1. Community
  2. Brain and nerves
  3. Epilepsy and Non-epileptic seizures

Kath 3863

Posted , 3 users are following.

kath3863
kath3863

My 19 year old daughter as been taking epilim graduals for over ten years plus other Medicean for her epilespy plus  having a V.N.S Inplant 4 years a go her neurologist is di creasing it as she as been on it so long  it does no longer work.as any one  gone throw this is there eny  with drow simtems as been on it so long 

0 likes, 3 replies

3 Replies

  • Tazchurch
    Tazchurch kath3863

    Posted

    Been on it for over 25yrs and am now so near the max dose may be replaced by another. It is a drug that does seem to have a decresing effect over time but the implant itself can alter the need for it even rendering it redundant.

    Had it become ineffective before the implant? Are other drugs being introduced?

  • old_nanna
    old_nanna kath3863

    Posted

    sorry to hear about your daughter kath , they diag,me with elilepsy in 2010 and im 85 now , and not on any medication ,my choice ,as i had sooo many side affects from epilem and any meds, they gave up , but my turns are a different sort ,i dont black out , and they last 2 days , awful feeling and hard to explain , now i do hope you find an answer  , in my case i believe its the blood not getting to parts of my brain , and of course they say old age too but that t dont want to accept lol i feel in your case , if its possable see another dr, one who is really interested in helping , and tell them you want them to get interested , lol they are only people like us you know ,just eduaced and trained to do the job they chose , dont give up x you and your daughter are worth it x good wishes to you 
  • Tazchurch
    Tazchurch kath3863

    Posted

    It is worth checking blood sugar levels. In my case it has been found that mine are naturally low and often drop dramatically. (I bought a meter from the supermarket and checked my own then handed it with a diary to my Dr. - Fait Accomplais as they say). This can trigger fits.

    I am also highly sensetive to heat. Overheat and I fit so it has been recommended that I take low dose paracetamol to counteract this - I EMPHASISE THAT THIS WAS MEDICAL ADVICE. Again I kept my own diary and proved it to a cynical Dr.

    Thoughts with you and your daughter.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.