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Hello, I'm new to this community. I stumbled across this forum when searching for others with similar problems.
I first got shingles when I was 10 or 11 years old I believe, didn't get it again until I was about 13, and have been getting it 2-3 times a year, if not more, I'm now 22 (male). So I believe I've had it close to 30 times.
My whole life, I've never heard of anybody getting shingles like I do. When googling, I always see articles and videos claiming it's incredibly rare to get it twice, how rare it is for young people to get it, how it always stays on one side of the body and in one area. None of this is true for me.
I've had shingles in 5 different areas total, 2 different areas on the right side of my neck/top of shoulder, 2 different areas on both the left and right side of my mid back, and occasionally directly over the center of my lower stomach.
The outbreaks on my neck and back usually come with deep muscle aches, intense itching, burning, tingling, they usually take about 2-3 weeks to go through the full cycle, they have varied a great deal in intensity, they are usually contained to about a 4 inch diameter, it is usually spaced out every 3-6 months.
The outbreaks on my stomach were larger, and were accompanied with severe flu like symptoms that left me shaking with extreme body aches, fever, unable to get out of bed for days, on top of the usual symptoms.
The only pattern I've realized, is that if I get a sun burn on my neck it's very likely my shingles will outbreak there. Even then, I still get outbreaks in that neck area without sunburns. The other 3 locations I have no idea what triggers them.
I don't have insurance, I have no access to health care of any kind... just can't afford it. The only treatment I use is dabbing tea tree oil on it with hopes to dry it out. The only time I saw a doctor was when I was 14, they took a sample and confirmed it was shingles, I was never told I had any auto immune disorders, but I'm not sure if they checked for any either.
At my age, with how sporadic and frequent my outbreaks are, I have great anxiety that it will one day damage my organs, or eventually will break out on my face damaging my sight or hearing.
I know there's not many solutions for this problem, I appreciate anybody taking their time to read, Just feeling hopeless.
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