1. Community
  2. Diabetes and hormone problems
  3. Hypothyroidism

Just want to talk to people who really understand!!

Posted , 8 users are following.

rachybaby25
rachybaby25

Hey everyone!

In thought I would just come on here and meet people who understand, maybe swap stories and tips!

My story is; I was born with congenital hypothyroidism. As far as I know I was a few weeks old when I stopped breathing, I was firstly treated for meningitis to later diagnosed with congenital hypothyroidism.

I have memories of taking my tablets on a spoon with a drop of milk and going to the consultant regularly for Xmas rays, blood tests and check ups! I always felt special when I was young because I got time off school and I was treated differently to everyone else, even my sister!

My mum used to deal with everything, my medication appointments and anything I needed, then she passed away when I was 13. My world ended and so did my feeling special for my condition.

I had to remember myself to take my medication and help remind my dad (who worked most hours of the day to provide for us!) Of appointments.

I had horrific periods, the pain was so bad some days I couldn't leave my bed and the flow was so heavy.

I was always the fat one, called pig and school and never the girl the boys fancied.

I manged to get through school and college and started uni. There is became depressed due to delayed bereavement and of course with a little help from my condition.

Meeting my boyfriend after uni brought me out of this but I still suffering with weight gain and it has lead to an eating disorder.

I notice my sensitivity to temperatures, muscle aches, brain fog, memory loss, numbness and much more now I'm old and mature enough to realise it is all linked.

Of course I get tired so easily too but I have never known what it is like to be filly charged! People never quite understand when I say I'm tired just how tired I really am, I don't think people can unless they have experienced it themselves.

I am living my life the best I can. However I want to start a family soon and I am so scared this condition will put be back yet again and stop me from being able to do this!

If you have got this far thanks for reading! It's good to get it off my chest!

3 likes, 17 replies

17 Replies

Prev
  • Scudo
    Scudo rachybaby25

    Posted

    Hi just reading your post.

    I've just joined this site because of what you say.

    I also need to talk to people who understand the misery I am going through in life.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.