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just the i feel thought othrr sufferers would apreitate this x

Posted , 11 users are following.

kirsty14947
kirsty14947

Y does sleep elude me so, brain is allways on the go, im up all day im up all night, my body just dont feel right, wish sometimes youd understand, sometimes i may need a hand, i no its hard for u to see, just what has become of me, i find it hard to remember things, i feel so many dents and dings, get out of bed get ready to go then it hits the damn fybro

0 likes, 20 replies

20 Replies

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  • neilwaud1969
    neilwaud1969 kirsty14947

    Posted

    That's right on.

    Couldn't have put it better myself. 

    Should make it into a poster....

  • tiswas24537
    tiswas24537 kirsty14947

    Posted

    very good hun says it all really.

    iv just had to deal with my bank and trying to remember the info they want is a nightmare makes me want to cry with frustration . because it makes me feel so dum .when i am not.. frownsmile

  • alig39
    alig39 kirsty14947

    Posted

    This is the best description I've read yet. xxxxx

     

  • joy47826
    joy47826 kirsty14947

    Posted

    What supplements for Fibro do you take?    I've worked long and hard on managing this stuff and take all supps for Fibro ... magnesium is critical and much more....if you have an interest to hear more, I'll say more....but otherwise  it takes a lot of healing of many things gone wrong in our bodies....   Not slapping pain pills and expecting any healing......truly.....Joy 76 US
  • Raff
    Raff kirsty14947

    Posted

    That is so good! I was trying to think of the word 'moonlighting', when I was talking to some friends yesterday. It just was not coming through the fog... I ended up after 10 minutes with the word 'skylighting!', the spontaneity totally lost! But at least this time my brain was working on the same area, and my lovely husband could translate for me!  :-) Fibromyalgia don't you just ... oh what's the word !!!!
    • joy47826
      joy47826 Raff

      Posted

      I've never had the fog, keep waiting for it to appear, but it does not.

      I credit grape seed extract for circulatory support from head to toes....started on this powerful antioxidant in 1995, so 19 yrs on it.   

  • TedHutchinson
    TedHutchinson kirsty14947

    Posted

    It is important to try to improve the amount and quality of sleep.

    Melatonin, the hormone your body is supposed to make between Dusk and Dawn is itself a useful anti inflammatory antinociceptive agent

    Antinociceptive means it reduces your sensitiivity to pain.

    If you search the web  for "Melatonin in Antinociception: Its Therapeutic Applications" you should find a full text paper that gives more details and it has a long section on Melatonin and Fibromyalgia that is worth reading.

    Interesting to see that St John’s Wort  is a good source of herbal melatonin.

    There are other ways of improving melatonin secretion before you go to bed.

    There is an APP for your computer screen that dims it down and reduces the BLUE light (which is bad at stopping melatonin secretion)  from LED displays. It's called FLUX and is quick easy and free to install. They do other versions for other displays as well.

    It helps to get OUTSIDE during the day as BRIGHT LIGHT exposure during the day helps reset your circadian rhythm and if you then keep your light subdued during the evening and have a dark bedroom at night (maybe wear an eye mask) when you sleep will increase your melatonin production.

    You can also get (or ask your Dr) for TIME RELEASE  Melatonin TABLETS

    Start with the very lowest dose you can obtain and then gradually work up as required. You need to take it slowly as some people get very vivid dreams. but the dreams tend to wear off after a while unfortunately.

    • joy47826
      joy47826 TedHutchinson

      Posted

      Ted, good to see a UK member talking about supplements support.

      I have talked this since I arrived here, but it probably makes better sense from a UK member.... what do we in the US know?    haha

      I worked long and hard to find my sleep remedy and I use a low dose melatonin, not release form) and inositol (b vitamins family) and calms' homeopathic....I sleep 8-10 hrs of quality sleep.

      SJW caused by blood pressure to rise....so I don't touch it now.  

      Are you up on the need for K2 for best Vit D absorption....I have a lot of info on the MK4 vs MK7 version of K2.

    • TedHutchinson
      TedHutchinson joy47826

      Posted

      I am awareof the role of Vitamin K when using Vitamin D3. i'm not convinced it helps with Vitamin D3 absorption/retention however I think it has a very important role.

      When your 25(OH)D level gets above 40ng/ml (100nmol/l for UK readers) the floodgates for calcium absorption are opened and it's possible that people will have more calcium floating around their blood stream that could deposit and calcify the arteries. Taking Vitamin K helps keep calcium locked in bones and helps prevent it calcifying arteries. 

  • kirsty14947
    kirsty14947

    Posted

    Thankyou everybody for te replys im curently on gabapentin i have read ur replys ad wuld lke to look into te tking suplements and vitamins to help its very difficult in my area as the doctors dont know much about the syndrome its very frustraighting try send me to a rhuematolagist and hes just as useless blaims most of my pain on my hyper joint mobility if any one could rcomend a specalist in the north west of england it would be much apretiated also i would like to make my poem more public to make more people aware and maybe help some understand xx
    • alicat34
      alicat34 kirsty14947

      Posted

      Where in the North West are you? I'm also in the North West. No recommendations for a specialist as i've only recently been diagnosed.
  • nitropilot
    nitropilot kirsty14947

    Posted

    Sucks.

    What has helped my circadian rhythm get back in sync is a binaural Brainwaves app with the HGH and Jet Lag tracks. They are money back guaranteed but I'd fight to keep them. Lol

    • jimtorry
      jimtorry nitropilot

      Posted

      Why pay for binaural beats when you can get them for free on youtube there is a mountain of the stuff and spoiled for choice. Jeffrey Ginac is my fav.

      best wishes james

    • nitropilot
      nitropilot jimtorry

      Posted

      I like to be able to download them to my phone & add to a playlist so I don't have to depend on quality of internet. Nothing sucks more than shotty internet when you're in the middle of a session. Lol

      Thank for the name. Still gonna check it out.

    • jimtorry
      jimtorry nitropilot

      Posted

      sorry i meant to say check out youtube where every track has a website and every website offers free downloads, my i-pod is full of free downloads, i have only once paid for a product which was expensive and i don't even use now.These kind of products can be expensive and users should take advantage of the free material that is on offer before purchasing.

      best wishes James

    • tiswas24537
      tiswas24537 nitropilot

      Posted

      iv just listened to this on you tube totaly freaked me out .

      didnt like it at all . but i can see how its suppose to work.

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