with the T4/T3  together. I assume the T4 also converts to the other Ts as needed, but not if you're already having a ton of problems. I'd recommend the natural non-pharma for the above reasons and because you can self-regulate, rather than always depending on a doctor and thier oppinion, being captive to blood tests, etc. As with everything, natural is ALWAYS better.

    Finally, for me, with the meds, without the meds, I tend to have migraines that are bad if the meds are too low, seem to be triggered by the meds, etc. I'm kind of to the point where I figure that's just part of it.

    Hope that helps and good luck!

    Catherine

    • Posted

      Thanks for your helpful reply. Funnily enough, I did try a spell of gluten-free, sugar free and no cows milk a few weeks ago to see if I felt any better. Unfortunately, I eventually quit as I didn't notice any difference whatsoever, just a bit of deprivation,  everything cost twice as much and I have gained weight lately (only 10lbs but it's not wanted) I was snacking      on nuts and fruit, and there are sooo many calories in nuts sadly and fruit  is laden with sugar, it's difficult to know what to eat. I need to concentrate on eating iron rich foods atm, so trying to have meat and fish as much as possible. 

      I also looked into adrenal burnout a couple of years ago as I had all the symptoms of that but can't remember much about it now. 

      Thanks for all your advice, im really hoping that these tablets will work and not give me other problems, I feel like a complete wreck already,

      best wishes and I hope you stay well too x

    • Posted

      Hi jenny, the only thing I can add to catherines very comprehensive reply (thanks catherine you summed it all up perfectly) is to say: irone needs vitamin C to be absorbed by the body, so eat ithe meat with vegetables; and corn Iis also known as maize starch, which, if you are on the UK, is in EVERY synthetic thyroxine tablet. I know because I am allergic to maize starch and the pharmacist checked for me. My only alternative is liquid thyroxine, which is expensive but can be prescribed on the NHS if one can demonstrate need. I've tried a NDT called Nature-Throid but I was allergic to that too -fingers swelled up and I itched. I was ok on thyroxine for 20 years and like you couldn't tell sny difference when I went gliten and dairy free, but have now become allergic to both and wish I had cut them out years ago. I snack on raw carrot, cucumber and celery.
    • Posted

      Hi Catherine  I have migrains triggered by Levo  I have tried NDT but could not tolorate it, made me breathless, after lots of research i found Kirklands sleep aid I only take 1/2 of tablet every night and the migrains have gone please try them they  are great, the only thing that prevents my migrain .before kirklands i would have a migrain 5 out of 7 days a week I have taken kirlands for 3 months and i have been totally free of migrains please read up on them then give them a go
    • Posted

      Great points Barbara- The sooner you go off the wheat/ghluten, the less likely you are to develop a really severe problem. It's pretty much avoid it now voluntarily, or spend the rest of your life without. I'm super sensitive, and have horrible reactions to it, so cannot even eat the "gluten-free" items unless they are prepared in a gluten-free manufacturing environment. "Gluten-free" like everything esle regulated, is allowed a certain amount of gluten detectable by antibody test. If its allowed to have enough to be detected by antibody test, our antibodies can detect the gluten and react. I'm hoping that if I can go without a reaction for a long enough time, that I will become desensitized. Unfortunately, its in everything, so desensitizing is unlikely. Save yourself and go gluten-free now, so it isn't severe and debilitating later.
    • Posted

      Interesting about the sleep-aid. I'll look into that. Thanks! Good to know there's hope. Any ideas as to why the sleep aid works?
    • Posted

      Fot the adrenals, there's a combo of rhododendron root and magnolia root that is sold for weightloss, that actually helps the adrenals. In addition, bladderwack (kelp) helps, and also helps the thyroid, but you have to be careful because some people with thyroid problems can't tolerate iodine. Go figure.  I also take tyrosine, and am getting ready to try rhodeola rosea. Ashwaganda is also good for the adrenals.

      I take a lot of vitamin C, as well as selenium and chromium for the thyroid.

      In fact, in my 20s I had low thyroid and was able to heal it with chromium from liquid chlorophyl. Saved me decades of thyroid disease! I've recently started back on the liquid chlorophyl.

    • Posted

      Hi Margaret- This turns out to be great information!!! I looked into the sleep aid. Looks like its an antihistamine in the benadryll family. I can't take benadryl. But this is important information because the migraines could be caused by histamines, something I hadn't thought of. I'd try another antihistamine, but am hesitant to do this as a long-term solution, since I'm so sensiitive to everything.   Grapeseed extract helps with histamines, so I'll try that during the day since taken at night can upset sleep.
    • Posted

      Hi catherine, Margaret, I looked up Kirkland sleep aid. Kirkland is the own brand name of Costco (a big discounting, members only, wholesaler in UK) and the sleep aid contains 'Phenegan,' an anti-histamine, which has a side effect of drowsiness. A guess would be that it might be this side effect that is improving the quality of margaret's sleep, thereby reducing the migraines.
    • Posted

      Hi catherine, thanks for the list ofbthings to help adrenals. Have you thought about taking Vit E?
    • Posted

      Hi catherine, margaret, also worth avoiding soya. It's not good for the thyroid and is a known allergen.
    • Posted

      Catherine, are you allergic to maize starch (aka corn starch)? It's in everything and might be another thing that is triggering your migraines. It comes in many guises e.g. maltrose (aka corn syrup) etc.
    • Posted

      Hi Barbara- Yes. I figured out the oats early on. Haven't been able to eat them for years. There are gluten-free ones, and I seem to tolerate those OK. I really avoid grains. The gluten is really extreme for me, so I focus on that because any small amount wrecks me.

      I don't tolerate GMO corn at all. Can sort of tolerate organic corns, but not well. The corn as an additive in the meds doesn't work for me. Have never been able to tolerate MSG, which is a corn product. 

      So I avoid corn and soy. Sugar is another big GMO, so I try to do the organic as much as possible. But sugar, along with wheat, corn and soy, is in nearly everything!

      If I'm feeling really badly, I'll spend months doing Lamb soup made with defatted lamb, organic root vegetables (not potatoes, I use carrots, yellow beets, and other non starchy roots), and leafy greens, cooked in a clow cooker. The fork tender slow cooked carrots are al ife-saver when you are well!!!! This soup is amazing, easy on the tummy and loaded with nutrients! Just switch out the veggies each week. Its also low maintenance because once you cook a batch, you can freeze it or keep it in a very cold refrigerator for several days.

       

    • Posted

      Hi Barbara- I think I had the vitE on my list at one time. I switched to prenatla vitamins to try and reduce the number I'm taking. I should probably add the E back in. Is it helpful for adrenals?
    • Posted

      I really appreciate your recipe ideas. I snack on chicken thighs I've cooked in a batch and frozen in portion sizes, or raw carrot sticks. Thank you for the tip about the gluten free oats, I'll try them. I never thought I'd be looking forward to eating porridge!
    • Posted

      To continue....Having home made chicken and veg soup for breakfast is getting a bit wearing!

      Have you tried sweet potato - I can't eat potatoes but can eat sweet potato, apparently sweet potato is not of the nightshades family (thanks suzanne for that nugget of information.

      I'll PM you a good site for info on adrenals.

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