Just wondering if anyone has any tips and tricks

Hi Tay. So sorry to hear that the vertigo has returned....

Have you been back to see your ENT?  If so, what do they recommend? 

Are you on any medications at this time?  If not, you might want to request the following....

1.  diuretic (water pill) to pull excess fluid from inner ear

2.  make sure you eliminate as much salt/caffeine/alcohol as possible

3.  discuss intratympanic steroid injections to reduce inflammation in inner ear which could be causing vertigo.

4.  ask for another audiogram test to see if you have lost additional hearing since last test.  If so, ask what does that indicate?

5.  ask about Betahistine which is an oral med that helps rebalance fluid in inner ear.

6.  If above fails to eliminate the vertigo consider gentamycin injection which will kill the balance nerve in affected ear and will eliminate the "bad" signals sent to the brain which causes vertigo.  If you need more info on gentamycin injections let me know.  I've had this procedure done 35 years ago when it was relatively a new treatment for MD.

Best of luck....please let us know how you are after the above is discussed with doctor.

Hi again, Tay.

Betahistine does not work for everyone.....but enough folks receive benefits that it is an approved treatment for MD.  Usually the dose needs to be at least 16mg, 3 times/day.  Some folks need much more for it to be effective.  It's worth a try....almost no side effects.

Gentamycin injection procedure is almost identical to the steroid injection you had.  There is almost no pain and you should be in and out of doctor's office in less than half an hour.  It usually takes two injections spread a week or so apart to be most effective.  Gentamycin is an antibiotic that will be injected into the inner ear through the ear canal.  The purpose of it is to destroy the defective balance nerve in your MD ear so that your brain will no longer receive "bad" signals.  It's these bad signals to the brain which is the cause of MD vertigo.  Don't be afraid of losing this bad balance nerve.....each of us has two balance nerves....one in each ear.  Once the defective one is eliminated, the remaining one in the good ear will compensate for loss of the other one and you will have almost no balance difficulties after a week or so....especially at your age.  There is a chance that you may have additional hearing loss in affected ear from this procedure but that is not certain.  In my case, my hearing actually improved!  Some folks have reported that they experience vertigo attacks once or twice after the procedure but then they have no vertigo shortly thereafter.  Some folks have immediate relief following the second injection...that was my experience.  My advice:  if all other treatment management has failed to eliminate vertigo then by all means have the gentamycin procedure.  It has a very high rate of full success in eliminating vertigo from MD when administered by an experienced ENT.  There is no need to fear this.  One other thing....this procedure is unlikely to eliminate tinnitus and ear fullness....just the vertigo. 

Now....knowing the above,  I think you should first consider going back on the diuretic....start at 25mg and increase to 50mg if necessary and give that at least a month's try.  If that works then make sure you have a blood test to evaluate your potassium level and kidney function.  They try the Betahistine and see if that works.  Give that at least a month.  If both of these do not stop the vertigo then go for the gentamycin and you will be fine.  Let me know if you need more info.....GOOD LUCK.   Let us know what you decide.

Just got back from Shea clinic for prousions a lot people doing for sickness ,,balance, and ringing getting good results. Othe things no salt, water, diet, exercise, blind walking stairs, sitting up and down , head and eye exercuses on internet.Finally. man y will tell you others just will not understand they can not see it or begin to get it , some think u just need to sick it up. It's our battle and we are all in this together. I am 65 hate that u young people have this condition

Tay,  bless your heart being diagnosed at such a young age. I am newly diagnosed Myself, but this forum has given me so much good advice. Keep reading all the things people have written. I pray you will find an answer.

Hi Tay...so sorry you are having a rough time it really is life altering at times and hard to get loved ones to ever understand.  What works for me is a diuretic at 75mg anything less than 75mg and I get attacks.  Just thought I would share that in case you never tried that high of a dosage yet?  Taking the medication I can pretty much eat and drink as I wish!  I have days that I’m nauseous or dizzy but few and far between!  When I feel dizzy or get anxiety over a possible attack I take Valium and that has helped!  Best of luck to you!!! Keep us posted we are all here for you!